Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach
Background: Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is li...
Gespeichert in:
| Veröffentlicht in: | Aphasiology 2022, Vol.36 (1), p.76-94 |
|---|---|
| Hauptverfasser: | , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext bestellen |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 94 |
|---|---|
| container_issue | 1 |
| container_start_page | 76 |
| container_title | Aphasiology |
| container_volume | 36 |
| creator | Blom Johansson, Monica Carlsson, Marianne Östberg, Per Sonnander, Karin |
| description | Background:
Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is limited.
Aims:
To examine the extent to which SOs of persons with aphasia (PWAs) experience changes in everyday life and health after the stroke event and how they evaluate these changes and to identify which variables are associated with these perceived life changes.
Methods & Procedures:
A study-specific questionnaire about perceived changes in everyday life and health was completed by 173 SOs of PWAs living in Sweden (response rate 67.8%). The items concerned the SO's working and financial situation, leisure time and social life, relationship with the PWA, household work and responsibility, and health and quality of life.
Outcomes & Results:
The everyday life and health of the SOs were greatly affected by the stroke event. The changes the SOs experienced were mainly appraised negatively. The relationships with the PWA and immediate family were least affected by the stroke. The perceived existence and severity of physical, cognitive, and language impairments of the PWA were the variables most strongly associated with the everyday life situation of the participants. The sex and age of the participants and the nature of the relationship with the PWA were only marginally associated with the experience of the situation.
Conclusions:
SOs' perceptions of the PWA's stroke-related disabilities and need for assistance may be a key factor in identifying SOs who may require support and guidance to help them cope with their new life situation. |
| doi_str_mv | 10.1080/02687038.2020.1852166 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_D8T</sourceid><recordid>TN_cdi_swepub_primary_oai_swepub_ki_se_610208</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>3093826624</sourcerecordid><originalsourceid>FETCH-LOGICAL-c547t-996e49a604b44c2a1dcee5bcfba0430b45a45813a1b9f4fdb85331dbec4db5363</originalsourceid><addsrcrecordid>eNqNkktv1DAUhSMEEkPhJyBZYkuK35OwoipPqRILHlvr2rmeuKRxaicdzb_H0UxhVcTKV0ffOb66OlX1ktFzRhv6hnLdbKlozjnlRWoUZ1o_qjZMalkrKtnjarMy9Qo9rZ7lfE1pQTXbVPtvOPg64RTTjB1xPYw7zCSMBO8wHTo4kCF4JDB2pEcY5p5ET3LYjcEHB-NM4txjyqs6YZwGJPtQIJh6yAHeEiC3S8HCDHO4KznTlCK4_nn1xMOQ8cXpPat-fPzw_fJzffX105fLi6vaKbmd67bVKFvQVFopHQfWOURlnbdApaBWKpCqYQKYbb30nW2UEKyz6GRnldDirKqPuXmP02LNlMINpIOJEMxJ-lUmNJqVizSFbx_ky-bdX9O9kUklldZq9b5-0Ps-_LwwMe3MshjJW0X1_-F92Bkht5QX_NURL2vcLphncx2XNJbjGUFb0XCtuSyUOlIuxZwT-j-xjJq1Lea-LWZtizm1pfjeHX1h9DHdwD6moTMzHIaYfILRhfLNvyN-A3B_yew</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3093826624</pqid></control><display><type>article</type><title>Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach</title><source>SWEPUB Freely available online</source><creator>Blom Johansson, Monica ; Carlsson, Marianne ; Östberg, Per ; Sonnander, Karin</creator><creatorcontrib>Blom Johansson, Monica ; Carlsson, Marianne ; Östberg, Per ; Sonnander, Karin</creatorcontrib><description>Background:
Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is limited.
Aims:
To examine the extent to which SOs of persons with aphasia (PWAs) experience changes in everyday life and health after the stroke event and how they evaluate these changes and to identify which variables are associated with these perceived life changes.
Methods & Procedures:
A study-specific questionnaire about perceived changes in everyday life and health was completed by 173 SOs of PWAs living in Sweden (response rate 67.8%). The items concerned the SO's working and financial situation, leisure time and social life, relationship with the PWA, household work and responsibility, and health and quality of life.
Outcomes & Results:
The everyday life and health of the SOs were greatly affected by the stroke event. The changes the SOs experienced were mainly appraised negatively. The relationships with the PWA and immediate family were least affected by the stroke. The perceived existence and severity of physical, cognitive, and language impairments of the PWA were the variables most strongly associated with the everyday life situation of the participants. The sex and age of the participants and the nature of the relationship with the PWA were only marginally associated with the experience of the situation.
