The Importance of Social Work in the Latin American Association Movement of People Affected by Low Prevalence Diseases

This article analyses the experiences of the association movement in Latin America that brings together individuals and families with rare (RD) or low prevalence diseases (LPD). It also looks at their needs from global health, social, research and education perspectives. The nature of social work as...

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Veröffentlicht in:Journal of sociology and social welfare 2018-03, Vol.45 (1)
Hauptverfasser: Seller, Enrique Pastor, Tudela, Juan Carrión, Hernández, M. Bañón
Format: Artikel
Sprache:eng
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Zusammenfassung:This article analyses the experiences of the association movement in Latin America that brings together individuals and families with rare (RD) or low prevalence diseases (LPD). It also looks at their needs from global health, social, research and education perspectives. The nature of social work assessments and interventions in rare diseases helps us better understand the needs of people with RDs or LPDs and facilitates the creation of associations. Social work aims at consolidating the social fabric that will lead to the recognition of RDs as a health and social priority at an international level.
ISSN:0191-5096
0191-5096
1949-7652
DOI:10.15453/0191-5096.4173