The impact of Behçet’s disease on intimate relationships in women: A qualitative study
Objective Behçet’s disease is a rare and incurable condition where the body’s immune system attacks healthy tissue. Behçet’s can cause blood clots and ulcerations to form in every organ and system in the body, including deep and painful genital ulceration. The psychological impact of the disease on...
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| Veröffentlicht in: | Chronic illness 2022-06, Vol.18 (2), p.255-267 |
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| container_title | Chronic illness |
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| creator | Sweeting, Fay Arden-Close, Emily |
| description | Objective
Behçet’s disease is a rare and incurable condition where the body’s immune system attacks healthy tissue. Behçet’s can cause blood clots and ulcerations to form in every organ and system in the body, including deep and painful genital ulceration. The psychological impact of the disease on intimacy and relationships is unexplored. This study aimed to explore how the disease impacts on female patients’ intimate partner relationships.
Methods
Participants were seven female, UK patients with Behçet’s disease who were in committed relationships. In depth, semi-structured interviews lasting approximately 80 minutes were conducted via video conferencing about participants’ sexual functioning and intimate relationships. Data was analysed using Interpretative Phenomenological Analysis.
Results
Patients’ sexual relationships and intimacy were impacted by issues due to lack of knowledge of symptoms (misdiagnosis of herpes), issues due to symptoms (genital manifestations, painful sex, exhaustion), difficulties communicating with medical professionals, medication, partner support, and support from fellow Behçet’s patients.
Discussion
Female Behçet’s patients are at risk of developing psychological problems with intimacy due to symptoms, lack of knowledge of symptoms, and negative impacts of medication. Intimacy needs to be discussed in medical consultations so these issues can be addressed before a lack of intimacy negatively impacts relationships. |
| doi_str_mv | 10.1177/1742395320945210 |
| format | Article |
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Behçet’s disease is a rare and incurable condition where the body’s immune system attacks healthy tissue. Behçet’s can cause blood clots and ulcerations to form in every organ and system in the body, including deep and painful genital ulceration. The psychological impact of the disease on intimacy and relationships is unexplored. This study aimed to explore how the disease impacts on female patients’ intimate partner relationships.
Methods
Participants were seven female, UK patients with Behçet’s disease who were in committed relationships. In depth, semi-structured interviews lasting approximately 80 minutes were conducted via video conferencing about participants’ sexual functioning and intimate relationships. Data was analysed using Interpretative Phenomenological Analysis.
Results
Patients’ sexual relationships and intimacy were impacted by issues due to lack of knowledge of symptoms (misdiagnosis of herpes), issues due to symptoms (genital manifestations, painful sex, exhaustion), difficulties communicating with medical professionals, medication, partner support, and support from fellow Behçet’s patients.
Discussion
Female Behçet’s patients are at risk of developing psychological problems with intimacy due to symptoms, lack of knowledge of symptoms, and negative impacts of medication. Intimacy needs to be discussed in medical consultations so these issues can be addressed before a lack of intimacy negatively impacts relationships.</description><identifier>ISSN: 1742-3953</identifier><identifier>EISSN: 1745-9206</identifier><identifier>DOI: 10.1177/1742395320945210</identifier><identifier>PMID: 32722917</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Behcet Syndrome - complications ; Behcet Syndrome - diagnosis ; Behcet Syndrome - psychology ; Behcet's syndrome ; Dating ; Drugs ; Fatigue ; Female ; Females ; Humans ; Immune system ; Interpretative phenomenological analysis ; Intimacy ; Medical personnel ; Misdiagnosis ; Pain - etiology ; Partners ; Psychological problems ; Qualitative Research ; Sexual behavior ; Sexual functioning ; Social support ; Symptoms ; Vein & artery diseases ; Video conferencing ; Women ; Womens health</subject><ispartof>Chronic illness, 2022-06, Vol.18 (2), p.255-267</ispartof><rights>The Author(s) 2020</rights><rights>The Author(s) 2020 2020 SAGE Publications</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c462t-243deceda070b03026d37c46fc2491ee738546eb616ac92d7b4bc669b55d95843</citedby><cites>FETCH-LOGICAL-c462t-243deceda070b03026d37c46fc2491ee738546eb616ac92d7b4bc669b55d95843</cites><orcidid>0000-0002-0334-578X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/1742395320945210$$EPDF$$P50$$Gsage$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/1742395320945210$$EHTML$$P50$$Gsage$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,21819,27924,27925,30999,43621,43622</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32722917$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sweeting, Fay</creatorcontrib><creatorcontrib>Arden-Close, Emily</creatorcontrib><title>The impact of Behçet’s disease on intimate relationships in women: A qualitative study</title><title>Chronic illness</title><addtitle>Chronic Illn</addtitle><description>Objective
Behçet’s disease is a rare and incurable condition where the body’s immune system attacks healthy tissue. Behçet’s can cause blood clots and ulcerations to form in every organ and system in the body, including deep and painful genital ulceration. The psychological impact of the disease on intimacy and relationships is unexplored. This study aimed to explore how the disease impacts on female patients’ intimate partner relationships.
