The Health and Well-Being of Caregivers of Technologically Dependent Children

Caregivers of technology-dependent children face considerable responsibilities. This study examined the association of 2 child-related stressors—functional status and use of mechanical ventilator—with 2 domains of family caregiver well-being—depressive symptoms (Center for Epidemiologic Studies Depr...

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Veröffentlicht in:Global pediatric health 2019, Vol.6, p.2333794X18823000-2333794X18823000
Hauptverfasser: Chan, Yoke Hwee, Lim, Carmen Zhi-Ruo, Bautista, Dianne, Malhotra, Rahul, Østbye, Truls
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Sprache:eng
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Zusammenfassung:Caregivers of technology-dependent children face considerable responsibilities. This study examined the association of 2 child-related stressors—functional status and use of mechanical ventilator—with 2 domains of family caregiver well-being—depressive symptoms (Center for Epidemiologic Studies Depression Scale [CES-D]) and health-related quality of life (HRQOL) and family function (PedsQL Family Impact Module). The secondary objective was to determine whether these associations were moderated by caregiver-perceived social support. Structured interviews were conducted with 88 primary family caregivers of technology-dependent children in Singapore. Hierarchical multiple regression was used to assess the primary and secondary objectives. A total of 44.3% of caregivers were at high risk of clinical depression. Moderately poor child functional status was associated with more caregiver depressive symptoms. Perceived social support moderated this association. Family caregivers of technology-dependent children have high levels of depressive symptoms and relatively poor HRQOL and family functioning. Enhancing caregivers’ social support is important for their well-being.
ISSN:2333-794X
2333-794X
DOI:10.1177/2333794X18823000