The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care
Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidiscipli...
Gespeichert in:
| Veröffentlicht in: | Cancers 2021-05, Vol.13 (11), p.2675 |
|---|---|
| Hauptverfasser: | , , , , , , , , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | |
|---|---|
| container_issue | 11 |
| container_start_page | 2675 |
| container_title | Cancers |
| container_volume | 13 |
| creator | Patterson, Pandora Allison, Kimberley R. Bibby, Helen Thompson, Kate Lewin, Jeremy Briggs, Taia Walker, Rick Osborn, Michael Plaster, Meg Hayward, Allan Henney, Roslyn George, Shannyn Keuskamp, Dominic Anazodo, Antoinette |
| description | Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016–17 and 2019–20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults. |
| doi_str_mv | 10.3390/cancers13112675 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_8198716</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2536467513</sourcerecordid><originalsourceid>FETCH-LOGICAL-c464t-ef43c680a61abd3edc2b904d9e2d2a034f5bc97fbef7cc9d43299fa7d292af1d3</originalsourceid><addsrcrecordid>eNpdUU1vEzEQtRCIVqVnrpa4cEnrr3hjDkjRAi1SaQ-UAyfLa882rhw72N5I-Q_90ThpQVBfxqN5783HQ-gtJWecK3JuTbSQC-WUMtnNX6BjRjo2k1KJl__8j9BpKfekPc5pJ7vX6IgL0lHJ2DF6uF0BXk6lZhO8ifhnmuoK9wdl_B3y1lv4gD_BFkLa-HiHTXT4W4q-prxP655uq9_6usNpxNem-hRNCDvcp5Sdj6aCw0uXAhQLsR4EWpfGXbop1D-9epPhDXo1mlDg9CmeoB9fPt_2l7Orm4uv_fJqZoUUdQaj4FYuiJHUDI6Ds2xQRDgFzDFDuBjng1XdOMDYWauc4Eyp0XSOKWZG6vgJ-viou5mGdaO3sdr6epP92uSdTsbr_yvRr_Rd2uoFVYt2uCbw_kkgp18TlKrXvm0XgomQpqLZnEvRLKG8Qd89g96nKbcLHVBKEknYoqHOH1E2p1IyjH-HoUTvzdbPzOa_AeXuoA8</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2539606028</pqid></control><display><type>article</type><title>The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care</title><source>PubMed Central Open Access</source><source>MDPI - Multidisciplinary Digital Publishing Institute</source><source>EZB-FREE-00999 freely available EZB journals</source><source>PubMed Central</source><creator>Patterson, Pandora ; Allison, Kimberley R. ; Bibby, Helen ; Thompson, Kate ; Lewin, Jeremy ; Briggs, Taia ; Walker, Rick ; Osborn, Michael ; Plaster, Meg ; Hayward, Allan ; Henney, Roslyn ; George, Shannyn ; Keuskamp, Dominic ; Anazodo, Antoinette</creator><creatorcontrib>Patterson, Pandora ; Allison, Kimberley R. ; Bibby, Helen ; Thompson, Kate ; Lewin, Jeremy ; Briggs, Taia ; Walker, Rick ; Osborn, Michael ; Plaster, Meg ; Hayward, Allan ; Henney, Roslyn ; George, Shannyn ; Keuskamp, Dominic ; Anazodo, Antoinette</creatorcontrib><description>Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016–17 and 2019–20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.</description><identifier>ISSN: 2072-6694</identifier><identifier>EISSN: 2072-6694</identifier><identifier>DOI: 10.3390/cancers13112675</identifier><identifier>PMID: 34071622</identifier><language>eng</language><publisher>Basel: MDPI AG</publisher><subject>Adolescents ; Age ; Cancer ; Clinical trials ; Collaboration ; COVID-19 ; Data collection ; Health care policy ; Health services ; Hospitals ; Integrated approach ; Jurisdiction ; Oncology ; Pandemics ; Participation ; Patients ; Pediatrics ; Peer tutoring ; Survival ; Teenagers ; Young adults</subject><ispartof>Cancers, 2021-05, Vol.13 (11), p.2675</ispartof><rights>2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 by the authors. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c464t-ef43c680a61abd3edc2b904d9e2d2a034f5bc97fbef7cc9d43299fa7d292af1d3</citedby><cites>FETCH-LOGICAL-c464t-ef43c680a61abd3edc2b904d9e2d2a034f5bc97fbef7cc9d43299fa7d292af1d3</cites><orcidid>0000-0002-4446-5868 ; 0000-0002-1288-9930 ; 0000-0001-6623-2611</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8198716/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8198716/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,727,780,784,885,27915,27916,53782,53784</link.rule.ids></links><search><creatorcontrib>Patterson, Pandora</creatorcontrib><creatorcontrib>Allison, Kimberley R.</creatorcontrib><creatorcontrib>Bibby, Helen</creatorcontrib><creatorcontrib>Thompson, Kate</creatorcontrib><creatorcontrib>Lewin, Jeremy</creatorcontrib><creatorcontrib>Briggs, Taia</creatorcontrib><creatorcontrib>Walker, Rick</creatorcontrib><creatorcontrib>Osborn, Michael</creatorcontrib><creatorcontrib>Plaster, Meg</creatorcontrib><creatorcontrib>Hayward, Allan</creatorcontrib><creatorcontrib>Henney, Roslyn</creatorcontrib><creatorcontrib>George, Shannyn</creatorcontrib><creatorcontrib>Keuskamp, Dominic</creatorcontrib><creatorcontrib>Anazodo, Antoinette</creatorcontrib><title>The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care</title><title>Cancers</title><description>Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016–17 and 2019–20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.