Twelve-month prevalence of haemarthrosis and joint disease using the Haemophilia Joint Health score: evaluation of the UK National Haemophilia Database and Haemtrack patient reported data: an observational study

ObjectivesTo report the 12-month prevalence of joint bleeds from the National Haemophilia Database (NHD) and Haemtrack, a patient-reported online treatment diary and concurrent joint disease status using the haemophilia joint health score (HJHS) at individual joint level, in children and adults with...

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Veröffentlicht in:	BMJ open 2022-01, Vol.12 (1), p.e052358-e052358
Hauptverfasser:	Wilkins, Richard A, Stephensen, David, Siddle, Heidi, Scott, Martin J, Xiang, Hua, Horn, Elizabeth, Palmer, Ben, Chapman, Graham J, Richards, Michael, Walwyn, Rebecca, Redmond, Anthony
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Ankle bleeding disorders & coagulopathies Child Disease prevention foot & ankle Haematology (incl blood transfusion) Hemarthrosis - complications Hemarthrosis - epidemiology Hemophilia Hemophilia A - complications Hemophilia A - drug therapy Hemophilia A - epidemiology Humans Middle Aged musculoskeletal disorders Observational studies Patient Reported Outcome Measures Patients Prevalence Retrospective Studies Scholarships & fellowships United Kingdom - epidemiology
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Zusammenfassung:	ObjectivesTo report the 12-month prevalence of joint bleeds from the National Haemophilia Database (NHD) and Haemtrack, a patient-reported online treatment diary and concurrent joint disease status using the haemophilia joint health score (HJHS) at individual joint level, in children and adults with severe haemophilia A and B (HA/HB) without a current inhibitor.DesignA 2018 retrospective database study of NHD from which 2238 cases were identified, 463 patients had fully itemised HJHS of whom 273 were compliant in recording treatment using Haemtrack.SettingEngland, Wales and Scotland, UK.ParticipantsChildren (
ISSN:	2044-6055 2044-6055
DOI:	10.1136/bmjopen-2021-052358