Stroke survivors' priorities for research related to life after stroke
Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number o...
Gespeichert in:
| Veröffentlicht in: | Topics in stroke rehabilitation 2021-02, Vol.28 (2), p.153-158 |
|---|---|
| Hauptverfasser: | , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext bestellen |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 158 |
|---|---|
| container_issue | 2 |
| container_start_page | 153 |
| container_title | Topics in stroke rehabilitation |
| container_volume | 28 |
| creator | Rudberg, Ann-Sofie Berge, Eivind Laska, Ann-Charlotte Jutterström, Stina Näsman, Per Sunnerhagen, Katharina S Lundström, Erik |
| description | Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number of stroke survivors, research on how to improve life after stroke is needed.
The primary aim was to determine which area of research related to life after stroke that stroke patients and their informal carers prioritized as being relevant and valuable.
A cross-sectional study of all patients who had completed the 12 months of follow-up in the EFFECTS trial. In the questionnaire the stroke patients and their informal carers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke.
Of the 731 patients who were still alive after the 12 months-follow-up, 589 responded. The most prioritized areas of research were Balance and walking difficulties (290 (49%) responders) and Post-stroke fatigue (173 (29%) responders). Women answered the undefined alternative "other" more often than men (43 women (11%) versus 11 men (6%), p = .04). Younger patients prioritized Post-stroke fatigue to a higher extent (88 (45%) versus (22%), p |
| doi_str_mv | 10.1080/10749357.2020.1789829 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_3HK</sourceid><recordid>TN_cdi_swepub_primary_oai_swepub_ki_se_469955</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2420634624</sourcerecordid><originalsourceid>FETCH-LOGICAL-c551t-a781cb713f56443a7f56c6362d34d564d8b4544a6c2c0a635a53358565ac98983</originalsourceid><addsrcrecordid>eNp9kUtvEzEUhS0EoqXwE4DZlc0Uvz3eURUKSJVY8NheOR5PajIZh2tPq_57nCbpMqt7dfTdc2wdQt4yesFoRz8yaqQVylxwyqtkOttx-4ycMitVqxizz-temXYLnZBXOf-llClmu5fkRHDNjeH8lFz_LJhWockz3sW7hPm82WBMGEsMuRkSNhhycOhv6zK6EvqmpGaMQ2jcUAI2-fH-NXkxuDGHN_t5Rn5ff_l19a29-fH1-9XlTeuVYqV1pmN-YZgYlJZSOFOn10LzXsi-Sn23kEpKpz331GmhnBJCdUor5239oTgj7c4334fNvID61rXDB0guwl5a1S2A1NYqdZRfzhuo0nLe8twqSu1R_nP8cwkJl7Aqt8A7aYyo_Psd7zHmEieYEjpglAoDnJpHxw87YoPp3xxygXXMPoyjm0KaM3DJqRZSc1lRdTBLOWMYnuIZhW3pcCgdtqXDvvR6924fMS_WoX-6OrRcgU87IE610bW7Tzj2UNzDmHBAN_mYQRzP-A-KYroH</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2420634624</pqid></control><display><type>article</type><title>Stroke survivors' priorities for research related to life after stroke</title><source>NORA - Norwegian Open Research Archives</source><creator>Rudberg, Ann-Sofie ; Berge, Eivind ; Laska, Ann-Charlotte ; Jutterström, Stina ; Näsman, Per ; Sunnerhagen, Katharina S ; Lundström, Erik</creator><creatorcontrib>Rudberg, Ann-Sofie ; Berge, Eivind ; Laska, Ann-Charlotte ; Jutterström, Stina ; Näsman, Per ; Sunnerhagen, Katharina S ; Lundström, Erik</creatorcontrib><description>Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number of stroke survivors, research on how to improve life after stroke is needed.
The primary aim was to determine which area of research related to life after stroke that stroke patients and their informal carers prioritized as being relevant and valuable.
A cross-sectional study of all patients who had completed the 12 months of follow-up in the EFFECTS trial. In the questionnaire the stroke patients and their informal carers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke.
Of the 731 patients who were still alive after the 12 months-follow-up, 589 responded. The most prioritized areas of research were Balance and walking difficulties (290 (49%) responders) and Post-stroke fatigue (173 (29%) responders). Women answered the undefined alternative "other" more often than men (43 women (11%) versus 11 men (6%), p = .04). Younger patients prioritized Post-stroke fatigue to a higher extent (88 (45%) versus (22%), p < .001), and elderly prioritized Balance and walking difficulties (214 (54%) versus 76 (40%), p = .002) and Speech difficulties (38 (10%) versus 9 (5%), p = .045).
