“There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners
Abstract Objective To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of menopause as a cisgender women’s medica...
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| Veröffentlicht in: | Journal of the American Medical Informatics Association : JAMIA 2021-02, Vol.28 (2), p.209-221 |
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| container_title | Journal of the American Medical Informatics Association : JAMIA |
| container_volume | 28 |
| creator | Backonja, Uba Taylor-Swanson, Lisa Miller, Andrew D Jung, Se-Hee Haldar, Shefali Woods, Nancy Fugate |
| description | Abstract
Objective
To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of menopause as a cisgender women’s medical problem.)
Methods
A participatory design study was conducted 2015–2017 in the Western US. Two sessions were held with individuals experiencing menopause recruited from the general public; and 3 sessions with healthcare practitioners (HCPs) including nurses, physicians, and complementary and integrative health (CIH) practitioners were held. Participants designed technologies addressing informational needs and burdensome experiences. HCPs reflected on designs from participants experiencing menopause. Directed content analysis was used to analyze transcripts.
Results
Eight individuals experiencing menopause (n = 4 each session) and 18 HCPs (n = 10 CIH, n = 3 nurses, n = 5 physicians) participated. All participants provided ideas for solution purpose, hardware, software, features and functions, and data types. Individuals experiencing menopause designed technologies to help understand and prevent burdensome menopause experiences. HCPs designed technologies for tracking and facilitating communication. Compared to nurses and physicians, CIH practitioners suggested designs reframing menopause as a positive experience and accounted for the complex lives of individuals experiencing menopause, including stigma; these ideas corresponded to comments made by participants experiencing menopause. Participants from both populations were concerned about data confidentiality and technology accessibility.
Conclusions
Participant generated design ideas included novel ideas and incorporated existing technologies. This study can inform the development of new technologies or repurposing of existing technologies to support individuals through the menopausal transition. |
| doi_str_mv | 10.1093/jamia/ocaa178 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7883989</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><oup_id>10.1093/jamia/ocaa178</oup_id><sourcerecordid>2489596566</sourcerecordid><originalsourceid>FETCH-LOGICAL-c420t-f2b19e201875a6fe9f498b6b7390cae27f72cb00cb813b48fc77b8b58b3c80993</originalsourceid><addsrcrecordid>eNqFkctu1DAUhiMEoqWwZIu8ZEGo41xss6BCFTepEpsisbOOPceJq8QOdtLCbl4DCR6Fl5knITMdBlix8uX8_3eO_WfZ44I-L6gsT69gcHAaDEDBxZ3suKgZzyWvPt1d9rTheU0ZP8oepHRFadGwsr6fHZVlLZhg9Dj7uVl_v-ww4mb9LREgYwy6x-EZ8eGG3HQw7e6nDkkK_Ty54M826x8vSJrbFtP2nIgNkUxoOh_60Dpc5GGpj2OI0845oA8jzAl6MkXwyW1txMYwEOdX7tqtZugTwS8jRofeON8ePEjAr0iH0E-dgYjLgGCmHQFjepjds4sVH-3Xk-zjm9eX5-_yiw9v35-_ushNxeiUW6YLiYwWgtfQWJS2kkI3mpeSGkDGLWdGU2q0KEpdCWs410LXQpdGUCnLk-zlLXec9YArg355SK_G6AaIX1UAp_6teNepNlwrLkQpxRbwdA-I4fO8fJwaXDLY9-AxzEmxSshaNnXTLNL8VmpiSCmiPbQpqNpGrnaRq33ki_7J37Md1L8z_tM7zON_WL8A_NHC9w</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2489596566</pqid></control><display><type>article</type><title>“There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners</title><source>Oxford University Press Journals All Titles (1996-Current)</source><source>MEDLINE</source><source>EZB-FREE-00999 freely available EZB journals</source><source>PubMed Central</source><creator>Backonja, Uba ; Taylor-Swanson, Lisa ; Miller, Andrew D ; Jung, Se-Hee ; Haldar, Shefali ; Woods, Nancy Fugate</creator><creatorcontrib>Backonja, Uba ; Taylor-Swanson, Lisa ; Miller, Andrew D ; Jung, Se-Hee ; Haldar, Shefali ; Woods, Nancy Fugate</creatorcontrib><description>Abstract
Objective
To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of menopause as a cisgender women’s medical problem.)
Methods
A participatory design study was conducted 2015–2017 in the Western US. Two sessions were held with individuals experiencing menopause recruited from the general public; and 3 sessions with healthcare practitioners (HCPs) including nurses, physicians, and complementary and integrative health (CIH) practitioners were held. Participants designed technologies addressing informational needs and burdensome experiences. HCPs reflected on designs from participants experiencing menopause. Directed content analysis was used to analyze transcripts.
