Exploring parental perspectives after commencement of flash glucose monitoring for type 1 diabetes in adolescents and young adults not meeting glycaemic targets: a qualitative study

Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14...

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Veröffentlicht in:Diabetic medicine 2020-04, Vol.37 (4), p.657-664
Hauptverfasser: Boucher, S. E., Aum, S. Hye, Crocket, H. R., Wiltshire, E. J., Tomlinson, P. A., Bock, M. I., Wheeler, B. J.
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Sprache:eng
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Zusammenfassung:Aims To explore parental perspectives after flash glucose monitoring commencement in adolescents and young adults with type 1 diabetes who were not meeting glycaemic targets. Methods Twelve semi‐structured interviews were conducted among parents of adolescents and young adults between the ages of 14 and 20 years (inclusive) with type 1 diabetes and not meeting glycaemic targets [HbA1c 81–130 mmol/mol (9.6–14.0%)] participating in a randomized controlled trial. Interviews were transcribed, then thematic analysis was performed to identify themes regarding parental experiences. Results Four key themes were found: flash glucose monitoring improved parental emotional well‐being; flash glucose monitoring reduced diabetes‐specific conflict within families; flash glucose monitoring facilitated the parental role in diabetes management; and sensor‐related challenges, particularly sensors falling off, interfered with using flash glucose monitoring for diabetes management. The cost of self‐funded sensors was the only barrier to continuing flash glucose monitoring that parents reported. Conclusions This study provides new insights into the potential benefits and challenges of flash glucose monitoring use, drawn from the perspective of parents of adolescents and young adults not meeting glycaemic targets. As parents are often key partners in obtaining or purchasing this technology, these findings can be used to further inform parental expectations of this technology. What's new? This study is the first to report on qualitative data regarding parental experiences of flash glucose monitoring in parents of adolescents and young adults not meeting glycaemic targets. Parents reported reduced diabetes‐specific conflict and reduced diabetes‐specific worry since their adolescent or young adult began flash glucose monitoring, with some parents reducing their role in diabetes care. Sensor loss was the most commonly reported challenge to using flash glucose monitoring technology. Parents may need education on how to continue being involved with adolescents’ and young adults’ diabetes care while using this technology. Families may benefit from strategies to reduce sensor failure.
ISSN:0742-3071
1464-5491
DOI:10.1111/dme.14188