Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence

Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:International journal of environmental research and public health 2021-09, Vol.18 (17), p.9250
Hauptverfasser: Boydell, Katherine M., Honey, Anne, Glover, Helen, Gill, Katherine, Tooth, Barbara, Coniglio, Francesca, Hines, Monique, Dunn, Leonie, Scanlan, Justin Newton
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
container_end_page
container_issue 17
container_start_page 9250
container_title International journal of environmental research and public health
container_volume 18
creator Boydell, Katherine M.
Honey, Anne
Glover, Helen
Gill, Katherine
Tooth, Barbara
Coniglio, Francesca
Hines, Monique
Dunn, Leonie
Scanlan, Justin Newton
description Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.
doi_str_mv 10.3390/ijerph18179250
format Article
fullrecord <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_8431623</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2571921746</sourcerecordid><originalsourceid>FETCH-LOGICAL-c395t-2e26057f1c4fdcff9db44c11057cd6db6f8ff0adc92a3a41b5f8b7f6f02d5eba3</originalsourceid><addsrcrecordid>eNpdkUtvEzEURkeIij5gy9oSGzZT_BrPmAVSCOGhBiGhsLY89nXiMLEHexLKP-jPrtNWiLKy9fn43Ht1q-olwZeMSfzGbyGNG9KRVtIGP6nOiBC45gKTp__cT6vznLcYs44L-aw6ZbzBpGPyrLr5qn_6sEZLfwBbL65HSB6CAfQdMuhkNmhmDOTs-wHeohn6ANmvA1ptfLj7NxvHFHXBpojmsZ4n0NMxvwrx9wB2DWiVdMhDSWM4SuM-FR96rzNYVKLFwdtjwefVidNDhhcP50X14-NiNf9cL799-jKfLWvDZDPVFKjATeuI4c4a56TtOTeElMxYYXvhOuewtkZSzTQnfeO6vnXCYWob6DW7qN7de8d9vwNrIExJD2pMfqfTHxW1V49fgt-odTyojjMiKCuC1w-CFH_tIU9q57OBYdAB4j4r2rREUtJyUdBX_6HbMn4o491RWDackkJd3lMmxZwTuL_NEKyOS1aPl8xuAQ3mnQs</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2571095421</pqid></control><display><type>article</type><title>Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence</title><source>MDPI - Multidisciplinary Digital Publishing Institute</source><source>Full-Text Journals in Chemistry (Open access)</source><source>PubMed</source><source>Sociological Abstracts</source><source>EZB Electronic Journals Library</source><source>PubMed Central Open Access</source><creator>Boydell, Katherine M. ; Honey, Anne ; Glover, Helen ; Gill, Katherine ; Tooth, Barbara ; Coniglio, Francesca ; Hines, Monique ; Dunn, Leonie ; Scanlan, Justin Newton</creator><creatorcontrib>Boydell, Katherine M. ; Honey, Anne ; Glover, Helen ; Gill, Katherine ; Tooth, Barbara ; Coniglio, Francesca ; Hines, Monique ; Dunn, Leonie ; Scanlan, Justin Newton</creatorcontrib><description>Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.</description><identifier>ISSN: 1660-4601</identifier><identifier>ISSN: 1661-7827</identifier><identifier>EISSN: 1660-4601</identifier><identifier>DOI: 10.3390/ijerph18179250</identifier><identifier>PMID: 34501839</identifier><language>eng</language><publisher>Basel: MDPI AG</publisher><subject>Cognition ; Collaboration ; Consumers ; Design ; Design thinking ; Empathy ; Everyday life ; Health research ; Homeless people ; Illnesses ; Knowledge ; Literacy ; Marketing ; Medical personnel ; Medical research ; Mental disorders ; Mental health ; Mental health care ; Professional ethics ; Project Report ; Prototypes ; Psychological distress ; Research design ; Social networks ; Translation ; Workers</subject><ispartof>International journal of environmental research and public health, 2021-09, Vol.18 (17), p.9250</ispartof><rights>2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 by the authors. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c395t-2e26057f1c4fdcff9db44c11057cd6db6f8ff0adc92a3a41b5f8b7f6f02d5eba3</citedby><cites>FETCH-LOGICAL-c395t-2e26057f1c4fdcff9db44c11057cd6db6f8ff0adc92a3a41b5f8b7f6f02d5eba3</cites><orcidid>0000-0002-5639-6476 ; 0000-0001-5918-0454</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8431623/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8431623/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,27343,27923,27924,33773,53790,53792</link.rule.ids></links><search><creatorcontrib>Boydell, Katherine M.