Measuring the impact of COVID-19 on the quality of life of the survivors, partners and family members: a cross-sectional international online survey
ObjectiveThis study aimed to measure the impact of COVID-19 on the quality of life (QoL) of survivors and their partners and family members.Design and settingA prospective cross-sectional global online survey using social media.ParticipantsPatients with COVID-19 and partners or family members (age ≥...
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| creator | Shah, Rubina Ali, Faraz M Nixon, Stuart J Ingram, John R Salek, Sam M Finlay, Andrew Y |
| description | ObjectiveThis study aimed to measure the impact of COVID-19 on the quality of life (QoL) of survivors and their partners and family members.Design and settingA prospective cross-sectional global online survey using social media.ParticipantsPatients with COVID-19 and partners or family members (age ≥18 years).InterventionOnline survey from June to August 2020.Main outcome measureThe EuroQol group five dimensions three level (EQ-5D-3L) to measure the QoL of survivors of COVID-19, and the Family Reported Outcome Measure (FROM-16) to assess the impact on their partner/family member’s QoL.ResultsThe survey was completed by 735 COVID-19 survivors (mean age=48 years; females=563) at a mean of 12.8 weeks after diagnosis and by 571 partners and 164 family members (n=735; mean age=47 years; females=246) from Europe (50.6%), North America (38.5%) and rest of the world (10.9%). The EQ-5D mean score for COVID-19 survivors was 8.65 (SD=1.9, median=9; range=6–14). 81.1% (596/735) reported pain and discomfort, 79.5% (584/735) problems with usual activities, 68.7% (505/735) anxiety and depression and 56.2% (413/735) problems with mobility. Hospitalised survivors (20.1%, n=148) and survivors with existing health conditions (30.9%, n=227) reported significantly more problems with mobility and usual activities (p |
| doi_str_mv | 10.1136/bmjopen-2020-047680 |
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The EQ-5D mean score for COVID-19 survivors was 8.65 (SD=1.9, median=9; range=6–14). 81.1% (596/735) reported pain and discomfort, 79.5% (584/735) problems with usual activities, 68.7% (505/735) anxiety and depression and 56.2% (413/735) problems with mobility. Hospitalised survivors (20.1%, n=148) and survivors with existing health conditions (30.9%, n=227) reported significantly more problems with mobility and usual activities (p<0.05), with hospitalised also experiencing more impact on self-care (p≤0.001). Among 735 partners and family members, the mean FROM-16 score (maximum score=highest impact =32) was 15 (median=15, range=0-32). 93.6% (688/735) reported being worried, 81.7% (601/735) frustrated, 78.4% (676/735) sad, 83.3% (612/735) reported impact on their family activities, 68.9% (507/735) on sleep and 68.1% (500/735) on their sex life.ConclusionCOVID-19 survivors reported a major persisting impact on their physical and psychosocial health. The lives of their partners and other family members were also severely affected. There is a need for a holistic support system sensitive to the needs of COVID-19 survivors and their family members who experience a major ‘secondary burden’.</description><identifier>ISSN: 2044-6055</identifier><identifier>EISSN: 2044-6055</identifier><identifier>DOI: 10.1136/bmjopen-2020-047680</identifier><identifier>PMID: 34035105</identifier><language>eng</language><publisher>London: British Medical Journal Publishing Group</publisher><subject>Age ; Coronaviruses ; COVID-19 ; Families & family life ; Gender ; Hospitals ; infection control ; Normal distribution ; Public Health ; Quality of life ; Questionnaires ; Social networks ; Sociodemographics ; Statistical analysis ; Variables</subject><ispartof>BMJ open, 2021-05, Vol.11 (5), p.e047680-e047680</ispartof><rights>Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.</rights><rights>2021 Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ . Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b621t-a7d5732cd63cd3d5ff76543aa8e9559a7338aa3a08fa2f003fa03bbc5c9c386f3</citedby><cites>FETCH-LOGICAL-b621t-a7d5732cd63cd3d5ff76543aa8e9559a7338aa3a08fa2f003fa03bbc5c9c386f3</cites><orcidid>0000-0002-4184-2023 ; 0000-0002-4612-5699 ; 0000-0001-8158-712X ; 0000-0002-5257-1142 ; 0000-0003-2143-1646</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://bmjopen.bmj.com/content/11/5/e047680.full.pdf$$EPDF$$P50$$Gbmj$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://bmjopen.bmj.com/content/11/5/e047680.full$$EHTML$$P50$$Gbmj$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,27526,27527,27901,27902,53766,53768,55325,77570,77601,77629,77655</link.rule.ids></links><search><creatorcontrib>Shah, Rubina</creatorcontrib><creatorcontrib>Ali, Faraz M</creatorcontrib><creatorcontrib>Nixon, Stuart J</creatorcontrib><creatorcontrib>Ingram, John R</creatorcontrib><creatorcontrib>Salek, Sam M</creatorcontrib><creatorcontrib>Finlay, Andrew Y</creatorcontrib><title>Measuring the impact of COVID-19 on the quality of life of the survivors, partners and family members: a cross-sectional international online survey</title><title>BMJ open</title><addtitle>BMJ Open</addtitle><description>ObjectiveThis study aimed to measure the impact of COVID-19 on the quality of life (QoL) of survivors and their partners and family members.Design and settingA prospective cross-sectional global online survey using social media.ParticipantsPatients with COVID-19 and partners or family members (age ≥18 years).InterventionOnline survey from June to August 2020.Main outcome measureThe EuroQol group five dimensions three level (EQ-5D-3L) to measure the QoL of survivors of COVID-19, and the Family Reported Outcome Measure (FROM-16) to assess the impact on their partner/family member’s QoL.ResultsThe survey was completed by 735 COVID-19 survivors (mean age=48 years; females=563) at a mean of 12.8 weeks after diagnosis and by 571 partners and 164 family members (n=735; mean age=47 years; females=246) from Europe (50.6%), North America (38.5%) and rest of the world (10.9%). The EQ-5D mean score for COVID-19 survivors was 8.65 (SD=1.9, median=9; range=6–14). 81.1% (596/735) reported pain and discomfort, 79.5% (584/735) problems with usual activities, 68.7% (505/735) anxiety and depression and 56.2% (413/735) problems with mobility. Hospitalised survivors (20.1%, n=148) and survivors with existing health conditions (30.9%, n=227) reported significantly more problems with mobility and usual activities (p<0.05), with hospitalised also experiencing more impact on self-care (p≤0.001). Among 735 partners and family members, the mean FROM-16 score (maximum score=highest impact =32) was 15 (median=15, range=0-32). 93.6% (688/735) reported being worried, 81.7% (601/735) frustrated, 78.4% (676/735) sad, 83.3% (612/735) reported impact on their family activities, 68.9% (507/735) on sleep and 68.1% (500/735) on their sex life.ConclusionCOVID-19 survivors reported a major persisting impact on their physical and psychosocial health. The lives of their partners and other family members were also severely affected. There is a need for a holistic support system sensitive to the needs of COVID-19 survivors and their family members who experience a major ‘secondary burden’.</description><subject>Age</subject><subject>Coronaviruses</subject><subject>COVID-19</subject><subject>Families & family life</subject><subject>Gender</subject><subject>Hospitals</subject><subject>infection control</subject><subject>Normal distribution</subject><subject>Public Health</subject><subject>Quality of life</subject><subject>Questionnaires</subject><subject>Social networks</subject><subject>Sociodemographics</subject><subject>Statistical 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the impact of COVID-19 on the quality of life of the survivors, partners and family members: a cross-sectional international online survey</title><author>Shah, Rubina ; Ali, Faraz M ; Nixon, Stuart J ; Ingram, John R ; Salek, Sam M ; Finlay, Andrew Y</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b621t-a7d5732cd63cd3d5ff76543aa8e9559a7338aa3a08fa2f003fa03bbc5c9c386f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Age</topic><topic>Coronaviruses</topic><topic>COVID-19</topic><topic>Families & family life</topic><topic>Gender</topic><topic>Hospitals</topic><topic>infection control</topic><topic>Normal distribution</topic><topic>Public Health</topic><topic>Quality of life</topic><topic>Questionnaires</topic><topic>Social networks</topic><topic>Sociodemographics</topic><topic>Statistical analysis</topic><topic>Variables</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Shah, Rubina</creatorcontrib><creatorcontrib>Ali, Faraz