Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international Sickle Cell World Assessment Survey (SWAY)

Sickle cell disease (SCD) is a genetic disorder, characterized by hemolytic anemia and vaso‐occlusive crises (VOCs). Data on the global SCD impact on quality of life (QoL) from the patient viewpoint are limited. The international Sickle Cell World Assessment Survey (SWAY) aimed to provide insights i...

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Veröffentlicht in:	American journal of hematology 2021-04, Vol.96 (4), p.404-417
Hauptverfasser:	Osunkwo, Ifeyinwa, Andemariam, Biree, Minniti, Caterina P., Inusa, Baba P. D., El Rassi, Fuad, Francis‐Gibson, Beverley, Nero, Alecia, Trimnell, Cassandra, Abboud, Miguel R., Arlet, Jean‐Benoît, Colombatti, Raffaella, Montalembert, Mariane, Jain, Suman, Jastaniah, Wasil, Nur, Erfan, Pita, Marimilia, DeBonnett, Laurie, Ramscar, Nicholas, Bailey, Tom, Rajkovic‐Hooley, Olivera, James, John
Format:	Artikel
Sprache:	eng
Schlagworte:	Activities of Daily Living Acute Pain - epidemiology Acute Pain - etiology Adolescent Adult Aged Aged, 80 and over Anemia, Sickle Cell - complications Anemia, Sickle Cell - epidemiology Anemia, Sickle Cell - psychology Anxiety - etiology Attitude to Health Child Cost of Illness Cross-Sectional Studies Depression - etiology Disease Management Educational Status Emotions Employment - statistics & numerical data Fatigue - epidemiology Fatigue - etiology Female Genetic disorders Headache - epidemiology Headache - etiology Health Surveys Hematology Hemolytic anemia Humans Male Medical treatment Middle Aged Patients Quality of Life Sickle cell disease Young Adult
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