Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study
Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of thi...
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| Veröffentlicht in: | International journal of environmental research and public health 2021-04, Vol.18 (7), p.3720 |
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| creator | Napoli, Silvana B Vitale, María Paula Cafiero, Pablo J Micheletti, María Belén Bradichansky, Paula Pedernera Lejarraga, Celina Urinovsky, Maria Gabriela Escalante, Anabella Rodriguez, Estela Schiariti, Verónica |
| description | Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of this study was to create a novel tool guided by the International Classification of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice.
A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created.
An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs.
TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts. |
| doi_str_mv | 10.3390/ijerph18073720 |
| format | Article |
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A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created.
An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs.
TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts.</description><identifier>ISSN: 1660-4601</identifier><identifier>ISSN: 1661-7827</identifier><identifier>EISSN: 1660-4601</identifier><identifier>DOI: 10.3390/ijerph18073720</identifier><identifier>PMID: 33918291</identifier><language>eng</language><publisher>Switzerland: MDPI AG</publisher><subject>Activities of Daily Living ; Argentina ; Autism ; Autism Spectrum Disorder ; Autistic children ; Caregivers ; Categories ; Child ; Children ; Children & youth ; Classification ; Clinical medicine ; Disability ; Disability Evaluation ; Disabled Persons ; Environmental factors ; Evaluation ; Families & family life ; Humans ; Interdisciplinary aspects ; International Classification of Functioning, Disability and Health ; Language ; Participation ; Pediatrics ; Pilot Projects</subject><ispartof>International journal of environmental research and public health, 2021-04, Vol.18 (7), p.3720</ispartof><rights>2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 by the authors. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c418t-f3a7783a58d8d69d1d67e3806c50fcea07639bacbed9737fff200c74c57f5c843</citedby><cites>FETCH-LOGICAL-c418t-f3a7783a58d8d69d1d67e3806c50fcea07639bacbed9737fff200c74c57f5c843</cites><orcidid>0000-0002-8789-681X ; 0000-0001-9148-4159</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8038152/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8038152/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,881,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33918291$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Napoli, Silvana B</creatorcontrib><creatorcontrib>Vitale, María Paula</creatorcontrib><creatorcontrib>Cafiero, Pablo J</creatorcontrib><creatorcontrib>Micheletti, María Belén</creatorcontrib><creatorcontrib>Bradichansky, Paula Pedernera</creatorcontrib><creatorcontrib>Lejarraga, Celina</creatorcontrib><creatorcontrib>Urinovsky, Maria Gabriela</creatorcontrib><creatorcontrib>Escalante, Anabella</creatorcontrib><creatorcontrib>Rodriguez, Estela</creatorcontrib><creatorcontrib>Schiariti, Verónica</creatorcontrib><title>Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study</title><title>International journal of environmental research and public health</title><addtitle>Int J Environ Res Public Health</addtitle><description>Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of this study was to create a novel tool guided by the International Classification of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice.
A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created.
An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs.
TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts.</description><subject>Activities of Daily Living</subject><subject>Argentina</subject><subject>Autism</subject><subject>Autism Spectrum Disorder</subject><subject>Autistic children</subject><subject>Caregivers</subject><subject>Categories</subject><subject>Child</subject><subject>Children</subject><subject>Children & youth</subject><subject>Classification</subject><subject>Clinical medicine</subject><subject>Disability</subject><subject>Disability Evaluation</subject><subject>Disabled Persons</subject><subject>Environmental factors</subject><subject>Evaluation</subject><subject>Families & family life</subject><subject>Humans</subject><subject>Interdisciplinary aspects</subject><subject>International Classification of Functioning, Disability and Health</subject><subject>Language</subject><subject>Participation</subject><subject>Pediatrics</subject><subject>Pilot Projects</subject><issn>1660-4601</issn><issn>1661-7827</issn><issn>1660-4601</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNpVkUtvEzEUhS0EoqWwZYkssZ5gj-fhYYGUThqIVAmkBLaWY183jibjwY-g_BV-LY5aqnblK_l8516dg9B7SmaMdeST3YOfdpSTlrUleYEuadOQomoIfflkvkBvQtgTwnjVdK_RRUYpLzt6if4u4AiDm-x4hyXu0xCTl8NwwmsYg432CHjVL4trGUDjjXMDjg4vIChvt4CXaVTRuvFMO4P7nR20hxH_sXGH5ynacMDrCVT06YAXNjivwX_Gm5t50a_OcGYl_gU-5AHTGcE_7OAiXsekT2_RKyOHAO8e3iv0c3mz6b8Vt9-_rvr5baEqymNhmGxbzmTNNddNp6luWmCcNKomRoEkbcO6rVRb0F0OyRhTEqLaStWtqRWv2BX6cu87pe0BtIIx5gjE5O1B-pNw0ornP6PdiTt3FDznSesyG3x8MPDud4IQxd4lP-abRVnnCqocfJNVs3uV8i4ED-ZxAyXi3KV43mUGPjy961H-vzz2Dxu0ncg</recordid><startdate>20210402</startdate><enddate>20210402</enddate><creator>Napoli, Silvana B</creator><creator>Vitale, María Paula</creator><creator>Cafiero, Pablo