PSAT102 Qualitative Research in Children and Parents of Children with Achondroplasia to Cognitively Debrief Three Patient-Reported Outcome Measures and Confirm the Content Validity of a Clinical-Assessed Measure

Abstract Background Achondroplasia (ACH) is the most common non-lethal form of skeletal dysplasia affecting 1 in 25,000 live births. Individuals with ACH experience various medical, emotional, and functional challenges during their lifetime. Qualitative research was conducted to evaluate the content...

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Veröffentlicht in:	Journal of the Endocrine Society 2022-11, Vol.6 (Supplement_1), p.A630-A631
Hauptverfasser:	Muslimova, Elena, Hoover-Fong, Julie, Mathias, Susan D, Savarirayan, Ravi, Crews, Chandler, Alves, Inês, Medicine, Veterinary, Iruretagoyena, Susana Noval, Haider, Amer, Cho, Terry, Lee, Anne, Colwell, Hilary H
Format:	Artikel
Sprache:	eng
Schlagworte:	Pediatric Endocrinology
Online-Zugang:	Volltext
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