The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
Background Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim The aim of this study was to gain insight into the ways mothers of children with intellectual disabili...
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| Veröffentlicht in: | Journal of applied research in intellectual disabilities 2021-11, Vol.34 (6), p.1421-1430 |
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| container_issue | 6 |
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| container_title | Journal of applied research in intellectual disabilities |
| container_volume | 34 |
| creator | Rogers, Gemma Perez‐Olivas, Gisela Stenfert Kroese, Biza Patel, Varsha Murphy, Glynis Rose, John Cooper, Vivien Langdon, Peter E. Hiles, Steve Clifford, Clair Willner, Paul |
| description | Background
Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed. |
| doi_str_mv | 10.1111/jar.12884 |
| format | Article |
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Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.</description><identifier>ISSN: 1360-2322</identifier><identifier>ISSN: 1468-3148</identifier><identifier>EISSN: 1468-3148</identifier><identifier>DOI: 10.1111/jar.12884</identifier><identifier>PMID: 33759291</identifier><language>eng</language><publisher>England: Wiley</publisher><subject>Adolescent ; Anxiety ; caring responsibility ; Child ; Child care ; children ; Children with disabilities ; Communicable Disease Control ; Coping ; COVID-19 ; Experience ; Female ; Humans ; Intellectual disabilities ; Intellectual Disability ; Mothers ; Original ; Pandemics ; Parent Attitudes ; SARS-CoV-2 ; Shelter in place ; Well being ; young people</subject><ispartof>Journal of applied research in intellectual disabilities, 2021-11, Vol.34 (6), p.1421-1430</ispartof><rights>2021 The Authors. published by John Wiley & Sons Ltd.</rights><rights>2021 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.</rights><rights>2021. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4934-23f50fcce31bf2df8bfba6a81970e9c31073028570b7887f87e45586aeaf81933</citedby><cites>FETCH-LOGICAL-c4934-23f50fcce31bf2df8bfba6a81970e9c31073028570b7887f87e45586aeaf81933</cites><orcidid>0000-0001-7817-5861 ; 0000-0002-7745-1825 ; 0000-0003-0211-6085 ; 0000-0003-2672-9767 ; 0000-0001-5576-5260</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjar.12884$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjar.12884$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>230,314,780,784,885,1417,27924,27925,45574,45575</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1314882$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33759291$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Rogers, Gemma</creatorcontrib><creatorcontrib>Perez‐Olivas, Gisela</creatorcontrib><creatorcontrib>Stenfert Kroese, Biza</creatorcontrib><creatorcontrib>Patel, Varsha</creatorcontrib><creatorcontrib>Murphy, Glynis</creatorcontrib><creatorcontrib>Rose, John</creatorcontrib><creatorcontrib>Cooper, Vivien</creatorcontrib><creatorcontrib>Langdon, Peter E.</creatorcontrib><creatorcontrib>Hiles, Steve</creatorcontrib><creatorcontrib>Clifford, Clair</creatorcontrib><creatorcontrib>Willner, Paul</creatorcontrib><title>The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period</title><title>Journal of applied research in intellectual disabilities</title><addtitle>J Appl Res Intellect Disabil</addtitle><description>Background
Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.</description><subject>Adolescent</subject><subject>Anxiety</subject><subject>caring responsibility</subject><subject>Child</subject><subject>Child care</subject><subject>children</subject><subject>Children with disabilities</subject><subject>Communicable Disease Control</subject><subject>Coping</subject><subject>COVID-19</subject><subject>Experience</subject><subject>Female</subject><subject>Humans</subject><subject>Intellectual disabilities</subject><subject>Intellectual Disability</subject><subject>Mothers</subject><subject>Original</subject><subject>Pandemics</subject><subject>Parent Attitudes</subject><subject>SARS-CoV-2</subject><subject>Shelter in place</subject><subject>Well being</subject><subject>young people</subject><issn>1360-2322</issn><issn>1468-3148</issn><issn>1468-3148</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><sourceid>EIF</sourceid><recordid>eNp1kstu1DAYhSMEohdY8AAgS2zKYlpfktjZIFVDgVaVKqHC1nKc340Hjz21E4bZIZ6AZ-RJ8DRlBEh4Y0vn0_kvx0XxjOBjks_JQsVjQoUoHxT7pKzFjJFSPMxvVuMZZZTuFQcpLTDGglT8cbHHGK8a2pD94vt1Dwi-riBa8BoSCgYtw9BDvHvq3rougkfKd2gTRn-DVhBWDtDaDj2yfgDnQA-jcqizSbXW2cFmm26MNsPZCBkb04DmV5_O3_z89oM0yAX9uQtrj7ZVQ_ekeGSUS_D0_j4sPr49u56_n11evTufn17OdNmwMs9hKmy0BkZaQzsjWtOqWgnScAyNZgRzhqmoOG65ENwIDmVViVqBMhli7LB4PfmuxnYJnQY_ROXkKtqlihsZlJV_K9728iZ8kYJWmFCeDY7uDWK4HSENcmmTzgtQHsKYZMZKzgmnOKMv_0EXYYw-j5cpkaPirK4y9WqidAwpRTC7ZgiW22RlTlbeJZvZF392vyN_R5mB5xOQl6p38tkF2X4GQbN-Mulr62Dz_0ry4vTDVPIXgXO5dA</recordid><startdate>202111</startdate><enddate>202111</enddate><creator>Rogers, Gemma</creator><creator>Perez‐Olivas, Gisela</creator><creator>Stenfert Kroese, Biza</creator><creator>Patel, Varsha</creator><creator>Murphy, Glynis</creator><creator>Rose, John</creator><creator>Cooper, Vivien</creator><creator>Langdon, Peter E.