Pilot study of the effectiveness of a telehealth group for improving peer relationships for adolescents with neurofibromatosis type 1

Interventions for social difficulties have not been investigated in the neurofibromatosis type 1 (NF1) population despite observations of elevated rates of social difficulties. In this pilot study, the effectiveness of a 14-week telehealth PEERS® intervention with nineteen adolescents with NF1 (M =1...

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Veröffentlicht in:Orphanet journal of rare diseases 2024-03, Vol.19 (1), p.115-115, Article 115
Hauptverfasser: Glad, Danielle M, Pardej, Sara K, Olszewski, Ellen, Klein-Tasman, Bonita P
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Sprache:eng
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Zusammenfassung:Interventions for social difficulties have not been investigated in the neurofibromatosis type 1 (NF1) population despite observations of elevated rates of social difficulties. In this pilot study, the effectiveness of a 14-week telehealth PEERS® intervention with nineteen adolescents with NF1 (M =13.79 years, SD = 1.32) with social skills difficulties was examined. Measures of social outcomes were completed at three timepoints (before, immediately after, and at 14-week follow-up). Caregiver-reported social-emotional skills, social impairment, caregiver-reported number of adolescent get-togethers, and teen social knowledge showed significant improvement following the intervention. The PEERS® intervention is promising to support the social and friendship skills of adolescents with NF1 who have social difficulties.
ISSN:1750-1172
1750-1172
DOI:10.1186/s13023-024-03093-1