M</creatorcontrib><creatorcontrib>Nixon, Stuart J</creatorcontrib><creatorcontrib>Ingram, John R</creatorcontrib><creatorcontrib>Salek, Sam M</creatorcontrib><creatorcontrib>Finlay, Andrew Y</creatorcontrib><collection>BMJ Open Access Journals</collection><collection>BMJ Journals:Open Access</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni 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Journals</collection><jtitle>BMJ open</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Shah, Rubina</au><au>Ali, Faraz M</au><au>Nixon, Stuart J</au><au>Ingram, John R</au><au>Salek, Sam M</au><au>Finlay, Andrew Y</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Measuring the impact of COVID-19 on the quality of life of the survivors, partners and family members: a cross-sectional international online survey</atitle><jtitle>BMJ open</jtitle><stitle>BMJ Open</stitle><date>2021-05-25</date><risdate>2021</risdate><volume>11</volume><issue>5</issue><spage>e047680</spage><epage>e047680</epage><pages>e047680-e047680</pages><issn>2044-6055</issn><eissn>2044-6055</eissn><abstract>ObjectiveThis study aimed to measure the impact of COVID-19 on the quality of life (QoL) of survivors and their partners and family members.Design and settingA prospective cross-sectional global online survey using social media.ParticipantsPatients with COVID-19 and partners or family members (age ≥18 years).InterventionOnline survey from June to August 2020.Main outcome measureThe EuroQol group five dimensions three level (EQ-5D-3L) to measure the QoL of survivors of COVID-19, and the Family Reported Outcome Measure (FROM-16) to assess the impact on their partner/family member’s QoL.ResultsThe survey was completed by 735 COVID-19 survivors (mean age=48 years; females=563) at a mean of 12.8 weeks after diagnosis and by 571 partners and 164 family members (n=735; mean age=47 years; females=246) from Europe (50.6%), North America (38.5%) and rest of the world (10.9%). The EQ-5D mean score for COVID-19 survivors was 8.65 (SD=1.9, median=9; range=6–14). 81.1% (596/735) reported pain and discomfort, 79.5% (584/735) problems with usual activities, 68.7% (505/735) anxiety and depression and 56.2% (413/735) problems with mobility. Hospitalised survivors (20.1%, n=148) and survivors with existing health conditions (30.9%, n=227) reported significantly more problems with mobility and usual activities (p<0.05), with hospitalised also experiencing more impact on self-care (p≤0.001). Among 735 partners and family members, the mean FROM-16 score (maximum score=highest impact =32) was 15 (median=15, range=0-32). 93.6% (688/735) reported being worried, 81.7% (601/735) frustrated, 78.4% (676/735) sad, 83.3% (612/735) reported impact on their family activities, 68.9% (507/735) on sleep and 68.1% (500/735) on their sex life.ConclusionCOVID-19 survivors reported a major persisting impact on their physical and psychosocial health. The lives of their partners and other family members were also severely affected. There is a need for a holistic support system sensitive to the needs of COVID-19 survivors and their family members who experience a major ‘secondary burden’.</abstract><cop>London</cop><pub>British Medical Journal Publishing Group</pub><pmid>34035105</pmid><doi>10.1136/bmjopen-2020-047680</doi><orcidid>https://orcid.org/0000-0002-4184-2023</orcidid><orcidid>https://orcid.org/0000-0002-4612-5699</orcidid><orcidid>https://orcid.org/0000-0001-8158-712X</orcidid><orcidid>https://orcid.org/0000-0002-5257-1142</orcidid><orcidid>https://orcid.org/0000-0003-2143-1646</orcidid><oa>free_for_read</oa></addata></record> |
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| source | BMJ Open Access Journals; DOAJ Directory of Open Access Journals; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; PubMed Central; PubMed Central Open Access |
| subjects | Age Coronaviruses COVID-19 Families & family life Gender Hospitals infection control Normal distribution Public Health Quality of life Questionnaires Social networks Sociodemographics Statistical analysis Variables |
| title | Measuring the impact of COVID-19 on the quality of life of the survivors, partners and family members: a cross-sectional international online survey |
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