J</creator><creator>Micheletti, María Belén</creator><creator>Bradichansky, Paula Pedernera</creator><creator>Lejarraga, Celina</creator><creator>Urinovsky, Maria Gabriela</creator><creator>Escalante, Anabella</creator><creator>Rodriguez, Estela</creator><creator>Schiariti, Verónica</creator><general>MDPI AG</general><general>MDPI</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-8789-681X</orcidid><orcidid>https://orcid.org/0000-0001-9148-4159</orcidid></search><sort><creationdate>20210402</creationdate><title>Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study</title><author>Napoli, Silvana B ; Vitale, María Paula ; Cafiero, Pablo J ; Micheletti, María Belén ; Bradichansky, Paula Pedernera ; Lejarraga, Celina ; Urinovsky, Maria Gabriela ; Escalante, Anabella ; Rodriguez, Estela ; Schiariti, Verónica</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c418t-f3a7783a58d8d69d1d67e3806c50fcea07639bacbed9737fff200c74c57f5c843</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Activities of Daily Living</topic><topic>Argentina</topic><topic>Autism</topic><topic>Autism Spectrum Disorder</topic><topic>Autistic children</topic><topic>Caregivers</topic><topic>Categories</topic><topic>Child</topic><topic>Children</topic><topic>Children & youth</topic><topic>Classification</topic><topic>Clinical medicine</topic><topic>Disability</topic><topic>Disability Evaluation</topic><topic>Disabled Persons</topic><topic>Environmental factors</topic><topic>Evaluation</topic><topic>Families & family life</topic><topic>Humans</topic><topic>Interdisciplinary aspects</topic><topic>International Classification of Functioning, Disability and Health</topic><topic>Language</topic><topic>Participation</topic><topic>Pediatrics</topic><topic>Pilot Projects</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Napoli, Silvana B</creatorcontrib><creatorcontrib>Vitale, María Paula</creatorcontrib><creatorcontrib>Cafiero, Pablo J</creatorcontrib><creatorcontrib>Micheletti, María Belén</creatorcontrib><creatorcontrib>Bradichansky, Paula Pedernera</creatorcontrib><creatorcontrib>Lejarraga, Celina</creatorcontrib><creatorcontrib>Urinovsky, Maria Gabriela</creatorcontrib><creatorcontrib>Escalante, Anabella</creatorcontrib><creatorcontrib>Rodriguez, Estela</creatorcontrib><creatorcontrib>Schiariti, Verónica</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Publicly Available Content Database</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>International journal of environmental research and public health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Napoli, Silvana B</au><au>Vitale, María Paula</au><au>Cafiero, Pablo J</au><au>Micheletti, María Belén</au><au>Bradichansky, Paula Pedernera</au><au>Lejarraga, Celina</au><au>Urinovsky, Maria Gabriela</au><au>Escalante, Anabella</au><au>Rodriguez, Estela</au><au>Schiariti, Verónica</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study</atitle><jtitle>International journal of environmental research and public health</jtitle><addtitle>Int J Environ Res Public Health</addtitle><date>2021-04-02</date><risdate>2021</risdate><volume>18</volume><issue>7</issue><spage>3720</spage><pages>3720-</pages><issn>1660-4601</issn><issn>1661-7827</issn><eissn>1660-4601</eissn><abstract>Autism spectrum disorder (ASD) affects the daily functioning of children and their families; however, in Argentina, there are no standardized tools to guide the description, evaluation, and follow-up of functioning and disability of children with ASD. To fill this gap, the overarching purpose of this study was to create a novel tool guided by the International Classification of Functioning, Disability, and Health (ICF) Core Sets for ASD for clinical practice.
A multistep methodology was used to identify the most relevant ICF categories for an Argentinian clinical setting. The content of this ICF-based shortlist was piloted and revised according to the results. Subsequently, a toolbox of measures was proposed to operationalize each ICF category. Finally, profiles of the functioning of 100 children with ASD were created.
An ICF-based tool called TEA-CIFunciona was created, consisting of 32 ICF categories (10 body functions, 15 activities and participation, 7 environmental factors categories). The application of TEA-CIFunciona incorporated a family-centered approach in ASD evaluations and helped identify functional needs.
TEA-CIFunciona is the first ICF-based instrument that guides the description of functioning of children with ASD in Argentina. TEA-CIFunciona standardizes collaborative assessments in pediatric ASD populations in Latin American contexts.</abstract><cop>Switzerland</cop><pub>MDPI AG</pub><pmid>33918291</pmid><doi>10.3390/ijerph18073720</doi><orcidid>https://orcid.org/0000-0002-8789-681X</orcidid><orcidid>https://orcid.org/0000-0001-9148-4159</orcidid><oa>free_for_read</oa></addata></record> |
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| subjects | Activities of Daily Living Argentina Autism Autism Spectrum Disorder Autistic children Caregivers Categories Child Children Children & youth Classification Clinical medicine Disability Disability Evaluation Disabled Persons Environmental factors Evaluation Families & family life Humans Interdisciplinary aspects International Classification of Functioning, Disability and Health Language Participation Pediatrics Pilot Projects |
| title | Developing a Culturally Sensitive ICF-Based Tool to Describe Functioning of Children with Autism Spectrum Disorder: TEA-CIFunciona Version 1.0 Pilot Study |
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