The Alberta Ocular Brachytherapy Program: Utilization of Patient Feedback to Guide Improvements

Abstract Purpose The objective of this project was to measure, evaluate, and report on the care experiences of patients diagnosed with uveal melanoma and who were treated with episcleral plaque brachytherapy at the Alberta Ocular Brachytherapy program. A knowledge gap currently exists regarding patient experience and satisfaction during treatment. By objectively measuring these experiences, the clinical team can improve delivery of patient-centered care. Methods The validated Consumer Assessment for Healthcare Providers and Systems Adult Surgical Survey was modified to include questions assessing brachytherapy care. Patients were chosen from the program's clinical database. Two mailouts were sent 4–15 months after treatment. Data were collected using the RedCap (Research electronic data capture) website. Results Twenty-five surveys were used for analysis. The response rate was 62.5%. Overall, patients were satisfied with the quality of care by the brachytherapy surgical group. Ratings were lowest for communication regarding the postoperative course while the plaque was in place and postoperative pain management. Functioning ability during treatment was explored, and vision was affected in 52% of respondents, mood in 28%, sleep in 36%, driving ability in 62.5%, reading ability in 60%, and ability to perform daily care in 20.8%. Conclusions The survey showed that overall, patients were satisfied with the care they received. The responses highlighted two areas for improvement: communication regarding the postoperative course while the plaque is in place and postoperative pain management. Future areas to explore include revising written education information, exploring rural vs. urban differences, and long-term quality of life assessments.