</creator><creator>Hiles, Steve</creator><creator>Clifford, Clair</creator><creator>Willner, Paul</creator><general>Wiley</general><general>Wiley Subscription Services, Inc</general><general>John Wiley and Sons Inc</general><scope>24P</scope><scope>WIN</scope><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0001-7817-5861</orcidid><orcidid>https://orcid.org/0000-0002-7745-1825</orcidid><orcidid>https://orcid.org/0000-0003-0211-6085</orcidid><orcidid>https://orcid.org/0000-0003-2672-9767</orcidid><orcidid>https://orcid.org/0000-0001-5576-5260</orcidid></search><sort><creationdate>202111</creationdate><title>The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period</title><author>Rogers, Gemma ; Perez‐Olivas, Gisela ; Stenfert Kroese, Biza ; Patel, Varsha ; Murphy, Glynis ; Rose, John ; Cooper, Vivien ; Langdon, Peter E. ; Hiles, Steve ; Clifford, Clair ; Willner, Paul</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4934-23f50fcce31bf2df8bfba6a81970e9c31073028570b7887f87e45586aeaf81933</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adolescent</topic><topic>Anxiety</topic><topic>caring responsibility</topic><topic>Child</topic><topic>Child care</topic><topic>children</topic><topic>Children with disabilities</topic><topic>Communicable Disease Control</topic><topic>Coping</topic><topic>COVID-19</topic><topic>Experience</topic><topic>Female</topic><topic>Humans</topic><topic>Intellectual disabilities</topic><topic>Intellectual Disability</topic><topic>Mothers</topic><topic>Original</topic><topic>Pandemics</topic><topic>Parent Attitudes</topic><topic>SARS-CoV-2</topic><topic>Shelter in place</topic><topic>Well being</topic><topic>young people</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rogers, Gemma</creatorcontrib><creatorcontrib>Perez‐Olivas, Gisela</creatorcontrib><creatorcontrib>Stenfert Kroese, Biza</creatorcontrib><creatorcontrib>Patel, Varsha</creatorcontrib><creatorcontrib>Murphy, Glynis</creatorcontrib><creatorcontrib>Rose, John</creatorcontrib><creatorcontrib>Cooper, Vivien</creatorcontrib><creatorcontrib>Langdon, Peter E.</creatorcontrib><creatorcontrib>Hiles, Steve</creatorcontrib><creatorcontrib>Clifford, Clair</creatorcontrib><creatorcontrib>Willner, Paul</creatorcontrib><collection>Wiley-Blackwell Open Access Titles</collection><collection>Wiley Free Content</collection><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of applied research in intellectual disabilities</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Rogers, Gemma</au><au>Perez‐Olivas, Gisela</au><au>Stenfert Kroese, Biza</au><au>Patel, Varsha</au><au>Murphy, Glynis</au><au>Rose, John</au><au>Cooper, Vivien</au><au>Langdon, Peter E.</au><au>Hiles, Steve</au><au>Clifford, Clair</au><au>Willner, Paul</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1314882</ericid><atitle>The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period</atitle><jtitle>Journal of applied research in intellectual disabilities</jtitle><addtitle>J Appl Res Intellect Disabil</addtitle><date>2021-11</date><risdate>2021</risdate><volume>34</volume><issue>6</issue><spage>1421</spage><epage>1430</epage><pages>1421-1430</pages><issn>1360-2322</issn><issn>1468-3148</issn><eissn>1468-3148</eissn><abstract>Background
Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.</abstract><cop>England</cop><pub>Wiley</pub><pmid>33759291</pmid><doi>10.1111/jar.12884</doi><tpages>0</tpages><orcidid>https://orcid.org/0000-0001-7817-5861</orcidid><orcidid>https://orcid.org/0000-0002-7745-1825</orcidid><orcidid>https://orcid.org/0000-0003-0211-6085</orcidid><orcidid>https://orcid.org/0000-0003-2672-9767</orcidid><orcidid>https://orcid.org/0000-0001-5576-5260</orcidid><oa>free_for_read</oa></addata></record> |
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| language | eng |
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| source | MEDLINE; EBSCOhost Education Source; Wiley Online Library All Journals |
| subjects | Adolescent Anxiety caring responsibility Child Child care children Children with disabilities Communicable Disease Control Coping COVID-19 Experience Female Humans Intellectual disabilities Intellectual Disability Mothers Original Pandemics Parent Attitudes SARS-CoV-2 Shelter in place Well being young people |
| title | The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period |
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