Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)
IntroductionTransgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HI...
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| creator | Mora, Marion Rincon, Giovanna Bourrelly, Michel Maradan, Gwenaëlle Freire Maresca, Anaenza Michard, Florence Rouveix, Elisabeth Pannetier, Julie Leriche, Diane Alain, Tristan Yazdanpanah, Yazdan Michels, David Spire, Bruno |
| description | IntroductionTransgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysisANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and disseminationANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration numberNCT04849767. |
| doi_str_mv | 10.1136/bmjopen-2021-052691 |
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This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysisANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and disseminationANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration numberNCT04849767.</description><identifier>ISSN: 2044-6055</identifier><identifier>EISSN: 2044-6055</identifier><identifier>DOI: 10.1136/bmjopen-2021-052691</identifier><identifier>PMID: 34916316</identifier><language>eng</language><publisher>England: British Medical Journal Publishing Group</publisher><subject>Acquired immune deficiency syndrome ; AIDS ; Critical Pathways ; Cross-Sectional Studies ; Data collection ; Employment ; epidemiology ; Female ; Gender Identity ; Health care ; HIV ; HIV & AIDS ; HIV Infections - epidemiology ; HIV Infections - therapy ; Hospitals ; Human immunodeficiency virus ; Humans ; Infections ; Life Sciences ; Male ; Men ; Population ; Public health ; Retrospective Studies ; Sexual health ; Sexual orientation discrimination ; Social Conditions ; Surgery ; Systematic review ; Transgender Persons</subject><ispartof>BMJ open, 2021-12, Vol.11 (12), p.e052691-e052691</ispartof><rights>Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.</rights><rights>2021 Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ . Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>Distributed under a Creative Commons Attribution 4.0 International License</rights><rights>Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b576t-e943d3a87071eba649ee481db095e6770b43806fbad1096b388a10392307d4043</citedby><cites>FETCH-LOGICAL-b576t-e943d3a87071eba649ee481db095e6770b43806fbad1096b388a10392307d4043</cites><orcidid>0000-0001-7543-6982 ; 0000-0002-7809-783X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://bmjopen.bmj.com/content/11/12/e052691.full.pdf$$EPDF$$P50$$Gbmj$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://bmjopen.bmj.com/content/11/12/e052691.full$$EHTML$$P50$$Gbmj$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,864,885,2102,27924,27925,53791,53793,55350,77660,77686</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34916316$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink><backlink>$$Uhttps://inserm.hal.science/inserm-03647498$$DView record in HAL$$Hfree_for_read</backlink></links><search><creatorcontrib>Mora, Marion</creatorcontrib><creatorcontrib>Rincon, Giovanna</creatorcontrib><creatorcontrib>Bourrelly, Michel</creatorcontrib><creatorcontrib>Maradan, Gwenaëlle</creatorcontrib><creatorcontrib>Freire Maresca, Anaenza</creatorcontrib><creatorcontrib>Michard, Florence</creatorcontrib><creatorcontrib>Rouveix, Elisabeth</creatorcontrib><creatorcontrib>Pannetier, Julie</creatorcontrib><creatorcontrib>Leriche, Diane</creatorcontrib><creatorcontrib>Alain, Tristan</creatorcontrib><creatorcontrib>Yazdanpanah, Yazdan</creatorcontrib><creatorcontrib>Michels, David</creatorcontrib><creatorcontrib>Spire, Bruno</creatorcontrib><title>Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)</title><title>BMJ open</title><addtitle>BMJ Open</addtitle><addtitle>BMJ Open</addtitle><description>IntroductionTransgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysisANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and disseminationANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration numberNCT04849767.</description><subject>Acquired immune deficiency syndrome</subject><subject>AIDS</subject><subject>Critical Pathways</subject><subject>Cross-Sectional Studies</subject><subject>Data collection</subject><subject>Employment</subject><subject>epidemiology</subject><subject>Female</subject><subject>Gender Identity</subject><subject>Health care</subject><subject>HIV</subject><subject>HIV & AIDS</subject><subject>HIV Infections - epidemiology</subject><subject>HIV Infections - therapy</subject><subject>Hospitals</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Infections</subject><subject>Life Sciences</subject><subject>Male</subject><subject>Men</subject><subject>Population</subject><subject>Public health</subject><subject>Retrospective Studies</subject><subject>Sexual