THERE MUST BE MORE TO LIFE

" "Hold my hand, Mommy." Because she's a good kid. Because the syringe only holds two ounces, we have to fill it a few times-the "re-up." Jell-O, chocolate pudding, yogurt, cheese in a can, Cheetos, licorice, Dum-Dum lollipops, spray-bottle whipped cream, pureed SpaghettiOs, pretzel sticks, Oreos, Loma Doones, pureed hot dogs. There are feeding clinics, maybe seven or eight in the country, that offer multiple-week in-patient programs, where the child is admitted to the hospital and, under strict supervision and monitoring, the g-tube feedings stop.