Information needs following a diagnosis of oesophageal cancer; self-perceived information needs of patients and family members compared with the perceptions of healthcare professionals: a pilot study
This pilot study was undertaken to describe patients’ and family members’ information needs following a diagnosis of oesophageal cancer and healthcare professionals’ (HCP) perceptions concerning patients’ and family members’ information needs. Another aim was to describe patients’ and family members...
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| Veröffentlicht in: | European journal of cancer care 2007-05, Vol.16 (3), p.277-285 |
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| container_title | European journal of cancer care |
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| creator | ANDREASSEN, S. RANDERS, I. NÄSLUND, E. STOCKELD, D. MATTIASSON, A.-C. |
| description | This pilot study was undertaken to describe patients’ and family members’ information needs following a diagnosis of oesophageal cancer and healthcare professionals’ (HCP) perceptions concerning patients’ and family members’ information needs. Another aim was to describe patients’ and family members’ satisfaction with information provided. Data were collected by means of a self‐report questionnaire. A total of 15 patients, 16 family members and 34 HCP participated. Patients and family members consider most information to be important. The high rating for information about tests/treatment and self‐care means that both patients and family members consider this to be the most important areas of information. Healthcare professionals tend to underestimate both patients’ and family members’ needs for information. Patients and family members were only partly satisfied with the information received, with patients in general more satisfied with information given compared with family members. Patients’ and family members’ needs for information following a diagnosis of oesophageal cancer are substantial and have not been adequately met by HCP. A qualitative study might be helpful to complete the description of patients’ and family members’ needs. If a questionnaire is employed, it ought to be less extensive. |
| doi_str_mv | 10.1111/j.1365-2354.2006.00742.x |
| format | Article |
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Another aim was to describe patients’ and family members’ satisfaction with information provided. Data were collected by means of a self‐report questionnaire. A total of 15 patients, 16 family members and 34 HCP participated. Patients and family members consider most information to be important. The high rating for information about tests/treatment and self‐care means that both patients and family members consider this to be the most important areas of information. Healthcare professionals tend to underestimate both patients’ and family members’ needs for information. Patients and family members were only partly satisfied with the information received, with patients in general more satisfied with information given compared with family members. Patients’ and family members’ needs for information following a diagnosis of oesophageal cancer are substantial and have not been adequately met by HCP. A qualitative study might be helpful to complete the description of patients’ and family members’ needs. 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self-perceived information needs of patients and family members compared with the perceptions of healthcare professionals: a pilot study</title><author>ANDREASSEN, S. ; RANDERS, I. ; NÄSLUND, E. ; STOCKELD, D. ; MATTIASSON, A.-C.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5362-88e64830eda2bfa68cd22b01059a6ce99c6a54053274541f3496cd6008acb3e43</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2007</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Attitude of Health Personnel</topic><topic>Caring sciences</topic><topic>Data Collection</topic><topic>Esophageal Neoplasms - diagnosis</topic><topic>Esophageal Neoplasms - psychology</topic><topic>Family - psychology</topic><topic>family members</topic><topic>Female</topic><topic>Health Services Needs and Demand</topic><topic>healthcare professionals' perceptions</topic><topic>Humans</topic><topic>information needs</topic><topic>INTERDISCIPLINARY RESEARCH AREAS</topic><topic>Male</topic><topic>Medicin och hälsovetenskap</topic><topic>Middle Aged</topic><topic>Nursing</topic><topic>oesophageal cancer</topic><topic>Omvårdnad</topic><topic>Patient Education as Topic</topic><topic>Patient Satisfaction</topic><topic>patients</topic><topic>Perception</topic><topic>Pilot Projects</topic><topic>quantitative study</topic><topic>TVÄRVETENSKAPLIGA FORSKNINGSOMRÅDEN</topic><topic>Vårdvetenskap</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>ANDREASSEN, S.</creatorcontrib><creatorcontrib>RANDERS, I.</creatorcontrib><creatorcontrib>NÄSLUND, E.</creatorcontrib><creatorcontrib>STOCKELD, D.</creatorcontrib><creatorcontrib>MATTIASSON, A.-C.</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>SwePub</collection><collection>SwePub Articles</collection><collection>SWEPUB Sophiahemmet Högskola</collection><collection>SWEPUB Freely available online</collection><collection>SwePub Articles full text</collection><jtitle>European journal of cancer care</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>ANDREASSEN, S.</au><au>RANDERS, I.</au><au>NÄSLUND, E.</au><au>STOCKELD, D.</au><au>MATTIASSON, A.-C.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Information needs following a diagnosis of oesophageal cancer; 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Another aim was to describe patients’ and family members’ satisfaction with information provided. Data were collected by means of a self‐report questionnaire. A total of 15 patients, 16 family members and 34 HCP participated. Patients and family members consider most information to be important. The high rating for information about tests/treatment and self‐care means that both patients and family members consider this to be the most important areas of information. Healthcare professionals tend to underestimate both patients’ and family members’ needs for information. Patients and family members were only partly satisfied with the information received, with patients in general more satisfied with information given compared with family members. Patients’ and family members’ needs for information following a diagnosis of oesophageal cancer are substantial and have not been adequately met by HCP. A qualitative study might be helpful to complete the description of patients’ and family members’ needs. If a questionnaire is employed, it ought to be less extensive.</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>17508949</pmid><doi>10.1111/j.1365-2354.2006.00742.x</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| language | eng |
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| source | MEDLINE; SWEPUB Freely available online; Wiley Online Library All Journals |
| subjects | Adult Aged Aged, 80 and over Attitude of Health Personnel Caring sciences Data Collection Esophageal Neoplasms - diagnosis Esophageal Neoplasms - psychology Family - psychology family members Female Health Services Needs and Demand healthcare professionals' perceptions Humans information needs INTERDISCIPLINARY RESEARCH AREAS Male Medicin och hälsovetenskap Middle Aged Nursing oesophageal cancer Omvårdnad Patient Education as Topic Patient Satisfaction patients Perception Pilot Projects quantitative study TVÄRVETENSKAPLIGA FORSKNINGSOMRÅDEN Vårdvetenskap |
| title | Information needs following a diagnosis of oesophageal cancer; self-perceived information needs of patients and family members compared with the perceptions of healthcare professionals: a pilot study |
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