Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
Background: People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for peo...
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| Veröffentlicht in: | Palliative Medicine 2023-04, Vol.37 (4), p.426-443 |
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| container_title | Palliative Medicine |
| container_volume | 37 |
| creator | Buchman, Daniel Z Lo, Samantha Ding, Philip Dosani, Naheed Fazelzad, Rouhi Furlan, Andrea D Isenberg, Sarina R Spithoff, Sheryl Tedesco, Alissa Zimmermann, Camilla Lau, Jenny |
| description | Background:
People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities.
Aim:
To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs.
Design:
Scoping review.
Data sources:
We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics.
Results:
Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma.
Conclusions:
Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics. |
| doi_str_mv | 10.1177/02692163221143153 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_9760505</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_02692163221143153</sage_id><sourcerecordid>2794571399</sourcerecordid><originalsourceid>FETCH-LOGICAL-c418t-fc7fc8481e1bd4173bdb2f3bd5b6e9e87b0810c5c27e12ca72cd9c09ed6172a53</originalsourceid><addsrcrecordid>eNp1kc1u1TAQhS1ERS-FB2CDLLFhQYrHieOEBVJV8VOpEixAYhc540nqKomDfXOrPk1fFae3lD-xGdua75zx6DD2DMQxgNavhSxrCWUuJUCRg8ofsA0UWmciF98ess3az1bgkD2O8VIIyEVZPGKHeamkrAqxYTefzTA4s3U74mgC8c4HPpOfB-JXF54vkbgNSx-5XYKbeo5-HJfJoWkTYV0kkwianaXRYeRmsnxO5fb1hp_wiH5edYF2jq64n7hBpBhf8dkPDh2l260o-D6Yce_QL8lvcBPFJ-ygM0Okp3fnEfv6_t2X04_Z-acPZ6cn5xkWUG2zDnWHVVEBQWsL0HlrW9mlqtqSaqp0KyoQqFBqAolGS7Q1ippsCVoalR-xt3vfeWlHskjTNpihmYMbTbhuvHHNn53JXTS93zW1LoUSq8HLO4Pgvy8Ut83oItIwmIn8EhuplVK6LDUk9MVf6KVfwpTWS1RdqITUdaJgT2HwMQbq7j8Dolnjb_6JP2me_77FveJn3gk43gPR9PRr7P8dfwBy4bt7</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2794571399</pqid></control><display><type>article</type><title>Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines</title><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>SAGE Complete A-Z List</source><source>MEDLINE</source><creator>Buchman, Daniel Z ; Lo, Samantha ; Ding, Philip ; Dosani, Naheed ; Fazelzad, Rouhi ; Furlan, Andrea D ; Isenberg, Sarina R ; Spithoff, Sheryl ; Tedesco, Alissa ; Zimmermann, Camilla ; Lau, Jenny</creator><creatorcontrib>Buchman, Daniel Z ; Lo, Samantha ; Ding, Philip ; Dosani, Naheed ; Fazelzad, Rouhi ; Furlan, Andrea D ; Isenberg, Sarina R ; Spithoff, Sheryl ; Tedesco, Alissa ; Zimmermann, Camilla ; Lau, Jenny</creatorcontrib><description>Background:
People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities.
Aim:
To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs.
Design:
Scoping review.
Data sources:
We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics.
Results:
Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma.