</creatorcontrib><creatorcontrib>Honey, Anne</creatorcontrib><creatorcontrib>Glover, Helen</creatorcontrib><creatorcontrib>Gill, Katherine</creatorcontrib><creatorcontrib>Tooth, Barbara</creatorcontrib><creatorcontrib>Coniglio, Francesca</creatorcontrib><creatorcontrib>Hines, Monique</creatorcontrib><creatorcontrib>Dunn, Leonie</creatorcontrib><creatorcontrib>Scanlan, Justin Newton</creatorcontrib><title>Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence</title><title>International journal of environmental research and public health</title><description>Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.</description><subject>Cognition</subject><subject>Collaboration</subject><subject>Consumers</subject><subject>Design</subject><subject>Design thinking</subject><subject>Empathy</subject><subject>Everyday life</subject><subject>Health research</subject><subject>Homeless people</subject><subject>Illnesses</subject><subject>Knowledge</subject><subject>Literacy</subject><subject>Marketing</subject><subject>Medical personnel</subject><subject>Medical research</subject><subject>Mental disorders</subject><subject>Mental health</subject><subject>Mental health care</subject><subject>Professional ethics</subject><subject>Project Report</subject><subject>Prototypes</subject><subject>Psychological distress</subject><subject>Research design</subject><subject>Social networks</subject><subject>Translation</subject><subject>Workers</subject><issn>1660-4601</issn><issn>1661-7827</issn><issn>1660-4601</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>BHHNA</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><recordid>eNpdkUtvEzEURkeIij5gy9oSGzZT_BrPmAVSCOGhBiGhsLY89nXiMLEHexLKP-jPrtNWiLKy9fn43Ht1q-olwZeMSfzGbyGNG9KRVtIGP6nOiBC45gKTp__cT6vznLcYs44L-aw6ZbzBpGPyrLr5qn_6sEZLfwBbL65HSB6CAfQdMuhkNmhmDOTs-wHeohn6ANmvA1ptfLj7NxvHFHXBpojmsZ4n0NMxvwrx9wB2DWiVdMhDSWM4SuM-FR96rzNYVKLFwdtjwefVidNDhhcP50X14-NiNf9cL799-jKfLWvDZDPVFKjATeuI4c4a56TtOTeElMxYYXvhOuewtkZSzTQnfeO6vnXCYWob6DW7qN7de8d9vwNrIExJD2pMfqfTHxW1V49fgt-odTyojjMiKCuC1w-CFH_tIU9q57OBYdAB4j4r2rREUtJyUdBX_6HbMn4o491RWDackkJd3lMmxZwTuL_NEKyOS1aPl8xuAQ3mnQs</recordid><startdate>20210902</startdate><enddate>20210902</enddate><creator>Boydell, Katherine M.</creator><creator>Honey, Anne</creator><creator>Glover, Helen</creator><creator>Gill, Katherine</creator><creator>Tooth, Barbara</creator><creator>Coniglio, Francesca</creator><creator>Hines, Monique</creator><creator>Dunn, Leonie</creator><creator>Scanlan, Justin Newton</creator><general>MDPI AG</general><general>MDPI</general><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7U3</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BHHNA</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-5639-6476</orcidid><orcidid>https://orcid.org/0000-0001-5918-0454</orcidid></search><sort><creationdate>20210902</creationdate><title>Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence</title><author>Boydell, Katherine M. ; Honey, Anne ; Glover, Helen ; Gill, Katherine ; Tooth, Barbara ; Coniglio, Francesca ; Hines, Monique ; Dunn, Leonie ; Scanlan, Justin Newton</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c395t-2e26057f1c4fdcff9db44c11057cd6db6f8ff0adc92a3a41b5f8b7f6f02d5eba3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Cognition</topic><topic>Collaboration</topic><topic>Consumers</topic><topic>Design</topic><topic>Design thinking</topic><topic>Empathy</topic><topic>Everyday life</topic><topic>Health research</topic><topic>Homeless people</topic><topic>Illnesses</topic><topic>Knowledge</topic><topic>Literacy</topic><topic>Marketing</topic><topic>Medical personnel</topic><topic>Medical research</topic><topic>Mental disorders</topic><topic>Mental health</topic><topic>Mental health care</topic><topic>Professional ethics</topic><topic>Project Report</topic><topic>Prototypes</topic><topic>Psychological distress</topic><topic>Research design</topic><topic>Social networks</topic><topic>Translation</topic><topic>Workers</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Boydell, Katherine M.