The Tele‐STELLA protocol: Telehealth‐based support for families living with later‐stage Alzheimer's disease
Aims We aim to establish the feasibility and acceptability of the Tele‐STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural sympto...
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| Veröffentlicht in: | Journal of advanced nursing 2021-10, Vol.77 (10), p.4254-4267 |
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| container_title | Journal of advanced nursing |
| container_volume | 77 |
| creator | Lindauer, Allison Messecar, Deborah McKenzie, Glenise Gibson, Allison Wharton, Whitney Bianchi, Allison Tarter, Robin Tadesse, Ruth Boardman, Charles Golonka, Ona Gothard, Sarah Dodge, Hiroko H. |
| description | Aims
We aim to establish the feasibility and acceptability of the Tele‐STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms.
Design
This is a multi‐component, quasi‐experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia.
Methods
Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8‐week videoconferencing components that address behavioural symptoms—in both the persons with Alzheimer's disease and their Care Partners. In the first component (‘Nova’), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component (‘Constellation’), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021.
Discussion
Tele‐STELLA fills a gap in current videoconference‐based psychoeducational interventions in that it offers real‐time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele‐STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial.
Impact
Tele‐STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele‐STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation.
Trial Registration
This trial is registered with ClinicalTrials.gov (#NCT04627662). |
| doi_str_mv | 10.1111/jan.14980 |
| format | Article |
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We aim to establish the feasibility and acceptability of the Tele‐STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms.
Design
This is a multi‐component, quasi‐experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia.
Methods
Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8‐week videoconferencing components that address behavioural symptoms—in both the persons with Alzheimer's disease and their Care Partners. In the first component (‘Nova’), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component (‘Constellation’), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021.
Discussion
Tele‐STELLA fills a gap in current videoconference‐based psychoeducational interventions in that it offers real‐time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele‐STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial.
Impact
Tele‐STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele‐STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation.
Trial Registration
This trial is registered with ClinicalTrials.gov (#NCT04627662).</description><identifier>ISSN: 0309-2402</identifier><identifier>EISSN: 1365-2648</identifier><identifier>DOI: 10.1111/jan.14980</identifier><identifier>PMID: 34288013</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Aging ; Alzheimer Disease - therapy ; Alzheimer's disease ; Behavior management ; Behavior Therapy ; caregiving ; Clinical trials ; Counseling ; Dementia ; Efficacy ; family care ; Feasibility ; Humans ; Intervention ; Nurses ; Peer relationships ; Quasi-experimental methods ; Reactivity ; Symptoms ; technology ; Telemedicine ; Video conferencing ; Video teleconferencing</subject><ispartof>Journal of advanced nursing, 2021-10, Vol.77 (10), p.4254-4267</ispartof><rights>2021 John Wiley & Sons Ltd</rights><rights>2021 John Wiley & Sons Ltd.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4430-47c18690a9e4653a3408c2b9627f6cbdfc25f6554f39185ba533cc0763ced1273</citedby><cites>FETCH-LOGICAL-c4430-47c18690a9e4653a3408c2b9627f6cbdfc25f6554f39185ba533cc0763ced1273</cites><orcidid>0000-0002-4488-3373</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjan.14980$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjan.14980$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>230,314,776,780,881,1411,27903,27904,30978,45553,45554</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34288013$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Lindauer, Allison</creatorcontrib><creatorcontrib>Messecar, Deborah</creatorcontrib><creatorcontrib>McKenzie, Glenise</creatorcontrib><creatorcontrib>Gibson, Allison</creatorcontrib><creatorcontrib>Wharton, Whitney</creatorcontrib><creatorcontrib>Bianchi, Allison</creatorcontrib><creatorcontrib>Tarter, Robin</creatorcontrib><creatorcontrib>Tadesse, Ruth</creatorcontrib><creatorcontrib>Boardman, Charles</creatorcontrib><creatorcontrib>Golonka, Ona</creatorcontrib><creatorcontrib>Gothard, Sarah</creatorcontrib><creatorcontrib>Dodge, Hiroko H.</creatorcontrib><title>The Tele‐STELLA protocol: Telehealth‐based support for families living with later‐stage Alzheimer's disease</title><title>Journal of advanced nursing</title><addtitle>J Adv Nurs</addtitle><description>Aims
We aim to establish the feasibility and acceptability of the Tele‐STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms.
