Hypothetical and factual willingness to participate in biobank research

In the debate on biobank regulation, arguments often draw upon findings in surveys on public attitudes. However, surveys on willingness to participate in research may not always predict actual participation rates. We compared hypothetical willingness as estimated in 11 surveys conducted in Sweden, I...

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Veröffentlicht in:	European journal of human genetics : EJHG 2010-11, Vol.18 (11), p.1261-1264
Hauptverfasser:	Johnsson, Linus, Helgesson, Gert, Rafnar, Thorunn, Halldorsdottir, Ingibjorg, Chia, Kee-Seng, Eriksson, Stefan, Hansson, Mats G
Format:	Artikel
Sprache:	eng
Schlagworte:	692/308 706/689/523 Altruism Attitude surveys Attitude to Health biobanks Bioethics Bioetik Bioinformatics Biological and medical sciences Biomedical and Life Sciences Biomedicine Cancer Consent Cytogenetics Data Collection - methods Data Collection - statistics & numerical data Diabetes Ethics Fundamental and applied biological sciences. Psychology Gene Expression General aspects. Genetic counseling genetic databases Genetic research Genetic Research - ethics Genetics of eukaryotes. Biological and molecular evolution Human Genetics Humans Iceland Ireland Medical genetics Medical research Medical sciences MEDICIN MEDICINE Molecular and cellular biology Participation Patient Participation - statistics & numerical data Population public attitudes Public Opinion public surveys Recruitment Research Design Short Report Singapore Studies Sweden Tissue Banks Tissue Donors - ethics Tissue Donors - statistics & numerical data trust United Kingdom United States
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