Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study
Purpose To examine the feasibility, reliability, and validity of the newly developed EQ-5D-Y. Methods The EQ-5D-Y was administered in population samples of children and adolescents in Germany, Italy, South Africa, Spain, and Sweden. Percentages of missing values and reported problems were calculated...
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| Veröffentlicht in: | Quality of life research 2010-08, Vol.19 (6), p.887-897 |
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| creator | Ravens-Sieberer, Ulrike Wille, Nora Badia, Xavier Bonsel, Gouke Burström, Kristina Cavrini, Gulia Devlin, Nancy Egmar, Ann-Charlotte Gusi, Narcis Herdman, Michael Jelsma, Jennifer Kind, Paul Olivares, Pedro R. Scalone, Luciana Greiner, Wolfgang |
| description | Purpose To examine the feasibility, reliability, and validity of the newly developed EQ-5D-Y. Methods The EQ-5D-Y was administered in population samples of children and adolescents in Germany, Italy, South Africa, Spain, and Sweden. Percentages of missing values and reported problems were calculated. Test-retest reliability was determined. Spearman's rank correlation coefficients with other generic measures of HRQOL were calculated. Known groups' validity was examined by comparing groups with a priori expected differences in HRQOL. Results Between 91 and 100% of the respondents provided valid scorings. Sweden had the lowest proportion of reported problems (1-24.9% across EQ-5D-Y dimensions), with the highest proportions in South Africa (2.8-47.3%) and Italy (4.3-39.0%). Percentages of agreement in testretest reliability ranged between 69.8 and 99.7% in the EQ-5D-Y dimensions; Kappa coefficients were up to 0.67. Correlation coefficients with other measures of self-rated health indicated convergent validity (up to r= — 0.56). Differences between groups classified according to presence of chronic conditions, self-rated overall health and psychological problems provided preliminary evidence of known groups' validity. Conclusions Results provide preliminary evidence of the instrument's feasibility, reliability and validity. Further study is required in clinical samples and for possible future applications in economic analyses. |
| doi_str_mv | 10.1007/s11136-010-9649-x |
| format | Article |
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Methods The EQ-5D-Y was administered in population samples of children and adolescents in Germany, Italy, South Africa, Spain, and Sweden. Percentages of missing values and reported problems were calculated. Test-retest reliability was determined. Spearman's rank correlation coefficients with other generic measures of HRQOL were calculated. Known groups' validity was examined by comparing groups with a priori expected differences in HRQOL. Results Between 91 and 100% of the respondents provided valid scorings. Sweden had the lowest proportion of reported problems (1-24.9% across EQ-5D-Y dimensions), with the highest proportions in South Africa (2.8-47.3%) and Italy (4.3-39.0%). Percentages of agreement in testretest reliability ranged between 69.8 and 99.7% in the EQ-5D-Y dimensions; Kappa coefficients were up to 0.67. Correlation coefficients with other measures of self-rated health indicated convergent validity (up to r= — 0.56). Differences between groups classified according to presence of chronic conditions, self-rated overall health and psychological problems provided preliminary evidence of known groups' validity. Conclusions Results provide preliminary evidence of the instrument's feasibility, reliability and validity. Further study is required in clinical samples and for possible future applications in economic analyses.</description><identifier>ISSN: 0962-9343</identifier><identifier>ISSN: 1573-2649</identifier><identifier>EISSN: 1573-2649</identifier><identifier>DOI: 10.1007/s11136-010-9649-x</identifier><identifier>PMID: 20401552</identifier><language>eng</language><publisher>Dordrecht: Springer</publisher><subject>Adolescent ; adolescent health ; Adolescents ; Adults ; Child ; child health ; Children & youth ; Childrens health ; Chronic diseases ; Chronic illnesses ; Correlation coefficients ; Cross-Cultural Comparison ; Disability Evaluation ; EQ-5D ; Ethics ; Europe ; Feasibility ; Feasibility Studies ; Female ; Health care economics ; Health economics ; Health Status Indicators ; HRQOL ; Humans ; INSTRUMENT DEVELOPMENT AND EVALUATION ; Male ; measurement ; Medicine ; Medicine & Public