Design
This is a multi‐component, quasi‐experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia.
Methods
Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8‐week videoconferencing components that address behavioural symptoms—in both the persons with Alzheimer's disease and their Care Partners. In the first component (‘Nova’), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component (‘Constellation’), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021.
Discussion
Tele‐STELLA fills a gap in current videoconference‐based psychoeducational interventions in that it offers real‐time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele‐STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial.
Impact
Tele‐STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele‐STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation.
Trial Registration
This trial is registered with ClinicalTrials.gov (#NCT04627662).</description><subject>Aging</subject><subject>Alzheimer Disease - therapy</subject><subject>Alzheimer's disease</subject><subject>Behavior management</subject><subject>Behavior Therapy</subject><subject>caregiving</subject><subject>Clinical trials</subject><subject>Counseling</subject><subject>Dementia</subject><subject>Efficacy</subject><subject>family care</subject><subject>Feasibility</subject><subject>Humans</subject><subject>Intervention</subject><subject>Nurses</subject><subject>Peer relationships</subject><subject>Quasi-experimental methods</subject><subject>Reactivity</subject><subject>Symptoms</subject><subject>technology</subject><subject>Telemedicine</subject><subject>Video conferencing</subject><subject>Video teleconferencing</subject><issn>0309-2402</issn><issn>1365-2648</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kctu1DAUhi0EokNhwQsgSyyARVpfE6cLpFFVbhrBgmFtOc7JxCMnntpJq3bVR-AZeRJMp1SAhDeWz_n06Rz_CD2n5Ijmc7w14xEVtSIP0ILyUhasFOohWhBO6oIJwg7Qk5S2hFDOGHuMDrhgSuXXAp2ve8Br8PDj5vvX9dlqtcS7GKZggz-5rfdg_NTnbmMStDjNu12IE-5CxJ0ZnHeQsHcXbtzgSzf12JsJYsbTZDaAl_66BzdAfJVw6xJkx1P0qDM-wbO7-xB9e3e2Pv1QrL68_3i6XBVWCE4KUVmqypqYGkQpueGCKMuaumRVV9qm7SyTXSml6HhNlWyM5NxaUpXcQktZxQ_R2713NzcDtBbGKRqvd9ENJl7pYJz-uzO6Xm_ChVYifyWlWfD6ThDD-Qxp0oNLFrw3I4Q5aSYlV1RxrjL68h90G-Y45vUyVfGKMKlYpt7sKRtDShG6-2Eo0b-C1DlIfRtkZl_8Of09-Tu5DBzvgUvn4er_Jv1p-Xmv_AnFDKrk</recordid><startdate>202110</startdate><enddate>202110</enddate><creator>Lindauer, Allison</creator><creator>Messecar, Deborah</creator><creator>McKenzie, Glenise</creator><creator>Gibson, Allison</creator><creator>Wharton, Whitney</creator><creator>Bianchi, Allison</creator><creator>Tarter, Robin</creator><creator>Tadesse, Ruth</creator><creator>Boardman, Charles</creator><creator>Golonka, Ona</creator><creator>Gothard, Sarah</creator><creator>Dodge, Hiroko H.</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-4488-3373</orcidid></search><sort><creationdate>202110</creationdate><title>The Tele‐STELLA protocol: Telehealth‐based support for families living with later‐stage Alzheimer's disease</title><author>Lindauer, Allison ; Messecar, Deborah ; McKenzie, Glenise ; Gibson, Allison ; Wharton, Whitney ; Bianchi, Allison ; Tarter, Robin ; Tadesse, Ruth ; Boardman, Charles ; Golonka, Ona ; Gothard, Sarah ; Dodge, Hiroko H.