Long-Term Cryptococcal Meningitis Survival, Uganda (DATA)

Data: Meningitis Treatment Program at Lira Regional Referral Hospital (LRRH), UgandaFor Authors: Dr.Mark Okwir, MBChB, MMed, [Affiliation: Department of Public Health Sciences, University of Rochester Medical Center, 265 Crittenden Boulevard CU420644, Rochester, NY, 14642, USA. / Lira University, Faculty of Medicine, Lira, Uganda]Data Description:This dataset is derived from a de-identified patient registry of the Meningitis Treatment Program implemented at Lira Regional Referral Hospital (LRRH) in rural northern Uganda. The dataset contains de-identified information (HIPPA privacy rule) collected from 2015 to 2021. It represents the implementation of the Cryptococcal Meningitis Diagnosis and Treatment Program (CM-DTP), a standard of care approach. The CM-DTP was initiated in February 2017 and followed the World Health Organization (WHO) and Ugandan Clinical Guidelines for the management of Cryptococcal Meningitis (CM).Our overarching goal in sharing this data is to contribute to the advancement of knowledge and evidence-based practices in meningitis management. By making this dataset available in a public repository, we aim to facilitate transparency, reproducibility, and collaboration within the scientific community. We encourage fellow researchers, clinicians, and stakeholders to utilize this valuable resource to further explore meningitis diagnosis, treatment strategies, and patient outcomes, ultimately striving for improved healthcare delivery and patient care worldwide.Data Content:The dataset is provided in a Comma-Separated Values (.CSV) file. This file contains anonymized patient information collected during the CM-DTP program. A separate file, "Variable Keys", is provided in both Portable Document Format (PDF) and Microsoft Word Document (DOCX) formats. The "Variable Keys" document provides detailed definitions for each variable included in the dataset. The data encompasses the following key areas:· Demographics: Age, sex (No date of birth)· Clinical Presentation with Impact on Long-term Survival of CM Patients: Symptoms at presentation (e.g., altered mentation)· Diagnostic Workup: Selected laboratory findings including (CD4 counts and viral load), Cryptococcal antigen testing (CrAg)· Imaging: Head CT scan results (Not available)· Treatment and adherence: Adherence to medications administered.· Outcomes (long-term): Survival length, survival status (died or not).Data Access:The data will be made available for download from a public repository (to