P198 Establishing the palliative and supportive care needs of patients with Idiopathic Pulmonary Fibrosis and Non Specific Interstitial Pneumonia

Background Idiopathic Pulmonary Fibrosis (IPF) and Non Specific Interstitial Pneumonia (NSIP) are Idiopathic Interstitial Lung Diseases (ILD) without a known cure. IPF is progressive and fatal. Management of Idiopathic ILD must address patients’ palliative and supportive care needs. The Sheffield Profile for Assessment and Referral to Care (SPARC©) questionnaire is a health needs assessment tool covering common biological, psychological and social needs. Local use of SPARC led to service refinements for thoracic cancer patients. We now explore SPARC in patients with Idiopathic ILD to identify patients’ perceptions of disease burden. Methods Patients within 18 months of an Idiopathic ILD diagnosis, identified through specialist clinics, were invited to complete a SPARC questionnaire as part of an ongoing multicentre clinical study. Patients were excluded if concerns existed regarding ability to consent. SPARC questionnaires included 45 questions: four (concerning personal, communication and information issues) required “yes/ no” responses. 41 questions related to symptoms and issues which were rated by patients as to the degree of distress they’d caused in the preceding month. Ratings were 0 “not at all”, 1 “a little bit”, 2 “quite a bit” and 3 “very much”. Responses were analysed using descriptive statistics. To highlight the most troubling issues, the percentage of patients reporting either “very much” or “quite a bit” of distress was identified for each question. Results 97 patients with Idiopathic ILD (77 male) with median age 69 (range 47- 86) were included. 79 (81%) had IPF, 18 (19%) NSIP. 38 (39%) had severe lung function defects (TLCO