Methods
Participants were seven female, UK patients with Behçet’s disease who were in committed relationships. In depth, semi-structured interviews lasting approximately 80 minutes were conducted via video conferencing about participants’ sexual functioning and intimate relationships. Data was analysed using Interpretative Phenomenological Analysis.
Results
Patients’ sexual relationships and intimacy were impacted by issues due to lack of knowledge of symptoms (misdiagnosis of herpes), issues due to symptoms (genital manifestations, painful sex, exhaustion), difficulties communicating with medical professionals, medication, partner support, and support from fellow Behçet’s patients.
Discussion
Female Behçet’s patients are at risk of developing psychological problems with intimacy due to symptoms, lack of knowledge of symptoms, and negative impacts of medication. Intimacy needs to be discussed in medical consultations so these issues can be addressed before a lack of intimacy negatively impacts relationships.</description><subject>Behcet Syndrome - complications</subject><subject>Behcet Syndrome - diagnosis</subject><subject>Behcet Syndrome - psychology</subject><subject>Behcet's syndrome</subject><subject>Dating</subject><subject>Drugs</subject><subject>Fatigue</subject><subject>Female</subject><subject>Females</subject><subject>Humans</subject><subject>Immune system</subject><subject>Interpretative phenomenological analysis</subject><subject>Intimacy</subject><subject>Medical personnel</subject><subject>Misdiagnosis</subject><subject>Pain - etiology</subject><subject>Partners</subject><subject>Psychological problems</subject><subject>Qualitative Research</subject><subject>Sexual behavior</subject><subject>Sexual functioning</subject><subject>Social support</subject><subject>Symptoms</subject><subject>Vein & artery diseases</subject><subject>Video conferencing</subject><subject>Women</subject><subject>Womens health</subject><issn>1742-3953</issn><issn>1745-9206</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>AFRWT</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kU1uFDEQhS0EIiGwZ4UssWHTYJf_xiyQQsSfFIlNWLCy3O6ajKPu9qTtTpQd1-AEHISbcBLcTAgQiZWtel89V_kR8piz55wb84IbCcIqAcxKBZzdIfu1pBoLTN_9dYdm0ffIg5zPGJNaGHOf7AkwAJabffL5ZIM0DlsfCk1r-ho3379h-fHla6ZdzOgz0jTSOJY4-IJ0wt6XmMa8idtcy_QyDTi-pIf0fPZ9LFW8QJrL3F09JPfWvs_46Po8IJ_evjk5et8cf3z34ejwuAlSQ2lAig4Ddp4Z1jLBQHfCVGkdQFqOaMRKSY2t5toHC51pZRu0tq1SnVUrKQ7Iq53vdm4H7AKOZfK920514unKJR_dv8oYN-40XTjLl99YDJ5dG0zpfMZc3BBzwL73I6Y5O5Cwknyl1YI-vYWepXka63oOtAEtOVOqUmxHhSnlPOH6ZhjO3JKbu51bbXny9xI3Db-DqkCzA7I_xT-v_tfwJ7gloYM</recordid><startdate>20220601</startdate><enddate>20220601</enddate><creator>Sweeting, Fay</creator><creator>Arden-Close, Emily</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>AFRWT</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-0334-578X</orcidid></search><sort><creationdate>20220601</creationdate><title>The impact of Behçet’s disease on intimate relationships in women: A qualitative study</title><author>Sweeting, Fay ; Arden-Close, Emily</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c462t-243deceda070b03026d37c46fc2491ee738546eb616ac92d7b4bc669b55d95843</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Behcet Syndrome - complications</topic><topic>Behcet Syndrome - diagnosis</topic><topic>Behcet Syndrome - psychology</topic><topic>Behcet's syndrome</topic><topic>Dating</topic><topic>Drugs</topic><topic>Fatigue</topic><topic>Female</topic><topic>Females</topic><topic>Humans</topic><topic>Immune system</topic><topic>Interpretative phenomenological