Health related quality of life in autoinflammatory diseases

This dataset refers to the data of 31 people, aged from 19 to 59 years, diagnosed with an autoinflammatory disease in a specialized clinic in Northern Italy. Data concerns socio-demographic and clinical information and results to 6 questionnaires, as follows. The Short Form Health Survey (SF-36) is composed by 36 items grouped into 8 subscales. Four subscales constitute the physical HRQOL: physical functioning, role limitations due to physical health, bodily pain, general health perception. Four subscales reflect the mental HQOL: role limitations due to emotional problems, vitality, mental health, social functioning. Scores range from 0 (worst) to 100 (best). The State–Trait Anxiety Inventory Form Y (STAI-Y) consists of two scales measuring state (STAT-Y1) and trait anxiety (STAT-Y2), respectively. For the purpose of this study, only the trait scale (Y2) has been employed because it reflects a more general and long-standing condition of anxiety. The scale is composed of 20 items rated on a frequency scale from 1 (“almost never”) to 4 (“almost always”). A sum score of 50, representing the 75th percentile among general medical patients, was used to label the patient as “anxious”. The Italian version of the Beck Depression Inventory – II (BDI-II) consists of 21 items reflecting the main symptoms of depression. Items are rated on a 4-point scale, indicating the degree of severity, from 0 (not at all) to 3 (the extreme form of each symptom). The New Italian Version of the Coping Orientation to Problems Experience (COPE) is a 60-item questionnaire based on a five-factor model: social support, avoidance strategies, positive attitude, problem solving and transcendent orientation. The Illness Perception Questionnaire-Revised (IPQ-R) is divided into three parts, as follows. In the illness identity part the participant has to rate ‘yes’ or ‘no’ with regard to a list of 14 symptoms. The illness representation part consists of 38 items rated on a 5-point Likert scale ranging from ‘strongly disagree’ to ‘strongly agree’. Higher scores reflect a stronger belief in a specific dimension. The illness causes part consists of 18 possible causes that the patient has to evaluate as responsible for the disease onset on a 5-point Likert scale (1 = strongly disagree; 5 = strongly agree) and of the three main causes that s/he considers to be the basis of his/her illness. The Dependency Grids consists in a list of 23 problem situations. The person is asked to think of a time when ea