</creatorcontrib><creatorcontrib>Honey, Anne</creatorcontrib><creatorcontrib>Glover, Helen</creatorcontrib><creatorcontrib>Gill, Katherine</creatorcontrib><creatorcontrib>Tooth, Barbara</creatorcontrib><creatorcontrib>Coniglio, Francesca</creatorcontrib><creatorcontrib>Hines, Monique</creatorcontrib><creatorcontrib>Dunn, Leonie</creatorcontrib><creatorcontrib>Scanlan, Justin Newton</creatorcontrib><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Social Services Abstracts</collection><collection>ProQuest - Health &amp; Medical Complete保健、医学与药学数据库</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Public Health Database (ProQuest)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni)</collection><collection>ProQuest Central</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Sociological Abstracts</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>Health &amp; Medical Collection (Alumni Edition)</collection><collection>PML(ProQuest Medical Library)</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>International journal of environmental research and public health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Boydell, Katherine M.</au><au>Honey, Anne</au><au>Glover, Helen</au><au>Gill, Katherine</au><au>Tooth, Barbara</au><au>Coniglio, Francesca</au><au>Hines, Monique</au><au>Dunn, Leonie</au><au>Scanlan, Justin Newton</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence</atitle><jtitle>International journal of environmental research and public health</jtitle><date>2021-09-02</date><risdate>2021</risdate><volume>18</volume><issue>17</issue><spage>9250</spage><pages>9250-</pages><issn>1660-4601</issn><issn>1661-7827</issn><eissn>1660-4601</eissn><abstract>Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.</abstract><cop>Basel</cop><pub>MDPI AG</pub><pmid>34501839</pmid><doi>10.3390/ijerph18179250</doi><orcidid>https://orcid.org/0000-0002-5639-6476</orcidid><orcidid>https://orcid.org/0000-0001-5918-0454</orcidid><oa>free_for_read</oa></addata></record>
fulltext fulltext
identifier ISSN: 1660-4601
ispartof International journal of environmental research and public health, 2021-09, Vol.18 (17), p.9250
issn 1660-4601
1661-7827
1660-4601
language eng
recordid cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_8431623
source MDPI - Multidisciplinary Digital Publishing Institute; Full-Text Journals in Chemistry (Open access); PubMed; Sociological Abstracts; EZB Electronic Journals Library; PubMed Central Open Access
subjects Cognition
Collaboration
Consumers
Design
Design thinking
Empathy
Everyday life
Health research
Homeless people
Illnesses
Knowledge
Literacy
Marketing
Medical personnel
Medical research
Mental disorders
Mental health
Mental health care
Professional ethics
Project Report
Prototypes
Psychological distress
Research design
Social networks
Translation
Workers
title Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence
url https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-10T16%3A07%3A24IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Making%20Lived-Experience%20Research%20Accessible:%20A%20Design%20Thinking%20Approach%20to%20Co-Creating%20Knowledge%20Translation%20Resources%20Based%20on%20Evidence&rft.jtitle=International%20journal%20of%20environmental%20research%20and%20public%20health&rft.au=Boydell,%20Katherine%20M.&rft.date=2021-09-02&rft.volume=18&rft.issue=17&rft.spage=9250&rft.pages=9250-&rft.issn=1660-4601&rft.eissn=1660-4601&rft_id=info:doi/10.3390/ijerph18179250&rft_dat=%3Cproquest_pubme%3E2571921746%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2571095421&rft_id=info:pmid/34501839&rfr_iscdi=true