Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention

People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work...

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Veröffentlicht in:International journal of environmental research and public health 2021-03, Vol.18 (6), p.3175
Hauptverfasser: Esteban, Laura, Navas, Patricia, Verdugo, Miguel Ángel, Arias, Víctor B
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container_issue 6
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container_title International journal of environmental research and public health
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creator Esteban, Laura
Navas, Patricia
Verdugo, Miguel Ángel
Arias, Víctor B
description People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability ( = 37.05; = 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.
doi_str_mv 10.3390/ijerph18063175
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source MEDLINE; Sociological Abstracts; PubMed Central Open Access; MDPI - Multidisciplinary Digital Publishing Institute; EZB-FREE-00999 freely available EZB journals; PubMed Central; Free Full-Text Journals in Chemistry
subjects Adult
Behavior
Community involvement
Community participation
Developmental disabilities
Disabled Persons
Group Homes
Humans
Independent living
Intellectual disabilities
Intellectual Disability
Intellectually disabled people
Multivariate statistical analysis
Needs
Participation
Peers
People with disabilities
Privacy
Quality of Life
Rehabilitation
Residential Facilities
Rights
Social exclusion
Structural equation modeling
Structural models
title Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention
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