An Application of Evidence‐Based Approaches to Engage Young People in the Design of a Global Mental Health Databank

ABSTRACT Introduction Engaging youth in mental health research and intervention design has the potential to improve their relevance and effectiveness. Frameworks like Roger Hart's ladder of participation, Shier's pathways to participation and Lundy's voice and influence model aim to b...

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Veröffentlicht in:Health expectations : an international journal of public participation in health care and health policy 2024-10, Vol.27 (5), p.e14172-n/a
Hauptverfasser: Mensa‐Kwao, Augustina, Neelakantan, Lakshmi, Velloza, Jennifer, Bampton, Emily, Ranganathan, Swetha, Sibisi, Refiloe, Bowes, Joshua, Buonasorte, Lilliana, Juma, Damian Omari, Veluvali, Manasa, Doerr, Megan, Ford, Tamsin Jane, Suver, Christine, Marten, Carly, Adeyemi, Faith Oluwasemilore, Areán, Patricia A., Björling, Elin A., Bradic, Ljubomir, Burn, Anne‐Marie, Carey, Emma Grace, Carlson, Sonia, Concepcion, Tessa, Damji, Meera, Dunbar, Julia C., Fazel, Mina, Fernandes, Blossom, Finchilescu, Gillian, Ford, Tamsin, Freeman, Melvyn, Fillipo, Isabell R. Griffith, Hodgson, Jay, Kalha, Jasmine, Karani, Minal, Kellen, Michael R., Kemp, Christopher G., Lindani, Simthembile, Mangravite, Lara M., Masomera, Hedwick, Mata‐Greve, Felicia, Moore, Emily, Mounts, Erin, Omberg, Larsson, Pasquale, Lisa, Pathare, Soumitra, Sams, Nichole, Scanlan, Jo, Shah, Himani, Short, Sotirios, Sieberts, Solveig K., Simon, Stockard, Sumant, Sushmita, Thungana, Yanga, Tummalacherla, Meghasyam, Van Vught, Chandre, Zingela, Zukiswa, Collins, Pamela Y.
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Zusammenfassung:ABSTRACT Introduction Engaging youth in mental health research and intervention design has the potential to improve their relevance and effectiveness. Frameworks like Roger Hart's ladder of participation, Shier's pathways to participation and Lundy's voice and influence model aim to balance power between youth and adults. Hart's Ladder, specifically, is underutilized in global mental health research, presenting new opportunities to examine power dynamics across various contexts. Drawing on Hart's ladder, our study examined youth engagement in mental health research across high‐ and middle‐income countries using Internet‐based technologies, evaluating youth involvement in decision‐making and presenting research stages that illustrate these engagements. Methods We conducted a directed content analysis of youth engagement in the study using primary data from project documents, weekly AirTable updates and discussions and interviews with youth and the research consortium. Using Hart's Ladder as a framework, we describe youth engagement along rungs throughout different research stages: cross‐cutting research process, onboarding, formative research and quantitative and qualitative study designs. Results Youth engagement in the MindKind study fluctuated between Rung 4 (‘Assign, but informed’) and Rung 7 (‘Youth initiated and directed’) on Hart's Ladder. Engagement was minimal in the early project stages as project structures and goals were defined, with some youth feeling that their experiences were underutilized and many decisions being adult‐led. Communication challenges and structural constraints, like tight timelines and limited budget, hindered youth engagement in highest ladder rungs. Despite these obstacles, youth engagement increased, particularly in developing recruitment strategies and in shaping data governance models and the qualitative study design. Youth helped refine research tools and protocols, resulting in moderate to substantial engagement in the later research stages. Conclusion Our findings emphasize the value of youth–adult partnerships, which offer promise in amplifying voices and nurturing skills, leadership and inclusiveness of young people. Youth engagement in project decision‐making progressed from lower to higher rungs on Hart's Ladder over time; however, this was not linear. Effective youth engagement requires dynamic strategies, transparent communication and mutual respect, shaping outcomes that authentically reflect diverse perspecti
ISSN:1369-6513
1369-7625
1369-7625
DOI:10.1111/hex.14172