Comparison of LBD research priorities by caregiver characteristics

Background Caregivers of individuals with Lewy body dementia (LBD) experience high levels of caregiver burden while having a pivotal role in clinical and research decision‐making. Despite the importance of the caregivers in LBD, little is known about their research priorities. Targeting these priorities may help research engagement and more meaningful study aims. Method A web‐based survey of current and former caregivers of people with LBD investigated research priorities through forced ranking and exploration of experiences in LBD. Importance of research topics were queried and further analyzed descriptively based on age, gender, relationship type (spouse, sibling, adult child), and location type (large city, suburb, small town, rural). Race and ethnicity were not included due to small sample size. Result Between 4/7/2021‐7/1/2021, 984 responses were recorded: 550 identified as current caregivers and 280 as former caregivers. Younger caregivers (