A standardized clinical database for research in Chagas disease: The NHEPACHA network

The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather rel...

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Veröffentlicht in:PLoS neglected tropical diseases 2024-08, Vol.18 (8), p.e0012364
Hauptverfasser: González Martínez, Adriana, Losada-Galván, Irene, Gabaldón-Figueira, Juan Carlos, Martínez-Peinado, Nieves, Saraiva, Roberto Magalhães, Fernández, Marisa Liliana, Ramsey, Janine M, Noya-González, Oscar, Alarcón de Noya, Belkisyole, Schijman, Alejandro Gabriel, Berón, Soledad, Abril, Marcelo, Gascón, Joaquim, Sosa-Estani, Sergio, Pinazo, María Jesús, Alonso-Padilla, Julio, Hasslocher-Moreno, Alejandro Marcel
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Sprache:eng
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Zusammenfassung:The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers.
ISSN:1935-2735
1935-2727
1935-2735
DOI:10.1371/journal.pntd.0012364