COVID-19: Impact on Pediatric Palliative Care
Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. To explore the impact of the COVID-19 pandemic and lockdowns on th...
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| Veröffentlicht in: | Journal of pain and symptom management 2022-07, Vol.64 (1), p.e1-e5 |
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| creator | Scott, Hannah May Coombes, Lucy Braybrook, Debbie Roach, Anna Harðardóttir, Daney Bristowe, Katherine Ellis-Smith, Clare Higginson, Irene Gao, Wei Bluebond-Langner, Myra Farsides, Bobbie Murtagh, Fliss EM Fraser, Lorna K Harding, Richard |
| description | Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations.
To explore the impact of the COVID-19 pandemic and lockdowns on this population.
Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.
COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.
Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays. |
| doi_str_mv | 10.1016/j.jpainsymman.2022.02.330 |
| format | Article |
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To explore the impact of the COVID-19 pandemic and lockdowns on this population.
Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.
COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.
Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.</description><identifier>ISSN: 0885-3924</identifier><identifier>EISSN: 1873-6513</identifier><identifier>DOI: 10.1016/j.jpainsymman.2022.02.330</identifier><identifier>PMID: 35231592</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Adolescent ; Brief Report ; Child ; Children ; Clinical outcomes ; Communicable Disease Control ; Coronaviruses ; COVID-19 ; Disruption ; Family - psychology ; Humans ; Interviews ; Life threatening ; Medical personnel ; Pain ; Palliative care ; Palliative Care - psychology ; Pandemics ; Pediatrics ; Psychological distress ; Siblings ; Social participation ; Social support ; Youth</subject><ispartof>Journal of pain and symptom management, 2022-07, Vol.64 (1), p.e1-e5</ispartof><rights>2022 The Authors</rights><rights>Copyright © 2022 The Authors. Published by Elsevier Inc. All rights reserved.</rights><rights>Copyright Elsevier Limited Jul 2022</rights><rights>2022 The Authors 2022</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4260-1595e4f4d6dde8dc43ed4b26fe456ac51f18bac252a7c9c09747bd9db84dd9f3</citedby><cites>FETCH-LOGICAL-c4260-1595e4f4d6dde8dc43ed4b26fe456ac51f18bac252a7c9c09747bd9db84dd9f3</cites><orcidid>0000-0003-1243-3500 ; 0000-0003-3453-3203 ; 0000-0003-1809-217X ; 0000-0003-1289-3726 ; 0000-0002-3687-1313</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S0885392422004225$$EHTML$$P50$$Gelsevier$$Hfree_for_read</linktohtml><link.rule.ids>230,314,776,780,881,3536,27903,27904,30978,65309</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/35231592$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Scott, Hannah May</creatorcontrib><creatorcontrib>Coombes, Lucy</creatorcontrib><creatorcontrib>Braybrook, Debbie</creatorcontrib><creatorcontrib>Roach, Anna</creatorcontrib><creatorcontrib>Harðardóttir, Daney</creatorcontrib><creatorcontrib>Bristowe, Katherine</creatorcontrib><creatorcontrib>Ellis-Smith, Clare</creatorcontrib><creatorcontrib>Higginson, Irene</creatorcontrib><creatorcontrib>Gao, Wei</creatorcontrib><creatorcontrib>Bluebond-Langner, Myra</creatorcontrib><creatorcontrib>Farsides, Bobbie</creatorcontrib><creatorcontrib>Murtagh, Fliss EM</creatorcontrib><creatorcontrib>Fraser, Lorna K</creatorcontrib><creatorcontrib>Harding, Richard</creatorcontrib><title>COVID-19: Impact on Pediatric Palliative Care</title><title>Journal of pain and symptom management</title><addtitle>J Pain Symptom Manage</addtitle><description>Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations.
To explore the impact of the COVID-19 pandemic and lockdowns on this population.
Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.
COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.
Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.</description><subject>Adolescent</subject><subject>Brief Report</subject><subject>Child</subject><subject>Children</subject><subject>Clinical outcomes</subject><subject>Communicable Disease Control</subject><subject>Coronaviruses</subject><subject>COVID-19</subject><subject>Disruption</subject><subject>Family - psychology</subject><subject>Humans</subject><subject>Interviews</subject><subject>Life threatening</subject><subject>Medical personnel</subject><subject>Pain</subject><subject>Palliative care</subject><subject>Palliative Care - psychology</subject><subject>Pandemics</subject><subject>Pediatrics</subject><subject>Psychological distress</subject><subject>Siblings</subject><subject>Social participation</subject><subject>Social support</subject><subject>Youth</subject><issn>0885-3924</issn><issn>1873-6513</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNkUtP3DAURq2KqkwpfwEFsekmwe_YLCqh9DUSEiwQW8uxb1pHeQx2ZiT-fY0GEHTFypZ87ud770HolOCKYCLP-6rf2DClh3G0U0UxpRWmFWP4A1oRVbNSCsIO0AorJUqmKT9En1PqMcaCSfYJHTJBGRGarlDZXN-tv5dEXxTrcWPdUsxTcQM-2CUGV9zYYcjXsIOisRG-oI-dHRIcP51H6Pbnj9vmd3l1_WvdXF6VjlOJyxwtgHfcS-9BeccZeN5S2QEX0jpBOqJa66igtnbaYV3zuvXat4p7rzt2hL7tYzfbdgTvYFqiHcwmhtHGBzPbYN6-TOGv-TPvjFKKcEpywNengDjfbyEtZgzJwTDYCeZtMlTmDXDOpczo2X9oP2_jlKfLlJKUaKHrTOk95eKcUoTupRmCzaMT05tXTsyjE4OpyU5y7cnraV4qnyVkoNkDkFe6CxBNcgEmly1EcIvxc3jHN_8AbT6iZA</recordid><startdate>20220701</startdate><enddate>20220701</enddate><creator>Scott, Hannah May</creator><creator>Coombes, Lucy</creator><creator>Braybrook, Debbie</creator><creator>Roach, Anna</creator><creator>Harðardóttir, Daney</creator><creator>Bristowe, Katherine</creator><creator>Ellis-Smith, Clare</creator><creator>Higginson, Irene</creator><creator>Gao, Wei</creator><creator>Bluebond-Langner, Myra</creator><creator>Farsides, Bobbie</creator><creator>Murtagh, Fliss EM</creator><creator>Fraser, Lorna K</creator><creator>Harding, Richard</creator><general>Elsevier Inc</general><general>Elsevier Limited</general><general>The Authors. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine</general><scope>6I.</scope><scope>AAFTH</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-1243-3500</orcidid><orcidid>https://orcid.org/0000-0003-3453-3203</orcidid><orcidid>https://orcid.org/0000-0003-1809-217X</orcidid><orcidid>https://orcid.org/0000-0003-1289-3726</orcidid><orcidid>https://orcid.org/0000-0002-3687-1313</orcidid></search><sort><creationdate>20220701</creationdate><title>COVID-19: Impact on Pediatric Palliative Care</title><author>Scott, Hannah May ; Coombes, Lucy ; Braybrook, Debbie ; Roach, Anna ; Harðardóttir, Daney ; Bristowe, Katherine ; Ellis-Smith, Clare ; Higginson, Irene ; Gao, Wei ; Bluebond-Langner, Myra ; Farsides, Bobbie ; Murtagh, Fliss EM ; Fraser, Lorna K ; Harding, Richard</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4260-1595e4f4d6dde8dc43ed4b26fe456ac51f18bac252a7c9c09747bd9db84dd9f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Adolescent</topic><topic>Brief Report</topic><topic>Child</topic><topic>Children</topic><topic>Clinical outcomes</topic><topic>Communicable Disease Control</topic><topic>Coronaviruses</topic><topic>COVID-19</topic><topic>Disruption</topic><topic>Family - psychology</topic><topic>Humans</topic><topic>Interviews</topic><topic>Life threatening</topic><topic>Medical personnel</topic><topic>Pain</topic><topic>Palliative care</topic><topic>Palliative Care - psychology</topic><topic>Pandemics</topic><topic>Pediatrics</topic><topic>Psychological distress</topic><topic>Siblings</topic><topic>Social participation</topic><topic>Social