Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs
Objectives The caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sampl...
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| Veröffentlicht in: | Maternal and child health journal 2021-12, Vol.25 (12), p.1992-2001 |
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| container_end_page | 2001 |
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| container_issue | 12 |
| container_start_page | 1992 |
| container_title | Maternal and child health journal |
| container_volume | 25 |
| creator | Lynch, Allyson Raziano, Valerie Feehan, Katie Thompson, Eileen Massey, Philip Turchi, Renee |
| description | Objectives
The caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sample of male caregivers of CYSHCN.
Methods
This mixed-methods study recruited a convenience sample of 30 men with CYSHCN who receive care for a chronic medical condition from primary care medical homes in Pennsylvania. We conducted semi-structured interviews (SSI), administered quantitative surveys to caregivers, and produced a thematic analysis. The SSI explored the health needs of male caregivers, assessed attitudes toward and preferences regarding supportive resources, and garnered their advice to other caregivers regarding parenting and health care system navigation.
Results
Participants’ median age is 41 years (IQR: 33, 44), and most (80%) reside full time with their CYSHCN. Most male caregivers deprioritized their own emotional, mental, and physical health needs to support the needs of their families. Many male caregivers articulated interest in seeking emotionally supportive resources (not time-intensive). They advised other male caregivers to remain involved in the medical care and wellbeing of their CYSCHN and to openly seek and receive emotional support despite the daily challenges they face.
Conclusions for Practice
Male caregivers of CYSHCN experience intense daily stress and express the need for emotionally supportive resources. Programs designed to facilitate such support may benefit from flexible formats (time and location) and involve male caregivers of CYSHCN as both facilitators and participants. |
| doi_str_mv | 10.1007/s10995-021-03248-7 |
| format | Article |
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The caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sample of male caregivers of CYSHCN.
Methods
This mixed-methods study recruited a convenience sample of 30 men with CYSHCN who receive care for a chronic medical condition from primary care medical homes in Pennsylvania. We conducted semi-structured interviews (SSI), administered quantitative surveys to caregivers, and produced a thematic analysis. The SSI explored the health needs of male caregivers, assessed attitudes toward and preferences regarding supportive resources, and garnered their advice to other caregivers regarding parenting and health care system navigation.
Results
Participants’ median age is 41 years (IQR: 33, 44), and most (80%) reside full time with their CYSHCN. Most male caregivers deprioritized their own emotional, mental, and physical health needs to support the needs of their families. Many male caregivers articulated interest in seeking emotionally supportive resources (not time-intensive). They advised other male caregivers to remain involved in the medical care and wellbeing of their CYSCHN and to openly seek and receive emotional support despite the daily challenges they face.
Conclusions for Practice
Male caregivers of CYSHCN experience intense daily stress and express the need for emotionally supportive resources. Programs designed to facilitate such support may benefit from flexible formats (time and location) and involve male caregivers of CYSHCN as both facilitators and participants.</description><identifier>ISSN: 1092-7875</identifier><identifier>EISSN: 1573-6628</identifier><identifier>DOI: 10.1007/s10995-021-03248-7</identifier><identifier>PMID: 34652597</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Adolescent ; Caregivers ; Child ; Child Health Services ; Children & youth ; Childrens health ; Chronic Disease ; Demographic aspects ; Families & family life ; Gynecology ; Health aspects ; Health care ; Health Services Needs and Demand ; Humans ; Interviews ; Male ; Maternal & child health ; Maternal and Child Health ; Medical care ; Medicine ; Medicine & Public Health ; Mixed methods research ; Needs assessment ; Parents & parenting ; Pediatrics ; Population Economics ; Primary care ; Psychological aspects ; Public Health ; Qualitative research ; Social Support ; Sociology ; Surveys and Questionnaires</subject><ispartof>Maternal and child health journal, 2021-12, Vol.25 (12), p.1992-2001</ispartof><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2021</rights><rights>2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.</rights><rights>COPYRIGHT 2021 Springer</rights><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2021.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c610t-7b9c1f59608f04768fc762091323812c51095614b4cd5a4ec9916426cd3f2db13</citedby><cites>FETCH-LOGICAL-c610t-7b9c1f59608f04768fc762091323812c51095614b4cd5a4ec9916426cd3f2db13</cites><orcidid>0000-0001-7441-997X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10995-021-03248-7$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10995-021-03248-7$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>230,314,776,780,881,27903,27904,41467,42536,51297</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34652597$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Lynch, Allyson</creatorcontrib><creatorcontrib>Raziano, Valerie</creatorcontrib><creatorcontrib>Feehan, Katie</creatorcontrib><creatorcontrib>Thompson, Eileen</creatorcontrib><creatorcontrib>Massey, Philip</creatorcontrib><creatorcontrib>Turchi, Renee</creatorcontrib><title>Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs</title><title>Maternal and child health journal</title><addtitle>Matern Child Health J</addtitle><addtitle>Matern Child Health J</addtitle><description>Objectives
The caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sample of male caregivers of CYSHCN.
