Childhood cancer: meanings attributed to the disease by parent caregivers/Cancer infanto-juvenil: significados atribuidos a doenca por pais cuidadores/Cancer infanto-juvenil: significados atribuidos a la enfermedad por padres cuidadores

This study aimed to comprehend the meanings that parents/caregivers of children and adolescents diagnosed with cancer attribute to their child's disease. It is a qualitative, exploratory/descriptive study. Data were collected through group discussions and individual interviews with the parents/...

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Veröffentlicht in:Paidéia cadernos de Psicologia e Educação 2013-05, Vol.23 (55), p.253
Hauptverfasser: Quintana, Alberto Manuel, Wottrich, Shana Hastenpflug, Camargo, Valeri Pereira, Cherer, Evandro de Quadros
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Zusammenfassung:This study aimed to comprehend the meanings that parents/caregivers of children and adolescents diagnosed with cancer attribute to their child's disease. It is a qualitative, exploratory/descriptive study. Data were collected through group discussions and individual interviews with the parents/caregivers of children/adolescents and categorized using content analysis. The impressions of the researchers were recorded in a field diary, contributing to the data analysis. The results indicate that the disease and treatment involve periods of psychological suffering that affect the family structure. Cancer was reported as a real enemy to be fought through coping or avoidance, which generates expectations about the future and causes feelings of fear, as well as hope. It was concluded that the childhood cancer causes repercussions in the family relationships, the recognition of which can contribute to both the preparation of professional teams who work with this population, as well as the public health policies developed. Keywords: neoplasms, children, adolescents, family relation. Este estudo teve por objetivo compreender os significados que os pais/cuidadores de criancas e adolescentes diagnosticadas com cancer atribuem a doenca de seu fi lho. Trata-se de um estudo qualitativo, de carater exploratorio/descritivo. Os dados foram coletados por meio de grupos de discussoes e entrevistas individuais com pais/cuidadores da crianca/adolescente, sendo categorizados a partir da analise de conteudo. As impressoes dos pesquisadores foram registradas em diario de campo, contribuindo para a analise dos dados. Os resultados indicam que o adoecimento e tratamento implicam em periodos de sofrimento psiquico que acometem a estrutura familiar. O cancer e relatado como um inimigo real a ser combatido via enfrentamento ou esquiva, o que gera expectativas quanto ao futuro e causa sentimentos de medo, mas tambem de esperanca. Conclui-se que o cancer infanto-juvenil causa repercussoes nas relacoes familiares cujo reconhecimento pode contribuir tanto para o preparo de equipes profi ssionais que atuam com esse publico, quanto nas politicas publicas de saude desenvolvidas. Palavras-chave: neoplasmas, criancas, adolescentes, relacoes familiares La finalidad de este estudio fue comprender los significados que los padres/cuidadores de ninos y adolescentes diagnosticados con cancer atribuyen a la enfermedad de sus hijos. Se trata de un estudio cualitativo, exploratorio/descriptivo. Los dato
ISSN:1982-4327
DOI:10.1590/1982-43272355201313