Health ; Population ; Psychological aspects ; Psychometrics ; Psychometrics - instrumentation ; Public Health ; Quality of Life ; Quality of Life Research ; Questionnaires ; Reproducibility of Results ; School age children ; Schools ; Sociology ; South Africa ; Surveys and Questionnaires ; Teenagers ; Validation studies ; Validity ; Walking ; Wellbeing ; Young Adult</subject><ispartof>Quality of life research, 2010-08, Vol.19 (6), p.887-897</ispartof><rights>2010 Springer</rights><rights>The Author(s) 2010</rights><rights>Springer Science+Business Media B.V. 2010</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c629t-44df004f33b7a2d99acce02cc6dbc1cc40401218f83d89b1283396201429204d3</citedby><cites>FETCH-LOGICAL-c629t-44df004f33b7a2d99acce02cc6dbc1cc40401218f83d89b1283396201429204d3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/40835604$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/40835604$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>230,314,550,776,780,799,881,27901,27902,41464,42533,51294,57992,58225</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/20401552$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttps://urn.kb.se/resolve?urn=urn:nbn:se:rkh:diva-525$$DView record from Swedish Publication Index$$Hfree_for_read</backlink><backlink>$$Uhttp://kipublications.ki.se/Default.aspx?queryparsed=id:120944056$$DView record from Swedish Publication Index$$Hfree_for_read</backlink></links><search><creatorcontrib>Ravens-Sieberer, Ulrike</creatorcontrib><creatorcontrib>Wille, Nora</creatorcontrib><creatorcontrib>Badia, Xavier</creatorcontrib><creatorcontrib>Bonsel, Gouke</creatorcontrib><creatorcontrib>Burström, Kristina</creatorcontrib><creatorcontrib>Cavrini, Gulia</creatorcontrib><creatorcontrib>Devlin, Nancy</creatorcontrib><creatorcontrib>Egmar, Ann-Charlotte</creatorcontrib><creatorcontrib>Gusi, Narcis</creatorcontrib><creatorcontrib>Herdman, Michael</creatorcontrib><creatorcontrib>Jelsma, Jennifer</creatorcontrib><creatorcontrib>Kind, Paul</creatorcontrib><creatorcontrib>Olivares, Pedro R.</creatorcontrib><creatorcontrib>Scalone, Luciana</creatorcontrib><creatorcontrib>Greiner, Wolfgang</creatorcontrib><title>Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study</title><title>Quality of life research</title><addtitle>Qual Life Res</addtitle><addtitle>Qual Life Res</addtitle><description>Purpose To examine the feasibility, reliability, and validity of the newly developed EQ-5D-Y. Methods The EQ-5D-Y was administered in population samples of children and adolescents in Germany, Italy, South Africa, Spain, and Sweden. Percentages of missing values and reported problems were calculated. Test-retest reliability was determined. Spearman's rank correlation coefficients with other generic measures of HRQOL were calculated. Known groups' validity was examined by comparing groups with a priori expected differences in HRQOL. Results Between 91 and 100% of the respondents provided valid scorings. Sweden had the lowest proportion of reported problems (1-24.9% across EQ-5D-Y dimensions), with the highest proportions in South Africa (2.8-47.3%) and Italy (4.3-39.0%). Percentages of agreement in testretest reliability ranged between 69.8 and 99.7% in the EQ-5D-Y dimensions; Kappa coefficients were up to 0.67. Correlation coefficients with other measures of self-rated health indicated convergent validity (up to r= — 0.56). Differences between groups classified according to presence of chronic conditions, self-rated overall health and psychological problems provided preliminary evidence of known groups' validity. Conclusions Results provide preliminary evidence of the instrument's feasibility, reliability and validity. Further study is required in clinical samples and for possible future applications in economic analyses.</description><subject>Adolescent</subject><subject>adolescent health</subject><subject>Adolescents</subject><subject>Adults</subject><subject>Child</subject><subject>child health</subject><subject>Children & youth</subject><subject>Childrens health</subject><subject>Chronic diseases</subject><subject>Chronic illnesses</subject><subject>Correlation coefficients</subject><subject>Cross-Cultural Comparison</subject><subject>Disability Evaluation</subject><subject>EQ-5D</subject><subject>Ethics</subject><subject>Europe</subject><subject>Feasibility</subject><subject>Feasibility Studies</subject><subject>Female</subject><subject>Health care economics</subject><subject>Health economics</subject><subject>Health