The Lived Experience Of Latinx‐Americans And How Researchers Can Build Stronger Partnerships To Improve Research

Background The Latinx population is growing in the United States, and yet recruiting participants at representative rates into research for dementia is an ongoing challenge. This group is additionally facing the largest increase in Alzheimer’s Disease and related dementia diagnoses; however, literat...

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Veröffentlicht in:Alzheimer's & dementia 2022-12, Vol.18 (S11), p.n/a
Hauptverfasser: Flores, Melissa, Walter, Sarah, Seshadri, Sudha
Format: Artikel
Sprache:eng
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Zusammenfassung:Background The Latinx population is growing in the United States, and yet recruiting participants at representative rates into research for dementia is an ongoing challenge. This group is additionally facing the largest increase in Alzheimer’s Disease and related dementia diagnoses; however, literature indicates their contribution is regularly absent from related research and clinical trials. Representative recruitment to research is critical to ensure the outcomes of research are applicable and generalizable to this large population group. Hearing and understanding the lived experience of individuals from Latinx communities is key to addressing barriers to participation. Literature around increasing minority participation notes approaches of personalization are essential in reaching Latinx groups. This session will assist researchers in tailoring strategies of recruitment and methods of engaging with the latinx population by providing the necessary platform and direct connection to this community. Method The panelist, selected by the Biggs Institute research team, will share their lived experience with ADRD diagnosis, care, and/or research participation. As part of the South Texas ADRC, the Biggs Institute selected panelist will provide the perspective of Latinxs living in south Texas and along the border, specifically addressing the unique challenges faced in accessing care and research. They will communicate their connection to research, personal and potential cultural barriers to research involvement, and share what researchers can do to build better partnerships with Latinx communities. Result This session will highlight the Latinx perspective related to dementia research and will offer the opportunity for further understanding around the experience of individuals in minoritized communities. Attendees will hear the perspective of the Latinx community to prompt improved methods of inclusion. This session aims to benefit researchers, and those in the field of aging and dementia research, by providing perspectives crucial to the development of strategies to facilitate engagement with a more demographically diverse community. Conclusion The voice of Latinx individuals is essential to include when discussing research priorities and addressing the challenges to increase diverse research participation. Improving inclusivity in ADRD research will improve relevance of findings, and sharing diverse perspectives is a first step to build meaningful partnerships w
ISSN:1552-5260
1552-5279
DOI:10.1002/alz.067411