Conclusions:
SOs' perceptions of the PWA's stroke-related disabilities and need for assistance may be a key factor in identifying SOs who may require support and guidance to help them cope with their new life situation.</description><identifier>ISSN: 0268-7038</identifier><identifier>ISSN: 1464-5041</identifier><identifier>EISSN: 1464-5041</identifier><identifier>DOI: 10.1080/02687038.2020.1852166</identifier><language>eng</language><publisher>Abingdon: Routledge</publisher><subject>Aphasia ; everyday life ; health ; Interpersonal relations ; Language disorders ; Medicin och hälsovetenskap ; Quality of life ; Quantitative analysis ; significant others ; Stroke</subject><ispartof>Aphasiology, 2022, Vol.36 (1), p.76-94</ispartof><rights>2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. 2020</rights><rights>2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This work is licensed under the Creative Commons Attribution – Non-Commercial – No Derivatives License http://creativecommons.org/licenses/by-nc-nd/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c547t-996e49a604b44c2a1dcee5bcfba0430b45a45813a1b9f4fdb85331dbec4db5363</citedby><cites>FETCH-LOGICAL-c547t-996e49a604b44c2a1dcee5bcfba0430b45a45813a1b9f4fdb85331dbec4db5363</cites><orcidid>0000-0002-6095-6130 ; 0000-0002-8623-2413</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,552,780,885</link.rule.ids><linktorsrc>$$Uhttp://kipublications.ki.se/Default.aspx?queryparsed=id:145456658$$EView_record_in_Swedish_Publication_Index_(SWEPUB)$$FView_record_in_$$GSwedish_Publication_Index_(SWEPUB)$$Hfree_for_read</linktorsrc><backlink>$$Uhttps://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-34702$$DView record from Swedish Publication Index$$Hfree_for_read</backlink><backlink>$$Uhttps://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-429506$$DView record from Swedish Publication Index$$Hfree_for_read</backlink><backlink>$$Uhttp://kipublications.ki.se/Default.aspx?queryparsed=id:145456658$$DView record from Swedish Publication Index$$Hfree_for_read</backlink></links><search><creatorcontrib>Blom Johansson, Monica</creatorcontrib><creatorcontrib>Carlsson, Marianne</creatorcontrib><creatorcontrib>Östberg, Per</creatorcontrib><creatorcontrib>Sonnander, Karin</creatorcontrib><title>Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach</title><title>Aphasiology</title><description>Background:
Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is limited.
Aims:
To examine the extent to which SOs of persons with aphasia (PWAs) experience changes in everyday life and health after the stroke event and how they evaluate these changes and to identify which variables are associated with these perceived life changes.
Methods & Procedures:
A study-specific questionnaire about perceived changes in everyday life and health was completed by 173 SOs of PWAs living in Sweden (response rate 67.8%). The items concerned the SO's working and financial situation, leisure time and social life, relationship with the PWA, household work and responsibility, and health and quality of life.
Outcomes & Results:
The everyday life and health of the SOs were greatly affected by the stroke event. The changes the SOs experienced were mainly appraised negatively. The relationships with the PWA and immediate family were least affected by the stroke. The perceived existence and severity of physical, cognitive, and language impairments of the PWA were the variables most strongly associated with the everyday life situation of the participants. The sex and age of the participants and the nature of the relationship with the PWA were only marginally associated with the experience of the situation.
Conclusions:
SOs' perceptions of the PWA's stroke-related disabilities and need for assistance may be a key factor in identifying SOs who may require support and guidance to help them cope with their new life situation.</description><subject>Aphasia</subject><subject>everyday life</subject><subject>health</subject><subject>Interpersonal relations</subject><subject>Language disorders</subject><subject>Medicin och hälsovetenskap</subject><subject>Quality of life</subject><subject>Quantitative analysis</subject><subject>significant others</subject><subject>Stroke</subject><issn>0268-7038</issn><issn>1464-5041</issn><issn>1464-5041</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>0YH</sourceid><sourceid>D8T</sourceid><recordid>eNqNkktv1DAUhSMEEkPhJyBZYkuK35OwoipPqRILHlvr2rmeuKRxaicdzb_H0UxhVcTKV0ffOb66OlX1ktFzRhv6hnLdbKlozjnlRWoUZ1o_qjZMalkrKtnjarMy9Qo9rZ7lfE1pQTXbVPtvOPg64RTTjB1xPYw7zCSMBO8wHTo4kCF4JDB2pEcY5p5ET3LYjcEHB-NM4txjyqs6YZwGJPtQIJh6yAHeEiC3S8HCDHO4KznTlCK4_nn1xMOQ8cXpPat-fPzw_fJzffX105fLi6vaKbmd67bVKFvQVFopHQfWOURlnbdApaBWKpCqYQKYbb30nW2UEKyz6GRnldDirKqPuXmP02LNlMINpIOJEMxJ-lUmNJqVizSFbx_ky-bdX9O9kUklldZq9b5-0Ps-_LwwMe3MshjJW0X1_-F92Bkht5QX_NURL2vcLphncx2XNJbjGUFb0XCtuSyUOlIuxZwT-j-xjJq1Lea-LWZtizm1pfjeHX1h9DHdwD6moTMzHIaYfILRhfLNvyN-A3B_yew</recordid><startdate>2022</startdate><enddate>2022</enddate><creator>Blom Johansson, Monica</creator><creator>Carlsson, Marianne</creator><creator>Östberg, Per</creator><creator>Sonnander, Karin</creator><general>Routledge</general><general>Taylor & Francis