3480 PATIENT REPORTED OUTCOMES IN GLOMERULAR DISEASES: A NEW MODEL OF CARE BASED ON MEDICAL CARE, TELEHEALTH AND NURSE COACHING: THE HUMAN-C PROJECT

Abstract Background and Aims Glomerular diseases (GD) affect young and working-age people. Questionnaires for assessing health-related quality of life in GD patients are scarce. The implementation of telehealth and nurse coaching support (Humanization Coaching Project: Human-C Project) in a multidisciplinary team may influence the patient-reported outcomes (PROs), patient-reported experiences (PREMs) and could open new perspectives on these patients, which should be taken into account We report the results of PROMs and PREMS after the introduction of the Human-C Project. The objective of the study was to describe PROMs and PREMs in a glomerular disease unit of a third-level hospital after the implementation of the Human C-Project. Method Telehealth was implemented in 2019, and nurse-coaching support in 2021. The survey was online and anonymous to improve the accuracy of self-reports. The questionnaire consists of 15 items (based on Promis-29 (3 questions), SF-36 (2 questions) scales, and 10 questions previously obtained through personal interviews during nurse-coaching support). The questionnaire was sent to 233 patients included in our telehealth program. Results 89 (38%) patients responded to the questionnaire. The mean (SD) age was 46(14). The questionnaire was stratified into 6 domains and the percentage of responses preference were: employment status (100%), knowledge of the disease (94%), social function (96%), psychological health (86%), type and periodicity of the medical appointments (84%), and therapy preferences (80%). 87% of the patients are of working age, 16% consider that they know little or nothing about their disease, 20% know little or do not know its severity, 53% reported fatigue, 50% their sleep quality is regular or very poor, 40% are not satisfied with their work performance (including at home), 34% reported poor health status, 34% reduced their activity (at work and home) due to emotional problems, 19% do not ask all questions or do not come up with clear information during the appointment, 80% report taking the medication correctly, 80% knows what each pill is for, 35% want to retire and or reduce the number of tablets even adding intravenous mediation, 33% develop anxiety about the disease, 72% consider that telehealth helps to reconcile work schedule and illness and helps to clarify doubts and in remission period 67% prefer to have an appointment as long as 6-9 months if they can directly access their health team if necessary. Co