Development and evaluation of a decision aid for women eligible for organized breast cancer screening according to international standards: A multi-method study

and purpose: In France, women lack information to make a shared decision to start breast cancer screening. Decision aids are useful to facilitate this discussion, yet few meet international standards. The objective of this project was to build, validate and measure the quality of a decision aid for...

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Veröffentlicht in:Breast (Edinburgh) 2024-02, Vol.73, p.103613, Article 103613
Hauptverfasser: Hild, Sandrine, Teigné, Delphine, Fairier, Damien, Ruelle, Yannick, Aubin-Auger, Isabelle, Sidorkiewicz, Stéphanie, Citrini, Marie, Gocko, Xavier, Cerisey, Catherine, Ferrat, Emilie, Rat, Cédric
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Sprache:eng
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Zusammenfassung:and purpose: In France, women lack information to make a shared decision to start breast cancer screening. Decision aids are useful to facilitate this discussion, yet few meet international standards. The objective of this project was to build, validate and measure the quality of a decision aid for organized breast screening in France, in line with international standards, intended for both women and healthcare professionals. This mixed-methods study was conducted between January 2017 and June 2022. The prototype was developed from a qualitative study, systematic review and targeted literature review and alpha tested during two Delphi rounds. Readability was evaluated with the Flesch score and content with International Patient Decision Aid Standards Instrument (IPSASi). An online decision aid, accessible at www.Discutons-mammo.fr, written in French was developed. The content included eligibility, information about breast screening the advantages and disadvantages of screening, patient preferences and a patient-based discussion guide using text, infographics, and videos. The Flesch readability test score was 65.4 and the IPDASi construct quality score was 176 out of 188. This decision aid complies with IPDASi standards and could help women eligible for breast screening in France make a shared decision with a specialized healthcare professional about whether or not to participate in organized breast screening. •A prototype online decision aid for organized breast screening was developed.•The decision aid uses text, infographics, and videos.•The decision aid informs women about advantages and disadvantages of screening.•The decision aid obtained an IPDASi construct quality score of 176 out of 188.•The decision aid obtained Flesch readability test score of 65.4.
ISSN:0960-9776
1532-3080
1532-3080
DOI:10.1016/j.breast.2023.103613