RegistryNXT!: Enhanced Data Collection and Reporting for the Pompe Registry

RegistryNXT!: Enhanced Data Collection and Reporting for the Pompe Registry

Patients may enroll without regard to age or treatment status, and patients represent the clinical sign and symptom profile of the entire disease spectrum. [...]the data collection and reporting systems are critical to the Registry's success.

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Bibliographische Detailangaben
Veröffentlicht in:Clinical therapeutics 2011-06, Vol.33 (6), p.S26-S26
Hauptverfasser: Jones, C, Cole, J.A, Cutler, J, Faherty, K, Prasad, S, Koepper, C, James, E, Siegel, A, Virkar, H, Yee, J
Format: Artikel
Sprache:eng
Schlagworte:
Data collection
Disease
Internal Medicine
Medical Education
Reporting requirements
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Beschreibung
Zusammenfassung:Patients may enroll without regard to age or treatment status, and patients represent the clinical sign and symptom profile of the entire disease spectrum. [...]the data collection and reporting systems are critical to the Registry's success.
ISSN:0149-2918
1879-114X
DOI:10.1016/j.clinthera.2011.05.067