Methods
This mixed-methods study recruited a convenience sample of 30 men with CYSHCN who receive care for a chronic medical condition from primary care medical homes in Pennsylvania. We conducted semi-structured interviews (SSI), administered quantitative surveys to caregivers, and produced a thematic analysis. The SSI explored the health needs of male caregivers, assessed attitudes toward and preferences regarding supportive resources, and garnered their advice to other caregivers regarding parenting and health care system navigation.
Results
Participants’ median age is 41 years (IQR: 33, 44), and most (80%) reside full time with their CYSHCN. Most male caregivers deprioritized their own emotional, mental, and physical health needs to support the needs of their families. Many male caregivers articulated interest in seeking emotionally supportive resources (not time-intensive). They advised other male caregivers to remain involved in the medical care and wellbeing of their CYSCHN and to openly seek and receive emotional support despite the daily challenges they face.
Conclusions for Practice
Male caregivers of CYSHCN experience intense daily stress and express the need for emotionally supportive resources. Programs designed to facilitate such support may benefit from flexible formats (time and location) and involve male caregivers of CYSHCN as both facilitators and participants.</description><subject>Adolescent</subject><subject>Caregivers</subject><subject>Child</subject><subject>Child Health Services</subject><subject>Children & youth</subject><subject>Childrens health</subject><subject>Chronic Disease</subject><subject>Demographic aspects</subject><subject>Families & family life</subject><subject>Gynecology</subject><subject>Health aspects</subject><subject>Health care</subject><subject>Health Services Needs and Demand</subject><subject>Humans</subject><subject>Interviews</subject><subject>Male</subject><subject>Maternal & child health</subject><subject>Maternal and Child Health</subject><subject>Medical care</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Mixed methods research</subject><subject>Needs assessment</subject><subject>Parents & parenting</subject><subject>Pediatrics</subject><subject>Population Economics</subject><subject>Primary care</subject><subject>Psychological aspects</subject><subject>Public Health</subject><subject>Qualitative research</subject><subject>Social Support</subject><subject>Sociology</subject><subject>Surveys and Questionnaires</subject><issn>1092-7875</issn><issn>1573-6628</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNp9kl1rFDEUhgdRbK3-AS9kQBBvpub740Yoi1qh6kXthVchmzkzmzKbrMlMxX9vdqe2XVkkkM_nfU9ycqrqJUanGCH5LmOkNW8QwQ2ihKlGPqqOMZe0EYKox2WONGmkkvyoepbzNUJFhtjT6ogywQnX8ri6vAprGOuvAG2uY1d_sQPUC5ug9zeQdluLlR_aBKG2oa1_xGlc1b986S434Lwd6nOwQ1luRbPP8-pJZ4cML27Hk-rq44fvi_Pm4tunz4uzi8YJjMZGLrXDHdcCqQ4xKVTnpCBIY0qowsTxcn0uMFsy13LLwGmNBSPCtbQj7RLTk-r97LuZlmtoHYQx2cFskl_b9NtE683-SfAr08cbozhWRKJi8PbWIMWfE-TRrH12MAw2QJyyIVwRhRTFuqCv_0Gv45RCeV6htKIIa0bvqb6k0fjQxRLXbU3NmSgQwQxvwzYHqB4ClEvGAJ0v23v86QG-tBbW3h0UvHkgWO3-J8dhGn0MeR8kM-hSzDlBd5c8jMy2xsxcY6bwZldjRhbRq4dpv5P8LaoC0BnI5Sj0kO5z9R_bP4zE12A</recordid><startdate>20211201</startdate><enddate>20211201</enddate><creator>Lynch, Allyson</creator><creator>Raziano, Valerie</creator><creator>Feehan, Katie</creator><creator>Thompson, Eileen</creator><creator>Massey, Philip</creator><creator>Turchi, Renee</creator><general>Springer US</general><general>Springer</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9-</scope><scope>K9.</scope><scope>KB0</scope><scope>M0R</scope><scope>M0S</scope><scope>M1P</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0001-7441-997X</orcidid></search><sort><creationdate>20211201</creationdate><title>Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs</title><author>Lynch, Allyson ; Raziano, Valerie ; Feehan, Katie ; Thompson, Eileen ; Massey, Philip ; Turchi, Renee</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c610t-7b9c1f59608f04768fc762091323812c51095614b4cd5a4ec9916426cd3f2db13</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adolescent</topic><topic>Caregivers</topic><topic>Child</topic><topic>Child Health Services</topic><topic>Children & youth</topic><topic>Childrens health</topic><topic>Chronic Disease</topic><topic>Demographic aspects</topic><topic>Families & family life</topic><topic>Gynecology</topic><topic>Health aspects</topic><topic>Health care</topic><topic>Health Services Needs and