Early intervention experiences of families of children with an autism spectrum disorder: a qualitative pilot study

The purpose of this study was to obtain an understanding of the unique experiences of families who have a young child at risk for or identified with an autism spectrum disorder and their experiences with early intervention. Thirty-nine parents of children with or at risk for an autism spectrum disorder receiving Part C services in a state in the southeastern United States participated in the study. Responses to four open-ended questions regarding experiences with early intervention were analyzed using qualitative research methodology. Results suggested that families have different experiences related to their participation in services and interactions with service providers, as well as varying feelings about services. Implications for service providers are discussed in relation to recognizing the importance of family participation, matching services to the needs of the family, and incorporating interpersonal skills into early intervention practice with families of young children with autism spectrum disorder.