analysis</topic><topic>Intimacy</topic><topic>Medical personnel</topic><topic>Misdiagnosis</topic><topic>Pain - etiology</topic><topic>Partners</topic><topic>Psychological problems</topic><topic>Qualitative Research</topic><topic>Sexual behavior</topic><topic>Sexual functioning</topic><topic>Social support</topic><topic>Symptoms</topic><topic>Vein & artery diseases</topic><topic>Video conferencing</topic><topic>Women</topic><topic>Womens health</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Sweeting, Fay</creatorcontrib><creatorcontrib>Arden-Close, Emily</creatorcontrib><collection>SAGE Journals</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Chronic illness</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Sweeting, Fay</au><au>Arden-Close, Emily</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The impact of Behçet’s disease on intimate relationships in women: A qualitative study</atitle><jtitle>Chronic illness</jtitle><addtitle>Chronic Illn</addtitle><date>2022-06-01</date><risdate>2022</risdate><volume>18</volume><issue>2</issue><spage>255</spage><epage>267</epage><pages>255-267</pages><issn>1742-3953</issn><eissn>1745-9206</eissn><abstract>Objective
Behçet’s disease is a rare and incurable condition where the body’s immune system attacks healthy tissue. Behçet’s can cause blood clots and ulcerations to form in every organ and system in the body, including deep and painful genital ulceration. The psychological impact of the disease on intimacy and relationships is unexplored. This study aimed to explore how the disease impacts on female patients’ intimate partner relationships.
Methods
Participants were seven female, UK patients with Behçet’s disease who were in committed relationships. In depth, semi-structured interviews lasting approximately 80 minutes were conducted via video conferencing about participants’ sexual functioning and intimate relationships. Data was analysed using Interpretative Phenomenological Analysis.
Results
Patients’ sexual relationships and intimacy were impacted by issues due to lack of knowledge of symptoms (misdiagnosis of herpes), issues due to symptoms (genital manifestations, painful sex, exhaustion), difficulties communicating with medical professionals, medication, partner support, and support from fellow Behçet’s patients.
Discussion
Female Behçet’s patients are at risk of developing psychological problems with intimacy due to symptoms, lack of knowledge of symptoms, and negative impacts of medication. Intimacy needs to be discussed in medical consultations so these issues can be addressed before a lack of intimacy negatively impacts relationships.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>32722917</pmid><doi>10.1177/1742395320945210</doi><tpages>13</tpages><orcidid>https://orcid.org/0000-0002-0334-578X</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Chronic illness, 2022-06, Vol.18 (2), p.255-267 |
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| subjects | Behcet Syndrome - complications Behcet Syndrome - diagnosis Behcet Syndrome - psychology Behcet's syndrome Dating Drugs Fatigue Female Females Humans Immune system Interpretative phenomenological analysis Intimacy Medical personnel Misdiagnosis Pain - etiology Partners Psychological problems Qualitative Research Sexual behavior Sexual functioning Social support Symptoms Vein & artery diseases Video conferencing Women Womens health |
| title | The impact of Behçet’s disease on intimate relationships in women: A qualitative study |
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