Cancer, culture, and communication

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Weitere Verfasser: Moore, Rhonda J. (HerausgeberIn)
Format: Buch
Sprache:English
Veröffentlicht: New York [u.a.] Kluwer Acad./Plenum Publ. 2004
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adam_text Contents Chapter 1 Introduction 1 Rhonda J. Moore and David J. Spiegel PART I: CANCER ACROSS CULTURES Chapter 2 Culture and Oncology: Impact of Context Effects 15 Rhonda J. Moore and Phyllis Butow The Importance of Culture in Oncological Care 17 Environmental Effects: Influence of SES and Social Suffering on Health 18 Impact of Culture on Patient and Clinician Roles 21 Impact of Culture on Behavior and Mutual Understanding 22 Cancer: A Particular Threat 23 The Impact of Migration on Cancer Outcomes and Access 24 Communication with Cancer Patients 24 Communication Crisis in Oncology 26 Beliefs about Cancer Causation and the Importance of Language and Words, Truth Telling, and Disclosure on the Interaction between the Clinician and the Patient 27 The Meaning of Cancer and Causation 28 Culture. Causation, and Cancer Prevention: Western and Non-Western Contexts 30 Truth Telling, Disclosure, and Hope 32 Impact on the Family 34 Methodologies 35 Guidelines for Culturally Competent Care 37 ; XV xvi Contents Cross-Cultural Resources 38 Websites 38 Suggested Readings 40 Recommended Books 43 References 45 Chapter 3 Quality of Ufe in Culturally Diverse Cancer Patients 55 Carolyn Cook Gotay Introduction 55 Studies of Specified Cultural Groups 57 How Is QOL Defined in Different Cultures? 57 How Does Cancer Affect QOL in Individuals in a Particular Culture? 58 Advantages and Disadvantages of Single Culture Studies 59 Comparisons with Normative Data 60 Advantages and Disadvantages of Normative Comparisons 61 Comparative Studies 62 Advantages and Disadvantages of Comparative Studies 66 Measurement of QOL 67 Discussion 68 The Need to Include Members of the Target Cultural Groups in Study Design and Implementation 69 The Need to Recognize that Cultural Considerations are Important for all Patients 69 The Need for Theory in Studies of Cultural and Ethnic Differences in QOL 70 Conclusion 71 References 72 Chapter 4 Cancer and Aging: A Biological, Clinical, and Cultural Analysis 77 Lodovico Balducci, Darlene Johnson, and Claudia Begbe Introduction 77 Definition of Aging: Biological, Physiological, Functional, Medical, and Social Parameters 78 The Assessment of Aging 79 The Comprehensive Geriatric Assessment (CGA) 79 Function 80 Co-morbidity 81 Geriatric Syndromes 81 Contents xvll Social Resources 82 Nutrition 82 Polypharmacy 83 Limits and Evolution of the CGA 85 Other Forms of Aging Assessment 90 Geriatric Assessment in a Culturally Diverse Society 90 Unique Age-Related Questions in the Prevention and Treatment of Cancer 92 Aging in the Country and in the World 96 Agism 96 Accounting for Cultural, Ethnic and Geographical Differences in the Management of Older Individuals 98 Conclusions 100 References 101 Chapter S Children with Cancer: Cultural Differences In Communication between the United States and the United Kingdom 109 Edward J. Estlin and Javier R. Kane Introduction to Childhood Cancer 109 Treatment of Childhood Cancer 111 Organization of Health Care for Children with Cancer 114 Funding 114 National Organization of Children's Cancer Services 115 Interdisciplinary Care and Fragmentation of Care 116 Communication and Stages of Care 118 General Issues in Communication 118 Diagnosis and Treatment: Issues of Consent, Assent, and Dissent 119 End-of-Life Care: Issues of Communication 121 Conclusions 122 References 123 Chapter 6 Cancer Risk Assessment: Clinically Relevant Information is Key 127 Patricia T. KeUy Introduction 127 Risk Over Time 128 Absolute Risk 129 Relative Risks, Odds Ratios, and Hazard Ratios 129 Percent Increase or Decrease 131 xvill Contents Risk Specification 132 Conclusion 133 References 133 PART II: CANCER INTERVENTIONS ACROSS CULTURES Chapter 7 Cancer Prevention: Lifestyle as the Definitive Means of Cancer Control 137 John H. Weisburger Introduction 137 Etiology 138 Genetic 138 Lifestyle Traditions 139 Environmental Risk Factors 142 Types of Carcinogens 142 Specific Chronic Diseases 143 Coronary Heart Disease 143 Hypertension and Stroke, Gastric Cancer 146 Cancers 146 Head and Neck Cancers 146 Cancers of the Lung, Kidney, and Urinary Bladder 147 The Western Nutritionally Linked Cancers, Cancers of the Postmenopausal Breast, Distal Colon, Pancreas, and Prostate 147 Role of Type and Amounts of Dietary Fat 148 Protective Role of Insoluble Bran Cereal Fiber 