support</topic><topic>Youth</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Scott, Hannah May</creatorcontrib><creatorcontrib>Coombes, Lucy</creatorcontrib><creatorcontrib>Braybrook, Debbie</creatorcontrib><creatorcontrib>Roach, Anna</creatorcontrib><creatorcontrib>Harðardóttir, Daney</creatorcontrib><creatorcontrib>Bristowe, Katherine</creatorcontrib><creatorcontrib>Ellis-Smith, Clare</creatorcontrib><creatorcontrib>Higginson, Irene</creatorcontrib><creatorcontrib>Gao, Wei</creatorcontrib><creatorcontrib>Bluebond-Langner, Myra</creatorcontrib><creatorcontrib>Farsides, Bobbie</creatorcontrib><creatorcontrib>Murtagh, Fliss EM</creatorcontrib><creatorcontrib>Fraser, Lorna K</creatorcontrib><creatorcontrib>Harding, Richard</creatorcontrib><collection>ScienceDirect Open Access Titles</collection><collection>Elsevier:ScienceDirect:Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of pain and symptom management</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Scott, Hannah May</au><au>Coombes, Lucy</au><au>Braybrook, Debbie</au><au>Roach, Anna</au><au>Harðardóttir, Daney</au><au>Bristowe, Katherine</au><au>Ellis-Smith, Clare</au><au>Higginson, Irene</au><au>Gao, Wei</au><au>Bluebond-Langner, Myra</au><au>Farsides, Bobbie</au><au>Murtagh, Fliss EM</au><au>Fraser, Lorna K</au><au>Harding, Richard</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>COVID-19: Impact on Pediatric Palliative Care</atitle><jtitle>Journal of pain and symptom management</jtitle><addtitle>J Pain Symptom Manage</addtitle><date>2022-07-01</date><risdate>2022</risdate><volume>64</volume><issue>1</issue><spage>e1</spage><epage>e5</epage><pages>e1-e5</pages><issn>0885-3924</issn><eissn>1873-6513</eissn><abstract>Children and young people with life-limiting or life-threatening conditions and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations.
To explore the impact of the COVID-19 pandemic and lockdowns on this population.
Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. One hundred and six United Kingdom-wide purposively-sampled Children and young people with life-limiting or life-threatening conditions, parent/carers, siblings, health professionals, and commissioners.
COVID-19 was raised by participants in 12/44 interviews conducted after the United Kingdom’s first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress.
Continued delivery of child- and family-centered palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring cordination for families facing multiagency delays.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>35231592</pmid><doi>10.1016/j.jpainsymman.2022.02.330</doi><orcidid>https://orcid.org/0000-0003-1243-3500</orcidid><orcidid>https://orcid.org/0000-0003-3453-3203</orcidid><orcidid>https://orcid.org/0000-0003-1809-217X</orcidid><orcidid>https://orcid.org/0000-0003-1289-3726</orcidid><orcidid>https://orcid.org/0000-0002-3687-1313</orcidid><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 0885-3924 |
| ispartof | Journal of pain and symptom management, 2022-07, Vol.64 (1), p.e1-e5 |
| issn | 0885-3924 1873-6513 |
| language | eng |
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| source | MEDLINE; Elsevier ScienceDirect Journals; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Adolescent Brief Report Child Children Clinical outcomes Communicable Disease Control Coronaviruses COVID-19 Disruption Family - psychology Humans Interviews Life threatening Medical personnel Pain Palliative care Palliative Care - psychology Pandemics Pediatrics Psychological distress Siblings Social participation Social support Youth |
| title | COVID-19: Impact on Pediatric Palliative Care |
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