Life after stroke is perceived differentely with aging. Future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.</description><identifier>ISSN: 1074-9357</identifier><identifier>ISSN: 1945-5119</identifier><identifier>EISSN: 1945-5119</identifier><identifier>DOI: 10.1080/10749357.2020.1789829</identifier><identifier>PMID: 32627722</identifier><language>eng</language><publisher>England: Taylor & Francis</publisher><subject>adult ; aged ; balance impairment ; cerebrovascular accident ; controlled study ; cross-sectional study ; fatigue ; female ; follow up ; human ; life after stroke ; major clinical study ; male ; Medical disciplines: 700 ; Medisinske Fag: 700 ; Neurologi ; Neurology ; patient involvement ; post-stroke fatigue ; post-stroke mobility ; quality of life ; questionnaire ; randomized controlled trial ; research priorities ; speech disorder ; Stroke ; stroke survivor ; stroke-recovery ; VDP ; walking difficulty</subject><ispartof>Topics in stroke rehabilitation, 2021-02, Vol.28 (2), p.153-158</ispartof><rights>2020 The Author(s). Published with license by Taylor & Francis Group, LLC. 2020</rights><rights>info:eu-repo/semantics/openAccess</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c551t-a781cb713f56443a7f56c6362d34d564d8b4544a6c2c0a635a53358565ac98983</citedby><cites>FETCH-LOGICAL-c551t-a781cb713f56443a7f56c6362d34d564d8b4544a6c2c0a635a53358565ac98983</cites><orcidid>0000-0002-5313-9052 ; 0000-0003-3616-9943</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,550,776,881,26544</link.rule.ids><linktorsrc>$$Uhttp://hdl.handle.net/10037/20709$$EView_record_in_NORA$$FView_record_in_$$GNORA$$Hfree_for_read</linktorsrc><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32627722$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttps://urn.kb.se/resolve?urn=urn:nbn:se:kth:diva-284773$$DView record from Swedish Publication Index$$Hfree_for_read</backlink><backlink>$$Uhttps://gup.ub.gu.se/publication/295009$$DView record from Swedish Publication Index$$Hfree_for_read</backlink><backlink>$$Uhttp://kipublications.ki.se/Default.aspx?queryparsed=id:144138410$$DView record from Swedish Publication Index$$Hfree_for_read</backlink></links><search><creatorcontrib>Rudberg, Ann-Sofie</creatorcontrib><creatorcontrib>Berge, Eivind</creatorcontrib><creatorcontrib>Laska, Ann-Charlotte</creatorcontrib><creatorcontrib>Jutterström, Stina</creatorcontrib><creatorcontrib>Näsman, Per</creatorcontrib><creatorcontrib>Sunnerhagen, Katharina S</creatorcontrib><creatorcontrib>Lundström, Erik</creatorcontrib><title>Stroke survivors' priorities for research related to life after stroke</title><title>Topics in stroke rehabilitation</title><addtitle>Top Stroke Rehabil</addtitle><description>Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number of stroke survivors, research on how to improve life after stroke is needed.
The primary aim was to determine which area of research related to life after stroke that stroke patients and their informal carers prioritized as being relevant and valuable.
A cross-sectional study of all patients who had completed the 12 months of follow-up in the EFFECTS trial. In the questionnaire the stroke patients and their informal carers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke.
Of the 731 patients who were still alive after the 12 months-follow-up, 589 responded. The most prioritized areas of research were Balance and walking difficulties (290 (49%) responders) and Post-stroke fatigue (173 (29%) responders). Women answered the undefined alternative "other" more often than men (43 women (11%) versus 11 men (6%), p = .04). Younger patients prioritized Post-stroke fatigue to a higher extent (88 (45%) versus (22%), p < .001), and elderly prioritized Balance and walking difficulties (214 (54%) versus 76 (40%), p = .002) and Speech difficulties (38 (10%) versus 9 (5%), p = .045).