Conclusions:
Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics.</description><identifier>ISSN: 0269-2163</identifier><identifier>ISSN: 1477-030X</identifier><identifier>EISSN: 1477-030X</identifier><identifier>DOI: 10.1177/02692163221143153</identifier><identifier>PMID: 36522840</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Access ; Acquired immune deficiency syndrome ; Adolescent ; AIDS ; Barriers ; Communicable Diseases ; COVID-19 ; Drugs ; Epidemics ; Health care ; Health disparities ; HIV ; Human immunodeficiency virus ; Humans ; Inequality ; Infectious diseases ; Opioids ; Palliative Care ; Pandemics ; Pharmaceutical Preparations ; Policy ; Review ; Stigma</subject><ispartof>Palliative Medicine, 2023-04, Vol.37 (4), p.426-443</ispartof><rights>The Author(s) 2022</rights><rights>The Author(s) 2022 2022 SAGE Publications</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c418t-fc7fc8481e1bd4173bdb2f3bd5b6e9e87b0810c5c27e12ca72cd9c09ed6172a53</cites><orcidid>0000-0003-4889-0244 ; 0000-0001-8944-6647 ; 0000-0003-0947-7334</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/02692163221143153$$EPDF$$P50$$Gsage$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/02692163221143153$$EHTML$$P50$$Gsage$$Hfree_for_read</linktohtml><link.rule.ids>230,313,314,776,780,788,881,21798,27899,27901,27902,30976,43597,43598</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36522840$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Buchman, Daniel Z</creatorcontrib><creatorcontrib>Lo, Samantha</creatorcontrib><creatorcontrib>Ding, Philip</creatorcontrib><creatorcontrib>Dosani, Naheed</creatorcontrib><creatorcontrib>Fazelzad, Rouhi</creatorcontrib><creatorcontrib>Furlan, Andrea D</creatorcontrib><creatorcontrib>Isenberg, Sarina R</creatorcontrib><creatorcontrib>Spithoff, Sheryl</creatorcontrib><creatorcontrib>Tedesco, Alissa</creatorcontrib><creatorcontrib>Zimmermann, Camilla</creatorcontrib><creatorcontrib>Lau, Jenny</creatorcontrib><title>Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines</title><title>Palliative Medicine</title><addtitle>Palliat Med</addtitle><description>Background:
People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities.
Aim:
To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs.
Design:
Scoping review.
Data sources:
We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics.
Results:
Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma.
Conclusions:
Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics.</description><subject>Access</subject><subject>Acquired immune deficiency syndrome</subject><subject>Adolescent</subject><subject>AIDS</subject><subject>Barriers</subject><subject>Communicable Diseases</subject><subject>COVID-19</subject><subject>Drugs</subject><subject>Epidemics</subject><subject>Health care</subject><subject>Health disparities</subject><subject>HIV</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Inequality</subject><subject>Infectious diseases</subject><subject>Opioids</subject><subject>Palliative Care</subject><subject>Pandemics</subject><subject>Pharmaceutical Preparations</subject><subject>Policy</subject><subject>Review</subject><subject>Stigma</subject><issn>0269-2163</issn><issn>1477-030X</issn><issn>1477-030X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kc1u1TAQhS1ERS-FB2CDLLFhQYrHieOEBVJV8VOpEixAYhc540nqKomDfXOrPk1fFae3lD-xGdua75zx6DD2DMQxgNavhSxrCWUuJUCRg8ofsA0UWmciF98ess3az1bgkD2O8VIIyEVZPGKHeamkrAqxYTefzTA4s3U74mgC8c4HPpOfB-JXF54vkbgNSx-5XYKbeo5-HJfJoWkTYV0kkwianaXRYeRmsnxO5fb1hp_wiH5edYF2jq64n7hBpBhf8dkPDh2l260o-D6Yce_QL8lvcBPFJ-ygM0Okp3fnEfv6_t2X04_Z-acPZ6cn5xkWUG2zDnWHVVEBQWsL0HlrW9mlqtqSaqp0KyoQqFBqAolGS7Q1ippsCVoalR-xt3vfeWlHskjTNpihmYMbTbhuvHHNn53JXTS93zW1LoUSq8HLO4Pgvy8Ut83oItIwmIn8EhuplVK6LDUk9MVf6KVfwpTWS1RdqITUdaJgT2HwMQbq7j8Dolnjb_6JP2me_77FveJn3gk43gPR9PRr7P8dfwBy4bt7</recordid><startdate>20230401</startdate><enddate>20230401</enddate><creator>Buchman, Daniel Z</creator><creator>Lo, Samantha</creator><creator>Ding, Philip</creator><creator>Dosani, Naheed</creator><creator>Fazelzad, Rouhi</creator><creator>Furlan, Andrea D</creator><creator>Isenberg, Sarina