The experiment must continue medical research and ethics in East Africa, 1940-2014
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| Format: | Buch |
| Sprache: | English |
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Athens
Ohio University Press
2015
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| Schriftenreihe: | Perspectives on global health
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Datensatz im Suchindex
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|---|---|
| adam_text | CONTENTS
List of Illustrations ft ix
Preface xi
Acknowledgments xxi
Abbreviations XXV
THE EXPERIMENT BEGINS
ONE Medical Research Past and Present I
PERCEPTIONS
TWO East African Perceptions of Medical Research 21
RESEARCHERS ARRIVE
historical narrative:“Inspeakable Entomologists” H. H. Goiny and a Failed Attempt to Eliminate Lymphatic Filariasis, Pate Island, Kenya, 1956 51
MODERN narrative: A “Remarkable Achievement”? Lymphatic Filariasis Elimination, Zanzibar; 2001 55
THREE First Encounters, First Impressions 61
CONSENT OR COERCION?
historical narrative: “Forced to Accept Trial Treatment”?
A Tuberculosis Drug Trial, Nairobi, Kenya, 1961 87
modern narrative: Focusing on Fieldworkers in
Kilifi, Kenya 94
vii
four Ethical Recruitment and Gathering Human Subjects
98
BALANCING RISKS AND BENEFITS
historical NARRATIVE: HopeTrant and a Compound on Fire in
Tanganyika, 1954 119
modern narrative: A Male Circumcision Trial Canceled
in Rakai, Uganda, 2005 124
five Finding an Ethical Balance 128
EXITS AND LONGER-TERM OBLIGATIONS
HISTORICAL narrative:“Almost Completely Eradicated”
The Pare-Taveta Malaria Scheme, 1955 155
modern narrative: A New Malaria Vaccine?
Testing the RTS,S Vaccine across Africa, 2010 161
six Coming to an Ethical End 167
THE EXPERIMENT ENDS?
seven Modern Medical Research and Historical Residue 187
Appendix A
Swahili Glossary 205
Appendix B
Further Reading on Global Medical Research 210
Notes 219
Bibliography 273
Index 301
viii
CONTENTS
AFRICA / MEDICAL ETHICS / GLOBAL HEALTH / HISTORY
“This is a remarkable contribution. To my knowledge, there is nothing pub-
lished that can match the scope, temporal depth, or ethnographic finesse
of this work. The book is a superb example of how rigorous historical
research opens up reflections on the unresolved ethical problems of con-
temporary global health research.”
—Tamara Giles- Verrück, Director of Research, Institut Pasteur
“Graboyes’s book reads like a mystery, elegantly weaving history, science, bio-
ethics and public health into a compelling story. A profoundly important
contribution to the challenges of conducting medical research in the de-
veloping world.”
—Michael A. Grodin, MD, professor of bioethics and human rights,
Boston University School of Public Health
“Graboyes’s innovative approach pushes boundaries of conventional medical
history, adds badly needed historical depth to ethnographies of medical
research, and revitalizes bioethics thinking in an entertaining and accessible
way. Her investigation of the ways medical research lingers in East Africa
will contribute to historical and anthropological scholarship for years to
come, and one hopes it will be read by ethicists and scientists as well.”
—Paul Wenzel Geissler, professor of social anthropology, University of Oslo
Tfie Experiment Must Continue is a beautifully articulated ethnographic history of medical
experimentation in East Africa from 1940 through 2014. In it, Melissa Graboyes combines
her training in public health and in history to treat her subject with the dual sensitivities
of a medical ethicist and a historian, breathing life into the fascinating histories of research
on human subjects.
Historical case studies highlight failed attempts to eliminate tropical diseases, while
modern examples illustrate ongoing malaria and HIV/AIDS research. Collectively, these
show how East Africans have perceived research differently than researchers do and that
the active participation of subjects led to the creation of a hybrid ethical form. By writing
an ethnography of the past and a history of the present, Graboyes creates a new paradigm
for thinking about medical experimentation and makes the resounding case that we must
readjust our dominant ideas of consent, participation, and exploitation.
MELISSA GRABOYES teaches at the University of Oregon. Her research concerns
history, medicine, science, and ethics on the African continent. She received a PhD in
history and a masters in public health from Boston University, and has worked for global
health organizations in East Africa and the United States.
ISBN-13 978-0-8214-2173-4
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| series2 | Perspectives on global health |
| spelling | Graboyes, Melissa Verfasser aut The experiment must continue medical research and ethics in East Africa, 1940-2014 Melissa Graboyes Athens Ohio University Press 2015 © 2015 xxvii, 307 Seiten Karten txt rdacontent n rdamedia nc rdacarrier Perspectives on global health Erscheint auch als Online-Ausgabe, PDF 978-0-8214-4534-1 Digitalisierung UB Bayreuth - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028211513&sequence=000003&line_number=0001&func_code=DB_RECORDS&service_type=MEDIA Inhaltsverzeichnis Digitalisierung UB Bayreuth - ADAM Catalogue Enrichment application/pdf http://bvbr.bib-bvb.de:8991/F?func=service&doc_library=BVB01&local_base=BVB01&doc_number=028211513&sequence=000004&line_number=0002&func_code=DB_RECORDS&service_type=MEDIA Klappentext |
| spellingShingle | Graboyes, Melissa The experiment must continue medical research and ethics in East Africa, 1940-2014 |
| title | The experiment must continue medical research and ethics in East Africa, 1940-2014 |
| title_auth | The experiment must continue medical research and ethics in East Africa, 1940-2014 |
| title_exact_search | The experiment must continue medical research and ethics in East Africa, 1940-2014 |
| title_full | The experiment must continue medical research and ethics in East Africa, 1940-2014 Melissa Graboyes |
| title_fullStr | The experiment must continue medical research and ethics in East Africa, 1940-2014 Melissa Graboyes |
| title_full_unstemmed | The experiment must continue medical research and ethics in East Africa, 1940-2014 Melissa Graboyes |
| title_short | The experiment must continue |
| title_sort | the experiment must continue medical research and ethics in east africa 1940 2014 |
| title_sub | medical research and ethics in East Africa, 1940-2014 |
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