The influence of siblings with typical development on the burden and quality of life of parents of adolescents with Down syndrome

Abstract Objective: The objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome. Methods: Cross sectional and correlational study with 25 caregivers divided in two groups:...

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Veröffentlicht in:Estudos de Psicologia (Campinas) 2023, Vol.40
Hauptverfasser: Ronca, Roberta Pasqualucci, Rocha, Marina Monzani, Campos-Pozzi, Denise, Cymrot, Raquel, Blascovi-Assis, Silvana Maria
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Sprache:eng
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Zusammenfassung:Abstract Objective: The objective of this study was to evaluate the influence of the presence of siblings with normal development on the burden and quality of life of parents of adolescents with Down syndrome. Methods: Cross sectional and correlational study with 25 caregivers divided in two groups: parents who had only children with Down syndrome and parents with other children with normal development. The caregivers were selected from a convenient sample and answered the World Health Organization Quality of Life, Zarit Burden Interview and Brazil’s Economic Classification Criteria. Results: It was found that both groups experienced moderate burden and regular quality of life for most families, with no significant difference. Conclusion: It was concluded that the presence of siblings with normal development was not a factor influencing the burden and quality of life of parents of adolescents with Down syndrome. Resumo Objetivo: O objetivo deste estudo foi avaliar a influência da presença de irmãos com desenvolvimento típico na sobrecarga e na qualidade de vida de pais de adolescentes com síndrome de Down. Métodos: Foi realizado um estudo transversal e correlacional, com 25 cuidadores divididos em dois grupos: pais com filhos únicos com síndrome de Down e pais com outros filhos com desenvolvimento típico. Os cuidadores foram selecionados a partir de uma amostragem de conveniência e responderam ao World Health Organization Quality of Life, ao Zarit Burden Interview e ao Critério de Classificação Econômica Brasil. Resultados: Verificou-se que ambos os grupos apresentaram sobrecarga moderada e qualidade de vida regular para a maioria das famílias, não havendo diferença significativa. Conclusão: Conclui-se que a presença de irmãos com desenvolvimento típico não foi fator de influência na sobrecarga e na qualidade de vida de pais de adolescentes com síndrome de Down.
ISSN:0103-166X
1982-0275
1982-0275
DOI:10.1590/1982-0275202340e210053