health</subject><subject>Sexual orientation discrimination</subject><subject>Social Conditions</subject><subject>Surgery</subject><subject>Systematic review</subject><subject>Transgender 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conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)</title><author>Mora, Marion ; Rincon, Giovanna ; Bourrelly, Michel ; Maradan, Gwenaëlle ; Freire Maresca, Anaenza ; Michard, Florence ; Rouveix, Elisabeth ; Pannetier, Julie ; Leriche, Diane ; Alain, Tristan ; Yazdanpanah, Yazdan ; Michels, David ; Spire, Bruno</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b576t-e943d3a87071eba649ee481db095e6770b43806fbad1096b388a10392307d4043</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Acquired immune deficiency syndrome</topic><topic>AIDS</topic><topic>Critical Pathways</topic><topic>Cross-Sectional Studies</topic><topic>Data collection</topic><topic>Employment</topic><topic>epidemiology</topic><topic>Female</topic><topic>Gender Identity</topic><topic>Health care</topic><topic>HIV</topic><topic>HIV & AIDS</topic><topic>HIV Infections - epidemiology</topic><topic>HIV Infections - therapy</topic><topic>Hospitals</topic><topic>Human immunodeficiency virus</topic><topic>Humans</topic><topic>Infections</topic><topic>Life Sciences</topic><topic>Male</topic><topic>Men</topic><topic>Population</topic><topic>Public health</topic><topic>Retrospective Studies</topic><topic>Sexual health</topic><topic>Sexual orientation discrimination</topic><topic>Social Conditions</topic><topic>Surgery</topic><topic>Systematic review</topic><topic>Transgender Persons</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mora, Marion</creatorcontrib><creatorcontrib>Rincon, Giovanna</creatorcontrib><creatorcontrib>Bourrelly, Michel</creatorcontrib><creatorcontrib>Maradan, Gwenaëlle</creatorcontrib><creatorcontrib>Freire Maresca, Anaenza</creatorcontrib><creatorcontrib>Michard, 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Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mora, Marion</au><au>Rincon, Giovanna</au><au>Bourrelly, Michel</au><au>Maradan, Gwenaëlle</au><au>Freire Maresca, Anaenza</au><au>Michard, Florence</au><au>Rouveix, Elisabeth</au><au>Pannetier, Julie</au><au>Leriche, Diane</au><au>Alain, Tristan</au><au>Yazdanpanah, Yazdan</au><au>Michels, David</au><au>Spire, Bruno</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)</atitle><jtitle>BMJ open</jtitle><stitle>BMJ Open</stitle><addtitle>BMJ Open</addtitle><date>2021-12-01</date><risdate>2021</risdate><volume>11</volume><issue>12</issue><spage>e052691</spage><epage>e052691</epage><pages>e052691-e052691</pages><issn>2044-6055</issn><eissn>2044-6055</eissn><abstract>IntroductionTransgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysisANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and disseminationANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration numberNCT04849767.</abstract><cop>England</cop><pub>British Medical Journal Publishing Group</pub><pmid>34916316</pmid><doi>10.1136/bmjopen-2021-052691</doi><orcidid>https://orcid.org/0000-0001-7543-6982</orcidid><orcidid>https://orcid.org/0000-0002-7809-783X</orcidid><oa>free_for_read</oa></addata></record> |
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| source | BMJ Open Access Journals; MEDLINE; DOAJ Directory of Open Access Journals; PubMed Central Open Access; EZB-FREE-00999 freely available EZB journals; PubMed Central |
| subjects | Acquired immune deficiency syndrome AIDS Critical Pathways Cross-Sectional Studies Data collection Employment epidemiology Female Gender Identity Health care HIV HIV & AIDS HIV Infections - epidemiology HIV Infections - therapy Hospitals Human immunodeficiency virus Humans Infections Life Sciences Male Men Population Public health Retrospective Studies Sexual health Sexual orientation discrimination Social Conditions Surgery Systematic review Transgender Persons |
| title | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-25T04%3A47%3A59IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_doaj_&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Living%20conditions,%20HIV%20and%20gender%20affirmation%20care%20pathways%20of%20transgender%20people%20living%20with%20HIV%20in%20France:%20a%20nationwide,%20comprehensive,%20cross-sectional,%20community-based%20research%20protocol%20(ANRS%20Trans&HIV)&rft.jtitle=BMJ%20open&rft.au=Mora,%20Marion&rft.date=2021-12-01&rft.volume=11&rft.issue=12&rft.spage=e052691&rft.epage=e052691&rft.pages=e052691-e052691&rft.issn=2044-6055&rft.eissn=2044-6055&rft_id=info:doi/10.1136/bmjopen-2021-052691&rft_dat=%3Cproquest_doaj_%3E2610724179%3C/proquest_doaj_%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2610724179&rft_id=info:pmid/34916316&rft_doaj_id=oai_doaj_org_article_9f863e38fd0a47aab7c409460ddcd649&rfr_iscdi=true |