148 Types of Fiber-Soluble versus Insoluble-Different Metabolic Effects 148 Important Function of Vegetables, Fruits, Soy Products, and Tea 149 Healthy Aging 151 Conclusion 153 Acknowledgments 153 References 154 Chapter 8 Cross-Cultural Aspects of Cancer Care 157 Samuel Mun Yin Ho, Pierre Saltel, Jean-Luc Macbavoine, Nathalie Rapoport-Hubscbman, and David Spiegel Essentials of Supportive-Expressive Psychotherapeutic Intervention Developed in the United States 158 1. Social Support 159 2. Emotional Expression 159 Contents xlx 3. Detoxifying Dying 160 4. Reordering Life Priorities 161 5. Family Support 161 6. Communication with Physicians 162 7. Symptom Control 162 Outcome 162 Psychosocial Support in Hong Kong 163 The Supportive Expressive Group 165 Outcome 170 Summary 171 Psychosocial Support in France 172 Cultural Differences between France and the United States 172 Psychosocial Intervention in France 173 Experience with Supportive Expressive Group Therapy in France 175 Building Bonds 175 Emotional Expression 176 Detoxifying Dying 177 Summary 178 Conclusions 178 Acknowledgment 180 References 180 PART III: SYMPTOMS AND THEIR MANAGEMENT ACROSS CULTURES Chapter 9 The Cultural Experience of Cancer Pain 187 Judith A. Paice and Joseph F. O'DonneU Introduction 187 Organization of Health Care Systems in the United States and United Kingdom 188 Prevalence of Cancer Pain 190 Cancer Pain in Minorities 192 Barriers to Cancer Pain Management 193 Cancer Pain Syndromes 195 Suffering 196 Common Syndromes in Cancer Pain 197 Measurement, Assessment, and Communication Regarding Cancer Pain 198 Unidimensional Tools 199 Multidimensional Instruments 200 xx Contents Physical Assessment 200 Communication 201 Treatment of Cancer Pain 205 Nonopioids 205 Opioids 206 Opioid Selection 207 Opioid-Related Adverse Effects 207 Adjuvants 210 Corticosteroids 210 Tricyclic Antidepressants 210 Anticonvulsants 211 Local Anesthetics 211 Others 211 Pharmacogenetics 212 Cancer Therapies and Other Treatment Options 213 Nonpharmacologic Therapies 213 Conclusion 213 References 214 Chapter 10 Complementary and Alternative Medicine in Patients with Cancer 221 Edzard Ernst and Clare Stevinson Definition 221 The Prevalence of CAM in Cancer Patients 221 Reasons for Popularity 222 Effectiveness of CAM Therapies as Cancer Cures 225 Di Bella Therapy 225 Diet 225 Herbal Medicine 225 Other Supplements 227 Support Group Therapy 228 Complex Therapies 228 Effectiveness of Palliative/Supportive CAM Therapies 229 Acupuncture 229 Hypnotherapy 229 Relaxation 229 Supplements 229 Spiritual Healing 230 Other Therapies 230 Contents xxl Safety Issues 230 Where Do We go From Here? 232 References 233 PART IV: DYING AND DEATH IN DIFFERENT CULTURES Chapter 11 Bereavement across Cultures 241 Richard T. Penson Introduction 241 Definitions ¦ 242 Bereavement 242 Classic Commentaries 244 Optimal End-of-Life Care: Anticipating Bereavement 244 Good Death: Toward a Definition 245 Complicated Grief 245 Gender and Age 246 Predictors of Poor Outcome 246 Burnout 247 Research 247 Coping and Counseling 248 Self-Help and Good Advice 248 Counseling 249 Emergency Response 251 Organized Bereavement Care 251 Psychiatric Referral 252 Grieving Children 252 Condolences 253 Suggestions for Clinical Practice 254 Cancer, Bereavement, Culture: Some Perspectives 255 Culture, Concepts, and Care 256 Cultural competence 257 We Die as We Live 259 Collective Bereavement 260 Religious Aspects of Culture and Bereavement 262 Spiritual and Existential Aspects of Bereavement 263 Christianity 263 Islam 264 Hinduism 265 Buddhism 266 xxll Contents Judaism 268 Sikhism 269 Internet 270 Internet: Resources 270 Conclusion 272 References 272 Chapter 12 The Unmet Need: Addressing Spirituality and Meaning through Culturally Sensitive Communication and Intervention 281 Christopher A. Gibson, Hayley Pessin, Colleen S. McLain, Ami D. Shah, and William Breitbart Introduction 281 Spirituality and Meaning 282 Cross-Cultural Differences in Spirituality, Meaning, and Coping with Life-Threatening Illness 283 African Americans 284 Hispanics 285 Asian Pacific Islanders 286 Chinese . 286 Filipino 287 Japanese 288 Koreans 288 Sub-Saharan Africans 288 Why Might Such Differences Exist? 289 Guidelines for Effective Communication about Spirituality 289 Taking a Spiritual History 290 Difficulties Assessing Spirituality 291 Barriers to Communication 292 Interventions for Spiritual Suffering 292 Nontraditional Interventions 293 Spiritual/Religious Focused Interventions 294 Meaning-Based Interventions 295 References 296 Index 299
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