Preventive pharmacological treatment in subjects at risk for fatal familial insomnia: science and public engagement

Engaging patients as partners in biomedical research has gradually gained consensus over the last two decades. They provide a different perspective on health priorities and help to improve design and outcomes of clinical studies. This paper describes the relationship established between scientists a...

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Veröffentlicht in:	Prion 2022-12, Vol.16 (1), p.66-77
Hauptverfasser:	Forloni, Gianluigi, Roiter, Ignazio, Artuso, Vladimiro, Marcon, Manuel, Colesso, Walter, Luban, Elviana, Lucca, Ugo, Tettamanti, Mauro, Pupillo, Elisabetta, Redaelli, Veronica, Mariuzzo, Francesco, Boscolo Buleghin, Giulia, Mariuzzo, Alice, Tagliavini, Fabrizio, Chiesa, Roberto, Ambrosini, Anna
Format:	Artikel
Sprache:	eng
Schlagworte:	clinical trial disease incidence genetic prion diseases Humans Insomnia, Fatal Familial - drug therapy Insomnia, Fatal Familial - genetics Mutation patient engagement Prion Diseases - genetics Research Paper tetracyclines
Online-Zugang:	Volltext
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