Results
Eight individuals experiencing menopause (n = 4 each session) and 18 HCPs (n = 10 CIH, n = 3 nurses, n = 5 physicians) participated. All participants provided ideas for solution purpose, hardware, software, features and functions, and data types. Individuals experiencing menopause designed technologies to help understand and prevent burdensome menopause experiences. HCPs designed technologies for tracking and facilitating communication. Compared to nurses and physicians, CIH practitioners suggested designs reframing menopause as a positive experience and accounted for the complex lives of individuals experiencing menopause, including stigma; these ideas corresponded to comments made by participants experiencing menopause. Participants from both populations were concerned about data confidentiality and technology accessibility.
Conclusions
Participant generated design ideas included novel ideas and incorporated existing technologies. This study can inform the development of new technologies or repurposing of existing technologies to support individuals through the menopausal transition.</description><identifier>ISSN: 1067-5027</identifier><identifier>EISSN: 1527-974X</identifier><identifier>DOI: 10.1093/jamia/ocaa178</identifier><identifier>PMID: 33582820</identifier><language>eng</language><publisher>England: Oxford University Press</publisher><subject>Female ; Health Facilities ; Health Knowledge, Attitudes, Practice ; Humans ; Menopause ; Research and Applications ; Technology</subject><ispartof>Journal of the American Medical Informatics Association : JAMIA, 2021-02, Vol.28 (2), p.209-221</ispartof><rights>The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com 2021</rights><rights>The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c420t-f2b19e201875a6fe9f498b6b7390cae27f72cb00cb813b48fc77b8b58b3c80993</citedby><cites>FETCH-LOGICAL-c420t-f2b19e201875a6fe9f498b6b7390cae27f72cb00cb813b48fc77b8b58b3c80993</cites><orcidid>0000-0002-5997-549X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7883989/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7883989/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,723,776,780,881,1578,27901,27902,53766,53768</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33582820$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Backonja, Uba</creatorcontrib><creatorcontrib>Taylor-Swanson, Lisa</creatorcontrib><creatorcontrib>Miller, Andrew D</creatorcontrib><creatorcontrib>Jung, Se-Hee</creatorcontrib><creatorcontrib>Haldar, Shefali</creatorcontrib><creatorcontrib>Woods, Nancy Fugate</creatorcontrib><title>“There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners</title><title>Journal of the American Medical Informatics Association : JAMIA</title><addtitle>J Am Med Inform Assoc</addtitle><description>Abstract
Objective
To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of menopause as a cisgender women’s medical problem.)
Methods
A participatory design study was conducted 2015–2017 in the Western US. Two sessions were held with individuals experiencing menopause recruited from the general public; and 3 sessions with healthcare practitioners (HCPs) including nurses, physicians, and complementary and integrative health (CIH) practitioners were held. Participants designed technologies addressing informational needs and burdensome experiences. HCPs reflected on designs from participants experiencing menopause. Directed content analysis was used to analyze transcripts.
Results
Eight individuals experiencing menopause (n = 4 each session) and 18 HCPs (n = 10 CIH, n = 3 nurses, n = 5 physicians) participated. All participants provided ideas for solution purpose, hardware, software, features and functions, and data types. Individuals experiencing menopause designed technologies to help understand and prevent burdensome menopause experiences. HCPs designed technologies for tracking and facilitating communication. Compared to nurses and physicians, CIH practitioners suggested designs reframing menopause as a positive experience and accounted for the complex lives of individuals experiencing menopause, including stigma; these ideas corresponded to comments made by participants experiencing menopause. Participants from both populations were concerned about data confidentiality and technology accessibility.