Status Indicators</subject><subject>HRQOL</subject><subject>Humans</subject><subject>INSTRUMENT DEVELOPMENT AND EVALUATION</subject><subject>Male</subject><subject>measurement</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Population</subject><subject>Psychological aspects</subject><subject>Psychometrics</subject><subject>Psychometrics - instrumentation</subject><subject>Public Health</subject><subject>Quality of Life</subject><subject>Quality of Life Research</subject><subject>Questionnaires</subject><subject>Reproducibility of Results</subject><subject>School age children</subject><subject>Schools</subject><subject>Sociology</subject><subject>South Africa</subject><subject>Surveys and Questionnaires</subject><subject>Teenagers</subject><subject>Validation studies</subject><subject>Validity</subject><subject>Walking</subject><subject>Wellbeing</subject><subject>Young Adult</subject><issn>0962-9343</issn><issn>1573-2649</issn><issn>1573-2649</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2010</creationdate><recordtype>article</recordtype><sourceid>C6C</sourceid><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><sourceid>D8T</sourceid><recordid>eNp9kk2LFDEQhoMo7rj6AzwojRdBjFa-uhMPwrIfKiyIoMKeQjqdnslsd2dNutedf2-Gnh1dQU9JpZ56U1W8CD0l8IYAVG8TIYSVGAhgVXKFb-6hBREVwzRH99ECVEmxYpwdoEcprQFAKqAP0QEFDkQIukAXZ84kX_vOj5vXRXSdN7eBGZri2nS-yVER2mJcueL0CxYn-OJdJtPUjaloY-gLU_Q58IMZfRhMV6RxajaP0YPWdMk92Z2H6NvZ6dfjj_j884dPx0fn2JZUjZjzpgXgLWN1ZWijlLHWAbW2bGpLrOXbVimRrWSNVDWhkrE8FhBOVR6jYYcIz7rpp7uaan0VfW_iRgfj9e7pMt-cFoJIJTP_6p_8if9-pENc6ni50oKKDL-f4Uz2rrFuGKPp7tTczQx-pZfhWlOpaEl4Fni5E4jhx-TSqHufrOs6M7gwJV0xxkvCFMnki7_IdZhiXmfSsqJUcAksQ2SGbAwpRdfuWyGgt57Qsyd09oTeekLf5Jrnf86wr7g1QQbobiM5NSxd_P3z_1SfzUXrNIa4F-UgmSiBs18qzsx_</recordid><startdate>20100801</startdate><enddate>20100801</enddate><creator>Ravens-Sieberer, Ulrike</creator><creator>Wille, Nora</creator><creator>Badia, Xavier</creator><creator>Bonsel, Gouke</creator><creator>Burström, Kristina</creator><creator>Cavrini, Gulia</creator><creator>Devlin, Nancy</creator><creator>Egmar, Ann-Charlotte</creator><creator>Gusi, Narcis</creator><creator>Herdman, Michael</creator><creator>Jelsma, Jennifer</creator><creator>Kind, Paul</creator><creator>Olivares, Pedro R.</creator><creator>Scalone, Luciana</creator><creator>Greiner, Wolfgang</creator><general>Springer</general><general>Springer Netherlands</general><general>Springer Nature B.V</general><scope>C6C</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope><scope>ADTPV</scope><scope>AOWAS</scope><scope>D8T</scope><scope>ZZAVC</scope></search><sort><creationdate>20100801</creationdate><title>Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study</title><author>Ravens-Sieberer, Ulrike ; Wille, Nora ; Badia, Xavier ; Bonsel, Gouke ; Burström, Kristina ; Cavrini, Gulia ; Devlin, Nancy ; Egmar, Ann-Charlotte ; Gusi, Narcis ; Herdman, Michael ; Jelsma, Jennifer ; Kind, Paul ; Olivares, Pedro R. ; Scalone, Luciana ; Greiner, Wolfgang</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c629t-44df004f33b7a2d99acce02cc6dbc1cc40401218f83d89b1283396201429204d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2010</creationdate><topic>Adolescent</topic><topic>adolescent health</topic><topic>Adolescents</topic><topic>Adults</topic><topic>Child</topic><topic>child health</topic><topic>Children & youth</topic><topic>Childrens health</topic><topic>Chronic diseases</topic><topic>Chronic illnesses</topic><topic>Correlation coefficients</topic><topic>Cross-Cultural Comparison</topic><topic>Disability Evaluation</topic><topic>EQ-5D</topic><topic>Ethics</topic><topic>Europe</topic><topic>Feasibility</topic><topic>Feasibility Studies</topic><topic>Female</topic><topic>Health care economics</topic><topic>Health economics</topic><topic>Health Status Indicators</topic><topic>HRQOL</topic><topic>Humans</topic><topic>INSTRUMENT DEVELOPMENT AND EVALUATION</topic><topic>Male</topic><topic>measurement</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Population</topic><topic>Psychological aspects</topic><topic>Psychometrics</topic><topic>Psychometrics - instrumentation</topic><topic>Public Health</topic><topic>Quality of Life</topic><topic>Quality of Life Research</topic><topic>Questionnaires</topic><topic>Reproducibility of Results</topic><topic>School age children</topic><topic>Schools</topic><topic>Sociology</topic><topic>South Africa</topic><topic>Surveys and Questionnaires</topic><topic>Teenagers</topic><topic>Validation