Caring for autism in Ghana: exploring the psychological impact and coping strategies of caregivers

This study explores the psychosocial impacts and coping strategies caregivers face while caring for children with autism. The study employed a qualitative method to analyze the data collected through semi-structured interviews. Interviews were conducted with 20 purposively selected informants at PMLCH. The data were transcribed and analyzed thematically, focusing on the study objectives. The findings indicate that caregivers who live with an autistic child experience significant psychological stress as well as mental and physical health issues. The findings further revealed that the psychological impact of caregivers living with a child with autism includes psychological and emotional stress, financial constraints, a lack of professional guidance, limited access to support services, cultural beliefs and practices, and stigma and social isolation. Meanwhile, caregivers use religious and socio-cultural support, educational programs, self-efficacy, advocacy and awareness, traditional healing practices, and social support as coping strategies. Additionally, caregivers advocate for improving infrastructure and mechanisms to improve their experiences living with an autistic child. The study highlights the need for caregivers to receive free or low-cost professional guidance and counseling. The study concluded that it is essential that government, family, and community organizations support caregivers emotionally and financially to cope with the prevailing psychological stress.