R</creator><creator>Spithoff, Sheryl</creator><creator>Tedesco, Alissa</creator><creator>Zimmermann, Camilla</creator><creator>Lau, Jenny</creator><general>SAGE Publications</general><general>Sage Publications Ltd</general><scope>AFRWT</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-4889-0244</orcidid><orcidid>https://orcid.org/0000-0001-8944-6647</orcidid><orcidid>https://orcid.org/0000-0003-0947-7334</orcidid></search><sort><creationdate>20230401</creationdate><title>Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines</title><author>Buchman, Daniel Z ; Lo, Samantha ; Ding, Philip ; Dosani, Naheed ; Fazelzad, Rouhi ; Furlan, Andrea D ; Isenberg, Sarina R ; Spithoff, Sheryl ; Tedesco, Alissa ; Zimmermann, Camilla ; Lau, Jenny</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c418t-fc7fc8481e1bd4173bdb2f3bd5b6e9e87b0810c5c27e12ca72cd9c09ed6172a53</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Access</topic><topic>Acquired immune deficiency syndrome</topic><topic>Adolescent</topic><topic>AIDS</topic><topic>Barriers</topic><topic>Communicable Diseases</topic><topic>COVID-19</topic><topic>Drugs</topic><topic>Epidemics</topic><topic>Health care</topic><topic>Health disparities</topic><topic>HIV</topic><topic>Human immunodeficiency virus</topic><topic>Humans</topic><topic>Inequality</topic><topic>Infectious diseases</topic><topic>Opioids</topic><topic>Palliative Care</topic><topic>Pandemics</topic><topic>Pharmaceutical Preparations</topic><topic>Policy</topic><topic>Review</topic><topic>Stigma</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Buchman, Daniel Z</creatorcontrib><creatorcontrib>Lo, Samantha</creatorcontrib><creatorcontrib>Ding, Philip</creatorcontrib><creatorcontrib>Dosani, Naheed</creatorcontrib><creatorcontrib>Fazelzad, Rouhi</creatorcontrib><creatorcontrib>Furlan, Andrea D</creatorcontrib><creatorcontrib>Isenberg, Sarina R</creatorcontrib><creatorcontrib>Spithoff, Sheryl</creatorcontrib><creatorcontrib>Tedesco, Alissa</creatorcontrib><creatorcontrib>Zimmermann, Camilla</creatorcontrib><creatorcontrib>Lau, Jenny</creatorcontrib><collection>Sage Journals GOLD Open Access 2024</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Palliative Medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Buchman, Daniel Z</au><au>Lo, Samantha</au><au>Ding, Philip</au><au>Dosani, Naheed</au><au>Fazelzad, Rouhi</au><au>Furlan, Andrea D</au><au>Isenberg, Sarina R</au><au>Spithoff, Sheryl</au><au>Tedesco, Alissa</au><au>Zimmermann, Camilla</au><au>Lau, Jenny</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines</atitle><jtitle>Palliative Medicine</jtitle><addtitle>Palliat Med</addtitle><date>2023-04-01</date><risdate>2023</risdate><volume>37</volume><issue>4</issue><spage>426</spage><epage>443</epage><pages>426-443</pages><issn>0269-2163</issn><issn>1477-030X</issn><eissn>1477-030X</eissn><abstract>Background:
People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities.
Aim:
To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs.
Design:
Scoping review.
Data sources:
We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics.
Results:
Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma.
Conclusions:
Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>36522840</pmid><doi>10.1177/02692163221143153</doi><tpages>18</tpages><orcidid>https://orcid.org/0000-0003-4889-0244</orcidid><orcidid>https://orcid.org/0000-0001-8944-6647</orcidid><orcidid>https://orcid.org/0000-0003-0947-7334</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0269-2163 |
| ispartof | Palliative Medicine, 2023-04, Vol.37 (4), p.426-443 |
| issn | 0269-2163 1477-030X 1477-030X |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_9760505 |
| source | Applied Social Sciences Index & Abstracts (ASSIA); SAGE Complete A-Z List; MEDLINE |
| subjects | Access Acquired immune deficiency syndrome Adolescent AIDS Barriers Communicable Diseases COVID-19 Drugs Epidemics Health care Health disparities HIV Human immunodeficiency virus Humans Inequality Infectious diseases Opioids Palliative Care Pandemics Pharmaceutical Preparations Policy Review Stigma |
| title | Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines |
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