Demand</topic><topic>Humans</topic><topic>Interviews</topic><topic>Male</topic><topic>Maternal & child health</topic><topic>Maternal and Child Health</topic><topic>Medical care</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Mixed methods research</topic><topic>Needs assessment</topic><topic>Parents & parenting</topic><topic>Pediatrics</topic><topic>Population Economics</topic><topic>Primary care</topic><topic>Psychological aspects</topic><topic>Public Health</topic><topic>Qualitative research</topic><topic>Social Support</topic><topic>Sociology</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Lynch, Allyson</creatorcontrib><creatorcontrib>Raziano, Valerie</creatorcontrib><creatorcontrib>Feehan, Katie</creatorcontrib><creatorcontrib>Thompson, Eileen</creatorcontrib><creatorcontrib>Massey, Philip</creatorcontrib><creatorcontrib>Turchi, Renee</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>Consumer Health Database (Alumni Edition)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Consumer Health Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Maternal and child health journal</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Lynch, Allyson</au><au>Raziano, Valerie</au><au>Feehan, Katie</au><au>Thompson, Eileen</au><au>Massey, Philip</au><au>Turchi, Renee</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs</atitle><jtitle>Maternal and child health journal</jtitle><stitle>Matern Child Health J</stitle><addtitle>Matern Child Health J</addtitle><date>2021-12-01</date><risdate>2021</risdate><volume>25</volume><issue>12</issue><spage>1992</spage><epage>2001</epage><pages>1992-2001</pages><issn>1092-7875</issn><eissn>1573-6628</eissn><abstract>Objectives
The caregiving experiences and unique health needs of male caregivers of children and youth with special health care needs (CYSHCN) are not well described. This study seeks to understand potential unmet health needs and attitudes toward supportive resources from the perspective of a sample of male caregivers of CYSHCN.
Methods
This mixed-methods study recruited a convenience sample of 30 men with CYSHCN who receive care for a chronic medical condition from primary care medical homes in Pennsylvania. We conducted semi-structured interviews (SSI), administered quantitative surveys to caregivers, and produced a thematic analysis. The SSI explored the health needs of male caregivers, assessed attitudes toward and preferences regarding supportive resources, and garnered their advice to other caregivers regarding parenting and health care system navigation.
Results
Participants’ median age is 41 years (IQR: 33, 44), and most (80%) reside full time with their CYSHCN. Most male caregivers deprioritized their own emotional, mental, and physical health needs to support the needs of their families. Many male caregivers articulated interest in seeking emotionally supportive resources (not time-intensive). They advised other male caregivers to remain involved in the medical care and wellbeing of their CYSCHN and to openly seek and receive emotional support despite the daily challenges they face.
Conclusions for Practice
Male caregivers of CYSHCN experience intense daily stress and express the need for emotionally supportive resources. Programs designed to facilitate such support may benefit from flexible formats (time and location) and involve male caregivers of CYSHCN as both facilitators and participants.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>34652597</pmid><doi>10.1007/s10995-021-03248-7</doi><tpages>10</tpages><orcidid>https://orcid.org/0000-0001-7441-997X</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Maternal and child health journal, 2021-12, Vol.25 (12), p.1992-2001 |
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| source | MEDLINE; Springer Nature - Complete Springer Journals |
| subjects | Adolescent Caregivers Child Child Health Services Children & youth Childrens health Chronic Disease Demographic aspects Families & family life Gynecology Health aspects Health care Health Services Needs and Demand Humans Interviews Male Maternal & child health Maternal and Child Health Medical care Medicine Medicine & Public Health Mixed methods research Needs assessment Parents & parenting Pediatrics Population Economics Primary care Psychological aspects Public Health Qualitative research Social Support Sociology Surveys and Questionnaires |
| title | Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs |
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