</description><subject>Adolescents</subject><subject>Age</subject><subject>Cancer</subject><subject>Clinical trials</subject><subject>Collaboration</subject><subject>COVID-19</subject><subject>Data collection</subject><subject>Health care policy</subject><subject>Health services</subject><subject>Hospitals</subject><subject>Integrated approach</subject><subject>Jurisdiction</subject><subject>Oncology</subject><subject>Pandemics</subject><subject>Participation</subject><subject>Patients</subject><subject>Pediatrics</subject><subject>Peer tutoring</subject><subject>Survival</subject><subject>Teenagers</subject><subject>Young adults</subject><issn>2072-6694</issn><issn>2072-6694</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>8G5</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><recordid>eNpdUU1vEzEQtRCIVqVnrpa4cEnrr3hjDkjRAi1SaQ-UAyfLa882rhw72N5I-Q_90ThpQVBfxqN5783HQ-gtJWecK3JuTbSQC-WUMtnNX6BjRjo2k1KJl__8j9BpKfekPc5pJ7vX6IgL0lHJ2DF6uF0BXk6lZhO8ifhnmuoK9wdl_B3y1lv4gD_BFkLa-HiHTXT4W4q-prxP655uq9_6usNpxNem-hRNCDvcp5Sdj6aCw0uXAhQLsR4EWpfGXbop1D-9epPhDXo1mlDg9CmeoB9fPt_2l7Orm4uv_fJqZoUUdQaj4FYuiJHUDI6Ds2xQRDgFzDFDuBjng1XdOMDYWauc4Eyp0XSOKWZG6vgJ-viou5mGdaO3sdr6epP92uSdTsbr_yvRr_Rd2uoFVYt2uCbw_kkgp18TlKrXvm0XgomQpqLZnEvRLKG8Qd89g96nKbcLHVBKEknYoqHOH1E2p1IyjH-HoUTvzdbPzOa_AeXuoA8</recordid><startdate>20210528</startdate><enddate>20210528</enddate><creator>Patterson, Pandora</creator><creator>Allison, Kimberley R.</creator><creator>Bibby, Helen</creator><creator>Thompson, Kate</creator><creator>Lewin, Jeremy</creator><creator>Briggs, Taia</creator><creator>Walker, Rick</creator><creator>Osborn, Michael</creator><creator>Plaster, Meg</creator><creator>Hayward, Allan</creator><creator>Henney, Roslyn</creator><creator>George, Shannyn</creator><creator>Keuskamp, Dominic</creator><creator>Anazodo, Antoinette</creator><general>MDPI AG</general><general>MDPI</general><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7T5</scope><scope>7TO</scope><scope>7XB</scope><scope>8FE</scope><scope>8FH</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>CCPQU</scope><scope>COVID</scope><scope>DWQXO</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>H94</scope><scope>HCIFZ</scope><scope>LK8</scope><scope>M2O</scope><scope>M7P</scope><scope>MBDVC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-4446-5868</orcidid><orcidid>https://orcid.org/0000-0002-1288-9930</orcidid><orcidid>https://orcid.org/0000-0001-6623-2611</orcidid></search><sort><creationdate>20210528</creationdate><title>The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care</title><author>Patterson, Pandora ; Allison, Kimberley R. ; Bibby, Helen ; Thompson, Kate ; Lewin, Jeremy ; Briggs, Taia ; Walker, Rick ; Osborn, Michael ; Plaster, Meg ; Hayward, Allan ; Henney, Roslyn ; George, Shannyn ; Keuskamp, Dominic ; Anazodo, Antoinette</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c464t-ef43c680a61abd3edc2b904d9e2d2a034f5bc97fbef7cc9d43299fa7d292af1d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adolescents</topic><topic>Age</topic><topic>Cancer</topic><topic>Clinical trials</topic><topic>Collaboration</topic><topic>COVID-19</topic><topic>Data collection</topic><topic>Health care policy</topic><topic>Health services</topic><topic>Hospitals</topic><topic>Integrated approach</topic><topic>Jurisdiction</topic><topic>Oncology</topic><topic>Pandemics</topic><topic>Participation</topic><topic>Patients</topic><topic>Pediatrics</topic><topic>Peer tutoring</topic><topic>Survival</topic><topic>Teenagers</topic><topic>Young adults</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Patterson, Pandora</creatorcontrib><creatorcontrib>Allison, Kimberley R.