Developing Global Norms for Sharing Data and Results during Public Health Emergencies

  Despite these reassurances from publishers, it was acknowledged that those generating data are often unable or unwilling to quickly transfer information beyond their research groups or collaborating networks because they either lack the technical capacity or harbour concerns that the data would be...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:PLoS medicine 2016-01, Vol.13 (1), p.e1001935-e1001935
Hauptverfasser: Modjarrad, Kayvon, Moorthy, Vasee S, Millett, Piers, Gsell, Pierre-Stéphane, Roth, Cathy, Kieny, Marie-Paule
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
Beschreibung
Zusammenfassung:  Despite these reassurances from publishers, it was acknowledged that those generating data are often unable or unwilling to quickly transfer information beyond their research groups or collaborating networks because they either lack the technical capacity or harbour concerns that the data would be analysed and published without due recognition.\n Although countries were recognized to be the key arbiters of the dissemination of data collected from their populations, it was also noted that data ultimately belong to the individuals from whom they are collected. [...]in times of emergency, the onus should be placed upon the stewards of population- and individual-level data to justify if and why they are unwilling to share data for the good of public health. The tension between the speed of data dissemination and its accuracy was also acknowledged. [...]a mechanism for ensuring data quality must be embedded into any data sharing system, as major errors can degrade public confidence and have far-reaching impact.
ISSN:1549-1676
1549-1277
1549-1676
DOI:10.1371/journal.pmed.1001935