Life after stroke is perceived differentely with aging. Future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.</description><subject>adult</subject><subject>aged</subject><subject>balance impairment</subject><subject>cerebrovascular accident</subject><subject>controlled study</subject><subject>cross-sectional study</subject><subject>fatigue</subject><subject>female</subject><subject>follow up</subject><subject>human</subject><subject>life after stroke</subject><subject>major clinical study</subject><subject>male</subject><subject>Medical disciplines: 700</subject><subject>Medisinske Fag: 700</subject><subject>Neurologi</subject><subject>Neurology</subject><subject>patient involvement</subject><subject>post-stroke fatigue</subject><subject>post-stroke mobility</subject><subject>quality of life</subject><subject>questionnaire</subject><subject>randomized controlled trial</subject><subject>research priorities</subject><subject>speech disorder</subject><subject>Stroke</subject><subject>stroke survivor</subject><subject>stroke-recovery</subject><subject>VDP</subject><subject>walking difficulty</subject><issn>1074-9357</issn><issn>1945-5119</issn><issn>1945-5119</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>0YH</sourceid><sourceid>3HK</sourceid><sourceid>D8T</sourceid><recordid>eNp9kUtvEzEUhS0EoqXwE4DZlc0Uvz3eURUKSJVY8NheOR5PajIZh2tPq_57nCbpMqt7dfTdc2wdQt4yesFoRz8yaqQVylxwyqtkOttx-4ycMitVqxizz-temXYLnZBXOf-llClmu5fkRHDNjeH8lFz_LJhWockz3sW7hPm82WBMGEsMuRkSNhhycOhv6zK6EvqmpGaMQ2jcUAI2-fH-NXkxuDGHN_t5Rn5ff_l19a29-fH1-9XlTeuVYqV1pmN-YZgYlJZSOFOn10LzXsi-Sn23kEpKpz331GmhnBJCdUor5239oTgj7c4334fNvID61rXDB0guwl5a1S2A1NYqdZRfzhuo0nLe8twqSu1R_nP8cwkJl7Aqt8A7aYyo_Psd7zHmEieYEjpglAoDnJpHxw87YoPp3xxygXXMPoyjm0KaM3DJqRZSc1lRdTBLOWMYnuIZhW3pcCgdtqXDvvR6924fMS_WoX-6OrRcgU87IE610bW7Tzj2UNzDmHBAN_mYQRzP-A-KYroH</recordid><startdate>20210217</startdate><enddate>20210217</enddate><creator>Rudberg, Ann-Sofie</creator><creator>Berge, Eivind</creator><creator>Laska, Ann-Charlotte</creator><creator>Jutterström, Stina</creator><creator>Näsman, Per</creator><creator>Sunnerhagen, Katharina S</creator><creator>Lundström, Erik</creator><general>Taylor & Francis</general><scope>0YH</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>3HK</scope><scope>ADTPV</scope><scope>AFDQA</scope><scope>AOWAS</scope><scope>D8T</scope><scope>D8V</scope><scope>ZZAVC</scope><scope>F1U</scope><orcidid>https://orcid.org/0000-0002-5313-9052</orcidid><orcidid>https://orcid.org/0000-0003-3616-9943</orcidid></search><sort><creationdate>20210217</creationdate><title>Stroke survivors' priorities for research related to life after stroke</title><author>Rudberg, Ann-Sofie ; Berge, Eivind ; Laska, Ann-Charlotte ; Jutterström, Stina ; Näsman, Per ; Sunnerhagen, Katharina S ; Lundström, Erik</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c551t-a781cb713f56443a7f56c6362d34d564d8b4544a6c2c0a635a53358565ac98983</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>adult</topic><topic>aged</topic><topic>balance impairment</topic><topic>cerebrovascular accident</topic><topic>controlled study</topic><topic>cross-sectional study</topic><topic>fatigue</topic><topic>female</topic><topic>follow up</topic><topic>human</topic><topic>life after stroke</topic><topic>major clinical study</topic><topic>male</topic><topic>Medical disciplines: 700</topic><topic>Medisinske Fag: 700</topic><topic>Neurologi</topic><topic>Neurology</topic><topic>patient involvement</topic><topic>post-stroke fatigue</topic><topic>post-stroke mobility</topic><topic>quality of life</topic><topic>questionnaire</topic><topic>randomized controlled trial</topic><topic>research priorities</topic><topic>speech disorder</topic><topic>Stroke</topic><topic>stroke survivor</topic><topic>stroke-recovery</topic><topic>VDP</topic><topic>walking difficulty</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rudberg, Ann-Sofie</creatorcontrib><creatorcontrib>Berge, Eivind</creatorcontrib><creatorcontrib>Laska, Ann-Charlotte</creatorcontrib><creatorcontrib>Jutterström, Stina</creatorcontrib><creatorcontrib>Näsman, Per</creatorcontrib><creatorcontrib>Sunnerhagen, Katharina S</creatorcontrib><creatorcontrib>Lundström, Erik</creatorcontrib><collection>Taylor & Francis Open Access</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>NORA - Norwegian Open Research Archives</collection><collection>SwePub</collection><collection>SWEPUB Kungliga Tekniska