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4430-47c18690a9e4653a3408c2b9627f6cbdfc25f6554f39185ba533cc0763ced1273</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Aging</topic><topic>Alzheimer Disease - therapy</topic><topic>Alzheimer's disease</topic><topic>Behavior management</topic><topic>Behavior Therapy</topic><topic>caregiving</topic><topic>Clinical trials</topic><topic>Counseling</topic><topic>Dementia</topic><topic>Efficacy</topic><topic>family care</topic><topic>Feasibility</topic><topic>Humans</topic><topic>Intervention</topic><topic>Nurses</topic><topic>Peer relationships</topic><topic>Quasi-experimental methods</topic><topic>Reactivity</topic><topic>Symptoms</topic><topic>technology</topic><topic>Telemedicine</topic><topic>Video conferencing</topic><topic>Video teleconferencing</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Lindauer, Allison</creatorcontrib><creatorcontrib>Messecar, Deborah</creatorcontrib><creatorcontrib>McKenzie, Glenise</creatorcontrib><creatorcontrib>Gibson, Allison</creatorcontrib><creatorcontrib>Wharton, Whitney</creatorcontrib><creatorcontrib>Bianchi, Allison</creatorcontrib><creatorcontrib>Tarter, Robin</creatorcontrib><creatorcontrib>Tadesse, Ruth</creatorcontrib><creatorcontrib>Boardman, Charles</creatorcontrib><creatorcontrib>Golonka, Ona</creatorcontrib><creatorcontrib>Gothard, Sarah</creatorcontrib><creatorcontrib>Dodge, Hiroko H.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of advanced nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Lindauer, Allison</au><au>Messecar, Deborah</au><au>McKenzie, Glenise</au><au>Gibson, Allison</au><au>Wharton, Whitney</au><au>Bianchi, Allison</au><au>Tarter, Robin</au><au>Tadesse, Ruth</au><au>Boardman, Charles</au><au>Golonka, Ona</au><au>Gothard, Sarah</au><au>Dodge, Hiroko H.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The Tele‐STELLA protocol: Telehealth‐based support for families living with later‐stage Alzheimer's disease</atitle><jtitle>Journal of advanced nursing</jtitle><addtitle>J Adv Nurs</addtitle><date>2021-10</date><risdate>2021</risdate><volume>77</volume><issue>10</issue><spage>4254</spage><epage>4267</epage><pages>4254-4267</pages><issn>0309-2402</issn><eissn>1365-2648</eissn><abstract>Aims
We aim to establish the feasibility and acceptability of the Tele‐STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms.
Design
This is a multi‐component, quasi‐experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia.
Methods
Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8‐week videoconferencing components that address behavioural symptoms—in both the persons with Alzheimer's disease and their Care Partners. In the first component (‘Nova’), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component (‘Constellation’), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021.
Discussion
Tele‐STELLA fills a gap in current videoconference‐based psychoeducational interventions in that it offers real‐time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele‐STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial.
Impact
Tele‐STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele‐STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation.
Trial Registration
This trial is registered with ClinicalTrials.gov (#NCT04627662).</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>34288013</pmid><doi>10.1111/jan.14980</doi><tpages>14</tpages><orcidid>https://orcid.org/0000-0002-4488-3373</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0309-2402 |
| ispartof | Journal of advanced nursing, 2021-10, Vol.77 (10), p.4254-4267 |
| issn | 0309-2402 1365-2648 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_8449811 |
| source | MEDLINE; Wiley Online Library Journals Frontfile Complete; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Aging Alzheimer Disease - therapy Alzheimer's disease Behavior management Behavior Therapy caregiving Clinical trials Counseling Dementia Efficacy family care Feasibility Humans Intervention Nurses Peer relationships Quasi-experimental methods Reactivity Symptoms technology Telemedicine Video conferencing Video teleconferencing |
| title | The Tele‐STELLA protocol: Telehealth‐based support for families living with later‐stage Alzheimer's disease |
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