Ltd</general><scope>0YH</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T9</scope><scope>7TK</scope><scope>ADTPV</scope><scope>ALQMA</scope><scope>AOWAS</scope><scope>D8T</scope><scope>D8W</scope><scope>ZZAVC</scope><scope>ACNBI</scope><scope>DF2</scope><orcidid>https://orcid.org/0000-0002-6095-6130</orcidid><orcidid>https://orcid.org/0000-0002-8623-2413</orcidid></search><sort><creationdate>2022</creationdate><title>Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach</title><author>Blom Johansson, Monica ; Carlsson, Marianne ; Östberg, Per ; Sonnander, Karin</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c547t-996e49a604b44c2a1dcee5bcfba0430b45a45813a1b9f4fdb85331dbec4db5363</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Aphasia</topic><topic>everyday life</topic><topic>health</topic><topic>Interpersonal relations</topic><topic>Language disorders</topic><topic>Medicin och hälsovetenskap</topic><topic>Quality of life</topic><topic>Quantitative analysis</topic><topic>significant others</topic><topic>Stroke</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Blom Johansson, Monica</creatorcontrib><creatorcontrib>Carlsson, Marianne</creatorcontrib><creatorcontrib>Östberg, Per</creatorcontrib><creatorcontrib>Sonnander, Karin</creatorcontrib><collection>Access via Taylor & Francis (Open Access Collection)</collection><collection>CrossRef</collection><collection>Linguistics and Language Behavior Abstracts (LLBA)</collection><collection>Neurosciences Abstracts</collection><collection>SwePub</collection><collection>SWEPUB Högskolan i Gävle full text</collection><collection>SwePub Articles</collection><collection>SWEPUB Freely available online</collection><collection>SWEPUB Högskolan i Gävle</collection><collection>SwePub Articles full text</collection><collection>SWEPUB Uppsala universitet full text</collection><collection>SWEPUB Uppsala universitet</collection><jtitle>Aphasiology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext_linktorsrc</fulltext></delivery><addata><au>Blom Johansson, Monica</au><au>Carlsson, Marianne</au><au>Östberg, Per</au><au>Sonnander, Karin</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach</atitle><jtitle>Aphasiology</jtitle><date>2022</date><risdate>2022</risdate><volume>36</volume><issue>1</issue><spage>76</spage><epage>94</epage><pages>76-94</pages><issn>0268-7038</issn><issn>1464-5041</issn><eissn>1464-5041</eissn><abstract>Background:
Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is limited.
Aims:
To examine the extent to which SOs of persons with aphasia (PWAs) experience changes in everyday life and health after the stroke event and how they evaluate these changes and to identify which variables are associated with these perceived life changes.
Methods & Procedures:
A study-specific questionnaire about perceived changes in everyday life and health was completed by 173 SOs of PWAs living in Sweden (response rate 67.8%). The items concerned the SO's working and financial situation, leisure time and social life, relationship with the PWA, household work and responsibility, and health and quality of life.
Outcomes & Results:
The everyday life and health of the SOs were greatly affected by the stroke event. The changes the SOs experienced were mainly appraised negatively. The relationships with the PWA and immediate family were least affected by the stroke. The perceived existence and severity of physical, cognitive, and language impairments of the PWA were the variables most strongly associated with the everyday life situation of the participants. The sex and age of the participants and the nature of the relationship with the PWA were only marginally associated with the experience of the situation.
Conclusions:
SOs' perceptions of the PWA's stroke-related disabilities and need for assistance may be a key factor in identifying SOs who may require support and guidance to help them cope with their new life situation.</abstract><cop>Abingdon</cop><pub>Routledge</pub><doi>10.1080/02687038.2020.1852166</doi><tpages>19</tpages><orcidid>https://orcid.org/0000-0002-6095-6130</orcidid><orcidid>https://orcid.org/0000-0002-8623-2413</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext_linktorsrc |
| identifier | ISSN: 0268-7038 |
| ispartof | Aphasiology, 2022, Vol.36 (1), p.76-94 |
| issn | 0268-7038 1464-5041 1464-5041 |
| language | eng |
| recordid | cdi_swepub_primary_oai_swepub_ki_se_610208 |
| source | SWEPUB Freely available online |
| subjects | Aphasia everyday life health Interpersonal relations Language disorders Medicin och hälsovetenskap Quality of life Quantitative analysis significant others Stroke |
| title | Self-reported changes in everyday life and health of significant others of people with aphasia: a quantitative approach |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-23T04%3A30%3A20IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_D8T&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Self-reported%20changes%20in%20everyday%20life%20and%20health%20of%20significant%20others%20of%20people%20with%20aphasia:%20a%20quantitative%20approach&rft.jtitle=Aphasiology&rft.au=Blom%20Johansson,%20Monica&rft.date=2022&rft.volume=36&rft.issue=1&rft.spage=76&rft.epage=94&rft.pages=76-94&rft.issn=0268-7038&rft.eissn=1464-5041&rft_id=info:doi/10.1080/02687038.2020.1852166&rft_dat=%3Cproquest_D8T%3E3093826624%3C/proquest_D8T%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=3093826624&rft_id=info:pmid/&rfr_iscdi=true |