Consumer inclusion

High-quality health care includes integrating patient perspectives on how they experience and receive care. Applying this principle, the voices of consumers and the people who support them (eg, family members, other caregivers) have been included as sources of knowledge that have informed the updated 2018 Canadian consensus guidelines for primary care of adults with intellectual and developmental disabilities (IDD). Here, Boyd et al summarize what is known regarding the perspectives of patients with IDD, their health, and their health care. It highlights perspectives of people with IDD who have served as health advocates with several health care projects in Ontario.