studies</topic><topic>Validity</topic><topic>Walking</topic><topic>Wellbeing</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ravens-Sieberer, Ulrike</creatorcontrib><creatorcontrib>Wille, Nora</creatorcontrib><creatorcontrib>Badia, Xavier</creatorcontrib><creatorcontrib>Bonsel, Gouke</creatorcontrib><creatorcontrib>Burström, Kristina</creatorcontrib><creatorcontrib>Cavrini, Gulia</creatorcontrib><creatorcontrib>Devlin, Nancy</creatorcontrib><creatorcontrib>Egmar, Ann-Charlotte</creatorcontrib><creatorcontrib>Gusi, Narcis</creatorcontrib><creatorcontrib>Herdman, Michael</creatorcontrib><creatorcontrib>Jelsma, Jennifer</creatorcontrib><creatorcontrib>Kind, Paul</creatorcontrib><creatorcontrib>Olivares, Pedro R.</creatorcontrib><creatorcontrib>Scalone, Luciana</creatorcontrib><creatorcontrib>Greiner, Wolfgang</creatorcontrib><collection>Springer Nature OA Free Journals</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>ABI/INFORM Global</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><collection>SwePub</collection><collection>SwePub Articles</collection><collection>SWEPUB Freely available online</collection><collection>SwePub Articles full text</collection><jtitle>Quality of life research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ravens-Sieberer, Ulrike</au><au>Wille, Nora</au><au>Badia, Xavier</au><au>Bonsel, Gouke</au><au>Burström, Kristina</au><au>Cavrini, Gulia</au><au>Devlin, Nancy</au><au>Egmar, Ann-Charlotte</au><au>Gusi, Narcis</au><au>Herdman, Michael</au><au>Jelsma, Jennifer</au><au>Kind, Paul</au><au>Olivares, Pedro R.</au><au>Scalone, Luciana</au><au>Greiner, Wolfgang</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study</atitle><jtitle>Quality of life research</jtitle><stitle>Qual Life Res</stitle><addtitle>Qual Life Res</addtitle><date>2010-08-01</date><risdate>2010</risdate><volume>19</volume><issue>6</issue><spage>887</spage><epage>897</epage><pages>887-897</pages><issn>0962-9343</issn><issn>1573-2649</issn><eissn>1573-2649</eissn><abstract>Purpose To examine the feasibility, reliability, and validity of the newly developed EQ-5D-Y. Methods The EQ-5D-Y was administered in population samples of children and adolescents in Germany, Italy, South Africa, Spain, and Sweden. Percentages of missing values and reported problems were calculated. Test-retest reliability was determined. Spearman's rank correlation coefficients with other generic measures of HRQOL were calculated. Known groups' validity was examined by comparing groups with a priori expected differences in HRQOL. Results Between 91 and 100% of the respondents provided valid scorings. Sweden had the lowest proportion of reported problems (1-24.9% across EQ-5D-Y dimensions), with the highest proportions in South Africa (2.8-47.3%) and Italy (4.3-39.0%). Percentages of agreement in testretest reliability ranged between 69.8 and 99.7% in the EQ-5D-Y dimensions; Kappa coefficients were up to 0.67. Correlation coefficients with other measures of self-rated health indicated convergent validity (up to r= — 0.56). Differences between groups classified according to presence of chronic conditions, self-rated overall health and psychological problems provided preliminary evidence of known groups' validity. Conclusions Results provide preliminary evidence of the instrument's feasibility, reliability and validity. Further study is required in clinical samples and for possible future applications in economic analyses.</abstract><cop>Dordrecht</cop><pub>Springer</pub><pmid>20401552</pmid><doi>10.1007/s11136-010-9649-x</doi><tpages>11</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Adolescent adolescent health Adolescents Adults Child child health Children & youth Childrens health Chronic diseases Chronic illnesses Correlation coefficients Cross-Cultural Comparison Disability Evaluation EQ-5D Ethics Europe Feasibility Feasibility Studies Female Health care economics Health economics Health Status Indicators HRQOL Humans INSTRUMENT DEVELOPMENT AND EVALUATION Male measurement Medicine Medicine & Public Health Population Psychological aspects Psychometrics Psychometrics - instrumentation Public Health Quality of Life Quality of Life Research Questionnaires Reproducibility of Results School age children Schools Sociology South Africa Surveys and Questionnaires Teenagers Validation studies Validity Walking Wellbeing Young Adult |
| title | Feasibility, reliability, and validity of the EQ-5D-Y: results from a multinational study |
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