</creatorcontrib><creatorcontrib>Bibby, Helen</creatorcontrib><creatorcontrib>Thompson, Kate</creatorcontrib><creatorcontrib>Lewin, Jeremy</creatorcontrib><creatorcontrib>Briggs, Taia</creatorcontrib><creatorcontrib>Walker, Rick</creatorcontrib><creatorcontrib>Osborn, Michael</creatorcontrib><creatorcontrib>Plaster, Meg</creatorcontrib><creatorcontrib>Hayward, Allan</creatorcontrib><creatorcontrib>Henney, Roslyn</creatorcontrib><creatorcontrib>George, Shannyn</creatorcontrib><creatorcontrib>Keuskamp, Dominic</creatorcontrib><creatorcontrib>Anazodo, Antoinette</creatorcontrib><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Immunology Abstracts</collection><collection>Oncogenes and Growth Factors Abstracts</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>ProQuest One Community College</collection><collection>Coronavirus Research Database</collection><collection>ProQuest Central Korea</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Biological Science Collection</collection><collection>Research Library</collection><collection>Biological Science Database</collection><collection>Research Library (Corporate)</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Cancers</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Patterson, Pandora</au><au>Allison, Kimberley R.</au><au>Bibby, Helen</au><au>Thompson, Kate</au><au>Lewin, Jeremy</au><au>Briggs, Taia</au><au>Walker, Rick</au><au>Osborn, Michael</au><au>Plaster, Meg</au><au>Hayward, Allan</au><au>Henney, Roslyn</au><au>George, Shannyn</au><au>Keuskamp, Dominic</au><au>Anazodo, Antoinette</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care</atitle><jtitle>Cancers</jtitle><date>2021-05-28</date><risdate>2021</risdate><volume>13</volume><issue>11</issue><spage>2675</spage><pages>2675-</pages><issn>2072-6694</issn><eissn>2072-6694</eissn><abstract>Adolescents and young adults (aged 15–25 years) diagnosed with cancer have unique medical and psychosocial experiences and care needs, distinct from those of paediatric and older adult patients. Since 2011, the Australian Youth Cancer Services have provided developmentally appropriate, multidisciplinary and comprehensive care to these young patients, facilitated by national service coordination and activity data collection and monitoring. This paper reports on how the Youth Cancer Services have conceptualised and delivered quality youth cancer care in four priority areas: clinical trial participation, oncofertility, psychosocial care and survivorship. National activity data collected by the Youth Cancer Services between 2016–17 and 2019–20 are used to illustrate how service monitoring processes have facilitated improvements in coordination and accountability across multiple indicators of quality youth cancer care, including clinical trial participation, access to fertility information and preservation, psychosocial screening and care and the transition from active treatment to survivorship. Accounts of both service delivery and monitoring and evaluation processes within the Australian Youth Cancer Services provide an exemplar of how coordinated initiatives may be employed to deliver, monitor and improve quality cancer care for adolescents and young adults.</abstract><cop>Basel</cop><pub>MDPI AG</pub><pmid>34071622</pmid><doi>10.3390/cancers13112675</doi><orcidid>https://orcid.org/0000-0002-4446-5868</orcidid><orcidid>https://orcid.org/0000-0002-1288-9930</orcidid><orcidid>https://orcid.org/0000-0001-6623-2611</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 2072-6694 |
| ispartof | Cancers, 2021-05, Vol.13 (11), p.2675 |
| issn | 2072-6694 2072-6694 |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_8198716 |
| source | PubMed Central Open Access; MDPI - Multidisciplinary Digital Publishing Institute; EZB-FREE-00999 freely available EZB journals; PubMed Central |
| subjects | Adolescents Age Cancer Clinical trials Collaboration COVID-19 Data collection Health care policy Health services Hospitals Integrated approach Jurisdiction Oncology Pandemics Participation Patients Pediatrics Peer tutoring Survival Teenagers Young adults |
| title | The Australian Youth Cancer Service: Developing and Monitoring the Activity of Nationally Coordinated Adolescent and Young Adult Cancer Care |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-14T20%3A34%3A09IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=The%20Australian%20Youth%20Cancer%20Service:%20Developing%20and%20Monitoring%20the%20Activity%20of%20Nationally%20Coordinated%20Adolescent%20and%20Young%20Adult%20Cancer%20Care&rft.jtitle=Cancers&rft.au=Patterson,%20Pandora&rft.date=2021-05-28&rft.volume=13&rft.issue=11&rft.spage=2675&rft.pages=2675-&rft.issn=2072-6694&rft.eissn=2072-6694&rft_id=info:doi/10.3390/cancers13112675&rft_dat=%3Cproquest_pubme%3E2536467513%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2539606028&rft_id=info:pmid/34071622&rfr_iscdi=true |