Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention
People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work...
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Veröffentlicht in: | International journal of environmental research and public health 2021-03, Vol.18 (6), p.3175 |
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creator | Esteban, Laura Navas, Patricia Verdugo, Miguel Ángel Arias, Víctor B |
description | People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability (
= 37.05;
= 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs. |
doi_str_mv | 10.3390/ijerph18063175 |
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= 37.05;
= 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.</description><identifier>ISSN: 1660-4601</identifier><identifier>ISSN: 1661-7827</identifier><identifier>EISSN: 1660-4601</identifier><identifier>DOI: 10.3390/ijerph18063175</identifier><identifier>PMID: 33808617</identifier><language>eng</language><publisher>Switzerland: MDPI AG</publisher><subject>Adult ; Behavior ; Community involvement ; Community participation ; Developmental disabilities ; Disabled Persons ; Group Homes ; Humans ; Independent living ; Intellectual disabilities ; Intellectual Disability ; Intellectually disabled people ; Multivariate statistical analysis ; Needs ; Participation ; Peers ; People with disabilities ; Privacy ; Quality of Life ; Rehabilitation ; Residential Facilities ; Rights ; Social exclusion ; Structural equation modeling ; Structural models</subject><ispartof>International journal of environmental research and public health, 2021-03, Vol.18 (6), p.3175</ispartof><rights>2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 by the authors. 2021</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c418t-386d0bc1e1698a338073dd9aee3b8f0c0a2d197f493ea6b00027ca14fb0b98063</citedby><cites>FETCH-LOGICAL-c418t-386d0bc1e1698a338073dd9aee3b8f0c0a2d197f493ea6b00027ca14fb0b98063</cites><orcidid>0000-0002-5411-4025 ; 0000-0002-5802-8220</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8003461/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8003461/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,315,728,781,785,886,27346,27926,27927,33776,53793,53795</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33808617$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Esteban, Laura</creatorcontrib><creatorcontrib>Navas, Patricia</creatorcontrib><creatorcontrib>Verdugo, Miguel Ángel</creatorcontrib><creatorcontrib>Arias, Víctor B</creatorcontrib><title>Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention</title><title>International journal of environmental research and public health</title><addtitle>Int J Environ Res Public Health</addtitle><description>People with intellectual disability (ID) and extensive support needs experience poorer quality of life than their peers whose disability is not as severe. Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability (
= 37.05;
= 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.</description><subject>Adult</subject><subject>Behavior</subject><subject>Community involvement</subject><subject>Community participation</subject><subject>Developmental disabilities</subject><subject>Disabled Persons</subject><subject>Group Homes</subject><subject>Humans</subject><subject>Independent living</subject><subject>Intellectual disabilities</subject><subject>Intellectual Disability</subject><subject>Intellectually disabled people</subject><subject>Multivariate statistical analysis</subject><subject>Needs</subject><subject>Participation</subject><subject>Peers</subject><subject>People with disabilities</subject><subject>Privacy</subject><subject>Quality of Life</subject><subject>Rehabilitation</subject><subject>Residential Facilities</subject><subject>Rights</subject><subject>Social exclusion</subject><subject>Structural equation modeling</subject><subject>Structural models</subject><issn>1660-4601</issn><issn>1661-7827</issn><issn>1660-4601</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>BHHNA</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><recordid>eNpdkc1v1DAQxSMEoh9w5YgsceHQlHGcdRwOSNulLZVWIPFxthxnsutVYqe2s2oP_O84tFQtJ9uan9_MvJdlbyicMlbDB7NDP26pAM5otXiWHVLOIS850OeP7gfZUQg7ACZKXr_MDhgTIDitDrPfKzcMkzXxlqzN3tjNCbmyEfsedZxUTz6boBrTz3VlW3J-E9EGs0fyYxpH5yP5itiGj2RJvpvNNob8TAVsyXIcvVN6S6IjyxAwhAFt_Csxy_t9ehlnX2UvOtUHfH1_Hme_Ls5_rr7k62-XV6vlOtclFTFngrfQaIqU10LNw1esbWuFyBrRgQZVtLSuurJmqHgDAEWlFS27Bpp6tuY4-3SnO07NgK1O3b3q5ejNoPytdMrIpxVrtnLj9lIkz0pOk8D7ewHvricMUQ4m6GSTsuimIIsFiEVFK84S-u4_dOcmb9N6suCFoBwYLRJ1ekdp70Lw2D0MQ0HOycqnyaYPbx-v8ID_i5L9Adjuohk</recordid><startdate>20210319</startdate><enddate>20210319</enddate><creator>Esteban, Laura</creator><creator>Navas, Patricia</creator><creator>Verdugo, Miguel Ángel</creator><creator>Arias, Víctor B</creator><general>MDPI AG</general><general>MDPI</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7U4</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BHHNA</scope><scope>CCPQU</scope><scope>DWI</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>WZK</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-5411-4025</orcidid><orcidid>https://orcid.org/0000-0002-5802-8220</orcidid></search><sort><creationdate>20210319</creationdate><title>Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention</title><author>Esteban, Laura ; 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Many of them live in residential settings that limit community participation and prevent them from exercising control over their lives. This work analyzes the extent to which professional practices are aimed at promoting the right to community living for people with ID and extensive support needs, as well as the rights that are particularly linked to it, such as the right to habilitation and rehabilitation and the right to privacy. A specific questionnaire was designed and administered to 729 adults with intellectual disability (
= 37.05;
= 12.79) living in different settings (family home, residential facilities and group homes). Measurement and structural models were estimated using exploratory structural equation modeling. Results obtained reveal that people with extensive support needs receive less support in terms of guaranteeing their right to independent living and privacy, especially when they live in disability-related services. This study highlights the need to implement and monitor, using valid and reliable indicators, mesosystem strategies that guarantee the right to live and participate in the community, especially for individuals with ID and extensive support needs.</abstract><cop>Switzerland</cop><pub>MDPI AG</pub><pmid>33808617</pmid><doi>10.3390/ijerph18063175</doi><orcidid>https://orcid.org/0000-0002-5411-4025</orcidid><orcidid>https://orcid.org/0000-0002-5802-8220</orcidid><oa>free_for_read</oa></addata></record> |
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source | MEDLINE; Sociological Abstracts; PubMed Central Open Access; MDPI - Multidisciplinary Digital Publishing Institute; EZB-FREE-00999 freely available EZB journals; PubMed Central; Free Full-Text Journals in Chemistry |
subjects | Adult Behavior Community involvement Community participation Developmental disabilities Disabled Persons Group Homes Humans Independent living Intellectual disabilities Intellectual Disability Intellectually disabled people Multivariate statistical analysis Needs Participation Peers People with disabilities Privacy Quality of Life Rehabilitation Residential Facilities Rights Social exclusion Structural equation modeling Structural models |
title | Community Living, Intellectual Disability and Extensive Support Needs: A Rights-Based Approach to Assessment and Intervention |
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