Living with multiple symptoms: the experience of children and adolescents with chronic condition/Convivendo com multiplos sintomas: a experiencia de criancas e adolescentes com condicao cronica/Vivir con multiples sintomas: la experiencia de ninos y adolescentes con condicion cronica

Objective: to comprehend children's or adolescents' experiences of living with symptoms of a chronic condition. Method: on a qualitative approach, taking Grounded Theory as a frame of reference and 11 children and adolescents aged 6 to 18 years hospitalized in a state university hospital a...

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Veröffentlicht in:Revista enfermagem UERJ 2020-01, Vol.28
Hauptverfasser: Silva, Vatusi Emanuela da, Nunes, Michelle Darezzo Rodrigues, de Macedo, Isabela Fornerolli, Possi, Juan Carlos Silva, Silva-Rodrigues, Fernanda Machado, de Araujo Pacheco, Sandra Teixeira
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Sprache:eng
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Zusammenfassung:Objective: to comprehend children's or adolescents' experiences of living with symptoms of a chronic condition. Method: on a qualitative approach, taking Grounded Theory as a frame of reference and 11 children and adolescents aged 6 to 18 years hospitalized in a state university hospital as participants, data were collected by semi-structured interview using the "draw, write, and tell" technique. The interviews were recorded and transcribed, and then analyzed following the steps of Grounded Theory. Results: analysis identified the category "Having to live with symptoms", which comprised 5 subcategories featuring physical, emotional and general symptoms, the experience of living with multiple simultaneous symptoms, and the consequences of living with them. Conclusion: living with several symptoms entails limitations. Nursing needs to favor children's and adolescents' expressions of their experiences in order to minimize stressful situations and improve symptom management by planning individualized strategies. Descriptors: Child; Adolescent; Chronic Disease; Sign and Symptoms; Pediatric Nursing. Objetivo: compreender como e a experiencia das criancas/adolescentes de conviver com sintomas de uma condicao cronica. Metodo: abordagem qualitativa, utilizando como referencial a Teoria Fundamentada nos Dados. Os participantes foram 11 criancas e adolescentes de seis a 18 anos incompletos hospitalizados em um hospital estadual universitario. Como instrumentos de coleta de dados, utilizou-se a entrevista semiestruturada e a tecnica "draw, write and tell". As entrevistas foram audiogravadas e transcritas, e a analise seguiu os passos do referencial. Resultados: apreendeu-se a categoria "Tendo que conviver com os sintomas", que engloba cinco subcategorias que apresentam sintomas fisicos, emocionais e gerais, a convivencia com a multiplicidade de sintomas simultaneos e as consequencias de se conviver com eles. Conclusao: a convivencia com diversos sintomas leva a limitacoes. A enfermagem precisa favorecer a expressao das vivencias das criancas/adolescentes, minimizando situacoes de estresse e melhorar o gerenciamento dos sintomas, atraves do planejamento de estrategias individualizadas. Descritores: Crianca; Adolescente; Doenca Cronica; Sinais e Sintomas; Enfermagem Pediatrica. Objetivo: comprender las experiencias de ninos o adolescentes de vivir con sintomas de una enfermedad cronica. Metodo: con un enfoque cualitativo, tomando como marco de referencia la Teoria Funda
ISSN:0104-3552
DOI:10.12957/reuerj.2020.47474