Conclusions
Participant generated design ideas included novel ideas and incorporated existing technologies. This study can inform the development of new technologies or repurposing of existing technologies to support individuals through the menopausal transition.</description><subject>Female</subject><subject>Health Facilities</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Humans</subject><subject>Menopause</subject><subject>Research and Applications</subject><subject>Technology</subject><issn>1067-5027</issn><issn>1527-974X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqFkctu1DAUhiMEoqWwZIu8ZEGo41xss6BCFTepEpsisbOOPceJq8QOdtLCbl4DCR6Fl5knITMdBlix8uX8_3eO_WfZ44I-L6gsT69gcHAaDEDBxZ3suKgZzyWvPt1d9rTheU0ZP8oepHRFadGwsr6fHZVlLZhg9Dj7uVl_v-ww4mb9LREgYwy6x-EZ8eGG3HQw7e6nDkkK_Ty54M826x8vSJrbFtP2nIgNkUxoOh_60Dpc5GGpj2OI0845oA8jzAl6MkXwyW1txMYwEOdX7tqtZugTwS8jRofeON8ePEjAr0iH0E-dgYjLgGCmHQFjepjds4sVH-3Xk-zjm9eX5-_yiw9v35-_ushNxeiUW6YLiYwWgtfQWJS2kkI3mpeSGkDGLWdGU2q0KEpdCWs410LXQpdGUCnLk-zlLXec9YArg355SK_G6AaIX1UAp_6teNepNlwrLkQpxRbwdA-I4fO8fJwaXDLY9-AxzEmxSshaNnXTLNL8VmpiSCmiPbQpqNpGrnaRq33ki_7J37Md1L8z_tM7zON_WL8A_NHC9w</recordid><startdate>20210215</startdate><enddate>20210215</enddate><creator>Backonja, Uba</creator><creator>Taylor-Swanson, Lisa</creator><creator>Miller, Andrew D</creator><creator>Jung, Se-Hee</creator><creator>Haldar, Shefali</creator><creator>Woods, Nancy Fugate</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-5997-549X</orcidid></search><sort><creationdate>20210215</creationdate><title>“There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners</title><author>Backonja, Uba ; Taylor-Swanson, Lisa ; Miller, Andrew D ; Jung, Se-Hee ; Haldar, Shefali ; Woods, Nancy Fugate</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c420t-f2b19e201875a6fe9f498b6b7390cae27f72cb00cb813b48fc77b8b58b3c80993</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Female</topic><topic>Health Facilities</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Humans</topic><topic>Menopause</topic><topic>Research and Applications</topic><topic>Technology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Backonja, Uba</creatorcontrib><creatorcontrib>Taylor-Swanson, Lisa</creatorcontrib><creatorcontrib>Miller, Andrew D</creatorcontrib><creatorcontrib>Jung, Se-Hee</creatorcontrib><creatorcontrib>Haldar, Shefali</creatorcontrib><creatorcontrib>Woods, Nancy Fugate</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Journal of the American Medical Informatics Association : JAMIA</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Backonja, Uba</au><au>Taylor-Swanson, Lisa</au><au>Miller, Andrew D</au><au>Jung, Se-Hee</au><au>Haldar, Shefali</au><au>Woods, Nancy Fugate</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>“There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners</atitle><jtitle>Journal of the American Medical Informatics Association : JAMIA</jtitle><addtitle>J Am Med Inform Assoc</addtitle><date>2021-02-15</date><risdate>2021</risdate><volume>28</volume><issue>2</issue><spage>209</spage><epage>221</epage><pages>209-221</pages><issn>1067-5027</issn><eissn>1527-974X</eissn><abstract>Abstract
Objective
To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of menopause as a cisgender women’s medical problem.)
Methods
A participatory design study was conducted 2015–2017 in the Western US. Two sessions were held with individuals experiencing menopause recruited from the general public; and 3 sessions with healthcare practitioners (HCPs) including nurses, physicians, and complementary and integrative health (CIH) practitioners were held. Participants designed technologies addressing informational needs and burdensome experiences. HCPs reflected on designs from participants experiencing menopause. Directed content analysis was used to analyze transcripts.
Results
Eight individuals experiencing menopause (n = 4 each session) and 18 HCPs (n = 10 CIH, n = 3 nurses, n = 5 physicians) participated. All participants provided ideas for solution purpose, hardware, software, features and functions, and data types. Individuals experiencing menopause designed technologies to help understand and prevent burdensome menopause experiences. HCPs designed technologies for tracking and facilitating communication. Compared to nurses and physicians, CIH practitioners suggested designs reframing menopause as a positive experience and accounted for the complex lives of individuals experiencing menopause, including stigma; these ideas corresponded to comments made by participants experiencing menopause. Participants from both populations were concerned about data confidentiality and technology accessibility.
Conclusions
Participant generated design ideas included novel ideas and incorporated existing technologies. This study can inform the development of new technologies or repurposing of existing technologies to support individuals through the menopausal transition.</abstract><cop>England</cop><pub>Oxford University Press</pub><pmid>33582820</pmid><doi>10.1093/jamia/ocaa178</doi><tpages>13</tpages><orcidid>https://orcid.org/0000-0002-5997-549X</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1067-5027 |
| ispartof | Journal of the American Medical Informatics Association : JAMIA, 2021-02, Vol.28 (2), p.209-221 |
| issn | 1067-5027 1527-974X |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_7883989 |
| source | Oxford University Press Journals All Titles (1996-Current); MEDLINE; EZB-FREE-00999 freely available EZB journals; PubMed Central |
| subjects | Female Health Facilities Health Knowledge, Attitudes, Practice Humans Menopause Research and Applications Technology |
| title | “There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners |
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