Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG
Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), altho...
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| Veröffentlicht in: | Acta dermato-venereologica 2013-01, Vol.93 (3), p.350-351 |
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| creator | Ingvarsson, Gisli Dufour, Deidre Nathalie Killasli, Hassan Sartorius, Karin Lapins, Jan Skau, Philip A Moseng, Dagfinn Dinparvar, Darjosh Furberg, Anne-Sofie Jemec, Gregor B E Emtestam, Lennart |
| description | Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. This manuscript presents the Scandinavian Registry for HS, HISREG. |
| doi_str_mv | 10.2340/00015555-1468 |
| format | Article |
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Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. 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Treatments include local or systemic antibiotics, hormones, retinoids and systemic immunosuppressive agents (1), although on evaluation these have been shown to have only limited or temporary effect. In refractory cases, surgery is necessary, and should be radical and performed as early as possible (2, 3). It is essential to establish a registry of HS in order to address the following important issues: to assess the safety and effectiveness of different treatments; to identify which specific patient subgroups have the best risk/benefit ratio for a given treatment; and to create benchmark data for quality assurance of the medical service. 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HISREG</title><author>Ingvarsson, Gisli ; Dufour, Deidre Nathalie ; Killasli, Hassan ; Sartorius, Karin ; Lapins, Jan ; Skau, Philip A ; Moseng, Dagfinn ; Dinparvar, Darjosh ; Furberg, Anne-Sofie ; Jemec, Gregor B E ; Emtestam, Lennart</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c443t-e785363e89bd93c34aae87eca777969a6b218aa688fd33cb39bd4679137e202e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2013</creationdate><topic>Community medicine, Social medicine: 801</topic><topic>Health sciences: 800</topic><topic>Health service and health administration research: 806</topic><topic>Helsefag: 800</topic><topic>Helsetjeneste- og helseadministrasjonsforskning: 806</topic><topic>Hidradenitis Suppurativa - diagnosis</topic><topic>Hidradenitis Suppurativa - epidemiology</topic><topic>Hidradenitis Suppurativa - therapy</topic><topic>Humans</topic><topic>Medical disciplines: 700</topic><topic>Medicin och hälsovetenskap</topic><topic>Medisinske Fag: 700</topic><topic>Program Development</topic><topic>Registries</topic><topic>Research Design</topic><topic>Samfunnsmedisin, sosialmedisin: 801</topic><topic>Scandinavian and Nordic Countries - epidemiology</topic><topic>Severity of Illness Index</topic><topic>Treatment Outcome</topic><topic>VDP</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ingvarsson, Gisli</creatorcontrib><creatorcontrib>Dufour, Deidre Nathalie</creatorcontrib><creatorcontrib>Killasli, Hassan</creatorcontrib><creatorcontrib>Sartorius, Karin</creatorcontrib><creatorcontrib>Lapins, Jan</creatorcontrib><creatorcontrib>Skau, Philip A</creatorcontrib><creatorcontrib>Moseng, Dagfinn</creatorcontrib><creatorcontrib>Dinparvar, Darjosh</creatorcontrib><creatorcontrib>Furberg, Anne-Sofie</creatorcontrib><creatorcontrib>Jemec, Gregor B E</creatorcontrib><creatorcontrib>Emtestam, Lennart</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>NORA - Norwegian Open Research Archives</collection><collection>SwePub</collection><collection>SwePub Articles</collection><collection>SWEPUB Freely available online</collection><collection>SwePub Articles full text</collection><jtitle>Acta dermato-venereologica</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ingvarsson, Gisli</au><au>Dufour, Deidre Nathalie</au><au>Killasli, Hassan</au><au>Sartorius, Karin</au><au>Lapins, Jan</au><au>Skau, Philip A</au><au>Moseng, Dagfinn</au><au>Dinparvar, Darjosh</au><au>Furberg, Anne-Sofie</au><au>Jemec, Gregor B E</au><au>Emtestam, Lennart</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG</atitle><jtitle>Acta dermato-venereologica</jtitle><addtitle>Acta Derm Venereol</addtitle><date>2013-01-01</date><risdate>2013</risdate><volume>93</volume><issue>3</issue><spage>350</spage><epage>351</epage><pages>350-351</pages><issn>0001-5555</issn><issn>1651-2057</issn><eissn>1651-2057</eissn><abstract>Hidradenitis suppurativa (HS; or acne inversa) is a scarring and frequently persistent inflammatory disorder of the terminal hair follicles of apocrine gland-bearing skin in adults. 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| subjects | Community medicine, Social medicine: 801 Health sciences: 800 Health service and health administration research: 806 Helsefag: 800 Helsetjeneste- og helseadministrasjonsforskning: 806 Hidradenitis Suppurativa - diagnosis Hidradenitis Suppurativa - epidemiology Hidradenitis Suppurativa - therapy Humans Medical disciplines: 700 Medicin och hälsovetenskap Medisinske Fag: 700 Program Development Registries Research Design Samfunnsmedisin, sosialmedisin: 801 Scandinavian and Nordic Countries - epidemiology Severity of Illness Index Treatment Outcome VDP |
| title | Development of a clinical Scandinavian registry for hidradenitis suppurativa; HISREG |
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