Högskolan full text</collection><collection>SwePub Articles</collection><collection>SWEPUB Freely available online</collection><collection>SWEPUB Kungliga Tekniska Högskolan</collection><collection>SwePub Articles full text</collection><collection>SWEPUB Göteborgs universitet</collection><jtitle>Topics in stroke rehabilitation</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext_linktorsrc</fulltext></delivery><addata><au>Rudberg, Ann-Sofie</au><au>Berge, Eivind</au><au>Laska, Ann-Charlotte</au><au>Jutterström, Stina</au><au>Näsman, Per</au><au>Sunnerhagen, Katharina S</au><au>Lundström, Erik</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Stroke survivors' priorities for research related to life after stroke</atitle><jtitle>Topics in stroke rehabilitation</jtitle><addtitle>Top Stroke Rehabil</addtitle><date>2021-02-17</date><risdate>2021</risdate><volume>28</volume><issue>2</issue><spage>153</spage><epage>158</epage><pages>153-158</pages><issn>1074-9357</issn><issn>1945-5119</issn><eissn>1945-5119</eissn><abstract>Stroke has transitioned from an untreatable, unpreventable disease to a highly treatable and preventable disease over recent decades, and the number of stroke survivors is expected to increase. The number is also foreseen to grow larger as a result of an aging population. With an escalating number of stroke survivors, research on how to improve life after stroke is needed.
The primary aim was to determine which area of research related to life after stroke that stroke patients and their informal carers prioritized as being relevant and valuable.
A cross-sectional study of all patients who had completed the 12 months of follow-up in the EFFECTS trial. In the questionnaire the stroke patients and their informal carers were asked to prioritize areas of research they considered important and valuable with respect to their life after stroke.
Of the 731 patients who were still alive after the 12 months-follow-up, 589 responded. The most prioritized areas of research were Balance and walking difficulties (290 (49%) responders) and Post-stroke fatigue (173 (29%) responders). Women answered the undefined alternative "other" more often than men (43 women (11%) versus 11 men (6%), p = .04). Younger patients prioritized Post-stroke fatigue to a higher extent (88 (45%) versus (22%), p < .001), and elderly prioritized Balance and walking difficulties (214 (54%) versus 76 (40%), p = .002) and Speech difficulties (38 (10%) versus 9 (5%), p = .045).
Life after stroke is perceived differentely with aging. Future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.</abstract><cop>England</cop><pub>Taylor & Francis</pub><pmid>32627722</pmid><doi>10.1080/10749357.2020.1789829</doi><tpages>6</tpages><orcidid>https://orcid.org/0000-0002-5313-9052</orcidid><orcidid>https://orcid.org/0000-0003-3616-9943</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext_linktorsrc |
| identifier | ISSN: 1074-9357 |
| ispartof | Topics in stroke rehabilitation, 2021-02, Vol.28 (2), p.153-158 |
| issn | 1074-9357 1945-5119 1945-5119 |
| language | eng |
| recordid | cdi_swepub_primary_oai_swepub_ki_se_469955 |
| source | NORA - Norwegian Open Research Archives |
| subjects | adult aged balance impairment cerebrovascular accident controlled study cross-sectional study fatigue female follow up human life after stroke major clinical study male Medical disciplines: 700 Medisinske Fag: 700 Neurologi Neurology patient involvement post-stroke fatigue post-stroke mobility quality of life questionnaire randomized controlled trial research priorities speech disorder Stroke stroke survivor stroke-recovery VDP walking difficulty |
| title | Stroke survivors' priorities for research related to life after stroke |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-08T21%3A52%3A31IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_3HK&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Stroke%20survivors'%20priorities%20for%20research%20related%20to%20life%20after%20stroke&rft.jtitle=Topics%20in%20stroke%20rehabilitation&rft.au=Rudberg,%20Ann-Sofie&rft.date=2021-02-17&rft.volume=28&rft.issue=2&rft.spage=153&rft.epage=158&rft.pages=153-158&rft.issn=1074-9357&rft.eissn=1945-5119&rft_id=info:doi/10.1080/10749357.2020.1789829&rft_dat=%3Cproquest_3HK%3E2420634624%3C/proquest_3HK%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2420634624&rft_id=info:pmid/32627722&rfr_iscdi=true |