Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)

This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged

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Bibliographische Detailangaben
Veröffentlicht in:	Research and Practice In Thrombosis And Haemostasis 2021-05, Vol.5 (4), p.e12519-n/a, Article e12519
Hauptverfasser:	Dover, Saunya, Young, Nancy L., Blanchette, Victor S., Klaassen, Robert J., Chan, Anthony K., Wakefield, Cindy, Bouskill, Vanessa, Carcao, Manuel, Belletrutti, Mark, Bruce, Aisha A.K., Price, Victoria E.
Format:	Artikel
Sprache:	eng
Schlagworte:	Caregivers Children & youth Chronic illnesses Disease prevention Families & family life Focus groups Health care industry Hemophilia Measurement Medical care Original Parents & parenting Pharmaceutical industry Quality management Quality of life
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Beschreibung
Zusammenfassung:	This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged
ISSN:	2475-0379 2475-0379
DOI:	10.1002/rth2.12519