Benefits of a Disease Management Program for Sickle Cell Disease in Germany 2011–2019: The Increased Use of Hydroxyurea Correlates with a Reduced Frequency of Acute Chest Syndrome

Sickle Cell Disease (SCD) is the most common monogenic disorder globally but qualifies as a rare disease in Germany. In 2012, the German Society for Paediatric Oncology and Haematology (GPOH) mandated a consortium of five university hospitals to develop a disease management program for patients with...

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Veröffentlicht in:	Journal of clinical medicine 2021-09, Vol.10 (19), p.4543
Hauptverfasser:	Kunz, Joachim B., Schlotmann, Andreas, Daubenbüchel, Andrea, Lobitz, Stephan, Jarisch, Andrea, Grosse, Regine, Cario, Holger, Oevermann, Lena, Hakimeh, Dani, Tagliaferri, Laura, Kulozik, Andreas E.
Format:	Artikel
Sprache:	eng
Schlagworte:	Age Blood Clinical medicine Disease management Epidemiology Family physicians Health insurance Noncitizens Patient admissions Pediatrics Population Rare diseases Sickle cell disease Teenagers
Online-Zugang:	Volltext
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